I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: dialysisadvocate on May 12, 2012, 06:30:41 PM
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The following is a poem that I wrote when my father started dialysis, It was used by several organizations for training.. I asked that my name remain, at the time, anonymous, as my father's facility did not accept my advocacv and when they read the poem it was obvious to me that there were some negative facial expressions as well as comments (of a sarcastic nature)... Yes, we did experience retaliation and they did not view me as an advocate for my father, nor he as an advocate for himself.
opinion of Roberta Mikles www.qualitysafepatientcare.com
The Prayer of a Family Member
MY LOVED ONE IS ILL
WHAT WILL HAPPEN….
MY LOVED ONE IS ILL
MUST I BE STILL……..
MY LOVED ONE IS ILL
HEAR ME TALK….
MY LOVED ON IS ILL
I NEED A KIND HAND.
TO LEAD ME THROUGH………..
SOMEONE TO TRUST
TO LEAD ME THROUGH…..
I NEED YOUR KIND WORDS……..
TO LEAD ME THROUGH…..
WHEN I NEED YOU
TO LEAD ME THROUGH
I NEED YOU TO BE THERE
TO LEAD ME THROUGH THE TOUGH TIMES
MY NEEDS ARE IMPORTANT
DON’T SEE ME AS ANNOYING…
I NEED YOU TO ADDRESS MY CONCERNS
DON’T SEE ME AS ANNOYING….
If I QUESTION WHAT YOU ARE DONG
DON’T SEE ME AS A PROBLEM
BE THERE FOR ME
DON’T SEE ME AS A PROBLEM
IT IS HARD TO SEE A LOVED ONE ILL
DO YOU UNDERSTAND
IT IS UPSETTING FOR OUR FAMILY
DO YOU UNDERSTAND
IT IS OVERWHELMING TO THINK I MIGHT LOSE A LOVED ONE
DO YOU UNDERSTAND
IT IS A FEELING OF HELPLESSNESS
DO YOU UNDERSTAND
I NEED YOU TO BE THERE FOR ME
DO YOU UNDERSTAND
PLEASE TAKE TIME TO EXPLAIN TO ME
ALL THAT I NEED TO KNOW
FEAR IS OVERWHELMING
FRIGHTENING THOUGHTS AND FEELINGS
TENDER KINDNESS GOES A LONG WAY
WHO AM I? I AM A FAMILY MEMBER OF A LOVED ONE
Author: Anonymous - One who has experienced retaliation for attempting to ensure that
a family member received quality safe patient care.
Prayer of a Family Member