I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: billybags on October 12, 2011, 11:41:01 AM

Title: back on the Merry Go Round again
Post by: billybags on October 12, 2011, 11:41:01 AM
For the last 3 weeks my husband has seemed really well. After months of being ill, not eating, losing weight and generally feeling crap he has started to pick up. weight up, eating better but here we are again on the merry go round. His lungs are filling with fluid again and he feels no how.To-morrow he has to go and get his lung tapped again. We know he has a bad heart and there is nothing they can do, even the cardiologist has discharged us, I think they are waiting for him to have another heart attack and good bye Vienna. It is so frustrating because he try's so hard. This is a shitty disease. Sorry for moaning.
Title: Re: back on the Merry Go Round again
Post by: MooseMom on October 12, 2011, 11:52:13 AM
I apologize for not knowing the answer to this, but which came first, the bad kidneys or the bad heart?

You are right..this is a shitty disease.  Can't put a spin on that.   :cuddle;
Title: Re: back on the Merry Go Round again
Post by: willowtreewren on October 12, 2011, 12:01:20 PM
 :grouphug; :grouphug;

Billybags. You need this hug!

I wish there were something to do. I'm glad he has been feeling some better, but not that he is going down again.

 :grouphug; :grouphug;

Aleta
Title: Re: back on the Merry Go Round again
Post by: thegrammalady on October 12, 2011, 12:22:13 PM
not a single one of us has a problem with you moaning! we just wish things would go better for you, i too don't have any answers, just hugs!
 :cuddle; :cuddle; :cuddle;
Title: Re: back on the Merry Go Round again
Post by: monrein on October 12, 2011, 02:31:59 PM
 :grouphug;  I do wish things weren't so tough for you both.
Title: Re: back on the Merry Go Round again
Post by: jbeany on October 12, 2011, 03:16:05 PM
 :grouphug;
Title: Re: back on the Merry Go Round again
Post by: looneytunes on October 12, 2011, 03:19:05 PM
Aw BB...the Merry Go Round does go round, doesn't it? Just when it seems things are getting a little better, well..here we go again.  My prayers are with you my friend.   :cuddle;
Title: Re: back on the Merry Go Round again
Post by: boswife on October 12, 2011, 03:51:16 PM
this stuff is so hard.  I really feel for you,( and him of course) as i do know your spot.  It hurts  :'(   My hubby too just reciently had the 'tap' and seems to be doing well with it but who knows. We'er all in limbo it seems.   I will ask.............. because of hemo, we can take extra fluid off during sessions and keep it off a bit easier than with PD.  Is that right? Would it be of any benifit to go hemo? We are right now having tests done to see if it's more heart, or kidney that caused that need for the tap.    All in all, i feel so bad for where you are with this and can only pray for some answers and healing of sorts for you both.  I have needed to vent myself but not had the energy to do so :(  (looking a bit up now though)    :grouphug;
Title: Re: back on the Merry Go Round again
Post by: Rerun on October 12, 2011, 04:41:33 PM
As long as he is trying, then they need to try.  Kick some butt next time you are alone with one. 

            :Kit n Stik;
Title: Re: back on the Merry Go Round again
Post by: natnnnat on October 12, 2011, 05:57:06 PM
 :(
 :grouphug;
It really is so unfair.
Title: Re: back on the Merry Go Round again
Post by: billybags on October 13, 2011, 05:33:14 AM
Thanks for your concerns gang, I was really feeling pissed off when I posted yesterday. He went and had his tap this morning and every thing went OK his breathing is a little better and they said it would be an on going problem. They think as we do that it is his heart not pumping enough but they are also testing to see if it is a leak from his peritoneum, heaven forbid because his heart is not strong enough to do hemo.His heart was fine, well we surmised it was, before he started dialysis 3 years ago and since then he has had 2 heart attacks which weakened it.To-day is another day, so I will get on with it.Once again thanks, I know I can come here and moan away.
Title: Re: back on the Merry Go Round again
Post by: Bajanne on October 13, 2011, 04:39:25 PM
That's what this place is for!!!  Here's a hug from me to you- :cuddle;
Title: Re: back on the Merry Go Round again
Post by: del on October 13, 2011, 05:52:49 PM
 :grouphug; :cuddle;