I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: dialysisadvocate on May 12, 2012, 07:48:11 PM
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When my father started dialysis, it was difficult - I wrote a poem and sent it to some people connected with dialysis -- one person used it, so they told me, in training of techs. . I showed it to our staff, including our nephrologist, from recall, and was met with resistance, instead of realizing what I had written was the truth ----resentment was obvious -- when I sent it and shared it with some - I did so anonymously just because of that which I just wrote --- now .. of course,,, it is on my website and I read this to a training class - hospital staff --
above opinion of Roberta Mikles
The Prayer of a Family Member
MY LOVED ONE IS ILL
WHAT WILL HAPPEN….
MY LOVED ONE IS ILL
MUST I BE STILL……..
MY LOVED ONE IS ILL
HEAR ME TALK….
MY LOVED ON IS ILL
I NEED A KIND HAND.
TO LEAD ME THROUGH………..
SOMEONE TO TRUST
TO LEAD ME THROUGH…..
I NEED YOUR KIND WORDS……..
TO LEAD ME THROUGH…..
WHEN I NEED YOU
TO LEAD ME THROUGH
I NEED YOU TO BE THERE
TO LEAD ME THROUGH THE TOUGH TIMES
MY NEEDS ARE IMPORTANT
DON’T SEE ME AS ANNOYING…
I NEED YOU TO ADDRESS MY CONCERNS
DON’T SEE ME AS ANNOYING….
If I QUESTION WHAT YOU ARE DONG
DON’T SEE ME AS A PROBLEM
BE THERE FOR ME
DON’T SEE ME AS A PROBLEM
IT IS HARD TO SEE A LOVED ONE ILL
DO YOU UNDERSTAND
IT IS UPSETTING FOR OUR FAMILY
DO YOU UNDERSTAND
IT IS OVERWHELMING TO THINK I MIGHT LOSE A LOVED ONE
DO YOU UNDERSTAND
IT IS A FEELING OF HELPLESSNESS
DO YOU UNDERSTAND
I NEED YOU TO BE THERE FOR ME
DO YOU UNDERSTAND
PLEASE TAKE TIME TO EXPLAIN TO ME
ALL THAT I NEED TO KNOW
FEAR IS OVERWHELMING
FRIGHTENING THOUGHTS AND FEELINGS
TENDER KINDNESS GOES A LONG WAY
WHO AM I? I AM A FAMILY MEMBER OF A LOVED ONE
Author: Anonymous - One who has experienced retaliation for attempting to ensure that
a family member received quality safe patient care.
Prayer of a Family Member
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That made me cry. It brought back the memories of when my sister was in hospital in England, she had terminal bone cancer, it felt like a constant battle for us her family to get proper information about her condition and care plan. Some staff members thought I was an interfering Aussie who should have shut up and let them get on with what they were doing, that was never gonna happen !!
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I hope all of the staff that hears this poem will take it to heart. Whatever happened to simple compassion?
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MooseMom- There is a culture, that lies within the dialysis environment, quite different from anything I have seen in any work-environment that I have experienced in thirty years of mostlly healthcare. Part of the problem is that there is a lack of role models in many of the facilities -- the other problem is the basic, as you say, 'compassion'. My father often said that if staff don't care they should not be working in healthcare -- Providers do NOT train and educate staff in areas such as 'what the patient is experiencing both mentally and physically..." Further, they do not provide training/education in areas e.g. patients are a real part of the team. By this I mean that patients are fully included to the point that they are, if they want, provided the same information that staff receive - this way patients, and their loved ones (if allowed in the unit) can prevent mistakes from happening. There is this type of culture that encourages a quite dysfunctional working environment -- the need to be liked by your peers results in staff overlooking wrongdoings, etc. I remember, when my father started dialysis, I asked a technician, now an RN, what would happen if this staff observed someone not dong what they should (related to infection prevention) .. we were told, in so many words, that it would basically overlooked as that is how things are done. I watched caring staff pick up bad habits when they precepted with another tech..
opinions of Roberta Mikles www.qualitiysafepatientcare.com