I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: brenda seal on May 08, 2012, 04:31:17 PM
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I am very scared and mad as hell . Laurie had surgery two weeks ago to repair a large hernia - "They " in their wisdom have decided to rest him off dialysis to enable the abdomen to heal ( he is on PD ) . When I voiced concerns because blood test pre surgery had his creatinine at 708 and GFR<7 and that was after 2 days off dialysis , the doctor told me he was not concerned about the figures as long as Laurie felt " OK " .
He had a blood test last Tuesday and the nurse said she would ring with the results . Guess what - no phone call just paper work in the mail for another blood test and a sticky note to say they had arranged for someone to come and collect blood . He had that blood test yesterday morning . No phone call .
Laurie has got sicker each day , we are now at the point where he is not able to eat and is sleeping most of the time . He had a follow up appointment with the surgeon this morning which I had to cancel because he feels too ill to go . I told them he was too sick to keep the appointment - did they care - NO .
So what is the doctor's definition of OK ? Is he still breathing ? Is he still conscious ? What do I do now ? Laurie will not let me ring the clinic - he said if it was bad enough they would ring . I think he is too ill to realize how ill he is !
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call them, they need to know what's going on. if it really is "OK" at least you'll know. Call them. I would. My best to you!
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Take the bull by the horns and call them. If for nothing but your peace of mind, at least you'll know something afterwards.
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Definitely call the clinic
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I have called the clinic - Oh the blood results are just coming across my desk as we speak ! Creatinine 690 Urea 42 everything else looks fine . Nurse is going to speak with doctor and call me back - re putting him on the machine tonight on reduced volume .then he will feel a whole lot better tomorrow - she said . Why do I not believe her ?
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I am glad you called the clinic. How many days post surgery is he? I would think they need to get him on some sort of dialysis, now. I am sure he doesn't want a cath, but perhaps they can do more exchanges at a smaller volume? Gotta do something to keep him from getting too ill.