I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: brenda seal on June 06, 2012, 07:21:55 AM

Title: no big improvement
Post by: brenda seal on June 06, 2012, 07:21:55 AM
Well , Laurie has been home from hospital for two weeks now and has had 10 hours dialysis every day . He had blood tests yesterday and the nurse rang today with results - his creatinine is still high -six hundred and something and phosphorous high also . He is not improving as well as we expected and apart from going to see the doctor last week he has hardly gone past the bathroom . He has walked to the letter box once or twice and that is about it . His appetite is still very poor , it is his birthday tomorrow and I was hoping to take him out for dinner but he is just not up for it .
I am starting to get worried now . Is this as good as it gets ? I read on here about everyone getting on with their life and some of you even able to keep working . It is just not happening here . Any insight on what could be going on ?
Title: Re: no big improvement
Post by: Whamo on June 06, 2012, 07:55:33 AM
Ten hours a day of dialysis?  My heart goes out to you.  That's tough. :grouphug; :stressed;
Title: Re: no big improvement
Post by: Zach on June 06, 2012, 08:13:16 AM

Well , Laurie has been home from hospital for two weeks now and has had 10 hours dialysis every day . He had blood tests yesterday and the nurse rang today with results - his creatinine is still high -six hundred and something and phosphorous high also .


He may need to switch over to hemodialysis from PD.

 :cuddle;
Title: Re: no big improvement
Post by: jeannea on June 06, 2012, 10:23:39 AM
That sounds so hard. I would also ask the doc what his albumin level is. If that's really low he will feel like crap. I'm sorry he's not feeling better.
Title: Re: no big improvement
Post by: SugarBear on June 06, 2012, 10:45:04 AM
I've done 10 hours a night with nocturnal home hemo, usually did about 8 hours, but I had great numbers because of it.  Something is definitively wrong and I would be very concern.  Is PD less effective than hemo?  I don't know much about PD, couldn't do it because my BMI was too high and I was told I would not get effective cleaning.
Title: Re: no big improvement
Post by: MaryD on June 06, 2012, 05:26:49 PM
Is Laurie on a phosphate binder?  Renagel or such?
Title: Re: no big improvement
Post by: Traveller1947 on June 07, 2012, 04:03:03 AM
Something isn't right here.  I think it's time to switch to hemodialysis.