I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Centers => Dialysis: Doctors => Topic started by: kitkatz on January 22, 2007, 09:09:07 PM
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I had a phone call this afternoon as I am running out the door to go to dialysis. It is my nephrologist. Says to me: Have you had the results of the CT-scans? I said: No, not yet. HE says: Wait a minute. I have to go over these with the radiologist. I will call you back tomorrow!
WTF!!! Why bother calling me if you can't tell me the results? Holy sh**! Just leave me hangng for a day or so. I hate it when they do this to me! He says he will call tomorrow after two oclock. We shall see, but this doctor is pretty good about calling back. Why do they have to torture me so?? So now I get to worry for 24 hours or more. *SIGH!* :banghead; :banghead;
EDITED: Moved Thread To Proper Topic; Doctors - Sluff, Moderator
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That sux! Hopefully it's not too serious! I wish you luck!! :cuddle;
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When the Fuc*** calls tomorrow just say "would you mind holding for a moment?" and just put him on hold and leave. Then just blame it on your memory! That is horrible to do to someone! I'm sorry Kit!
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I'm sorry, Kitkatz. That just sucks. I hate the waiting myself, I feel like I have just about everything I can handle already and then you have to wait for something like this. I hope everything is okay and I'll be praying for you!
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Sorry kitkatz, I'm praying all will be OK..hang in there!
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Guess what? No friggin' phone call tonight either! Damn it! :banghead; :banghead; :banghead; :banghead;
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Maybe that just means that it's not that serious! I mean,they would call you immediately if it was something serious, right?
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Kit--
Call him and have him paged. Tell him he scared the crap out of you.
I would call now, before it gets too late. I would say I waited by the
phone all afternoon. It's so RUDE to leave you hanging!!!
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Boy .......they just don't get it ...do they ??? So sorry you have to be held in suspense, not fair. Doctors....why is it sooooo hard to find a good one?
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:banghead; :banghead; :banghead;
Here - have one of these. . . :wine;
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I have a good doctor, he just got busy I am sure or could not track down a radiologist. I am just venting my aggravation here or I was going to explode all over everywhere! I hate this crap! :banghead;
I believe I am going to have one of those :wine; Maybe two :wine;! Maybe even :beer1; :beer1;! Oops! over the fluid limit already!
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I would call him or email him...is so hard to wait like that :grouphug;
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No phone call yet. Although the transplant coordinator says it is not important. We shall see.
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Kit...if you have registered with Kaiser's website most test results are available online shortly after the samples are drawn. Some take longer than others to come back but as they come in they are posted to the site. You can also set the system up to send you email alerts as results come in. It is a real blessing to be able to know what is happening without seeing the doctor or calling in. http://members.kaiserpermanente.org/kpweb/selectregion.do?gt=/kpweb/membershome/entrypage.do
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Thank you for the link. I registered and am waiting for my password to come in the mail!
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I hope your cat scan turns out OK I had mine and when I called to check they said they wouldn't be putting me on the list just yet because the surgeon wants to discuss the results with me. The nurse said that it showed some sort of calcium build up and the Docter wants to feel around. So know I get to wait till the 13th of Feb to discuss it :banghead; :banghead; :wine; :wine; Boxman55
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Okay, so today I get a message on the phone in my classroom from my nephrologist. "Come by my office you do not need to check in, I need to talk to you." So I call the dialysis center to let them know why I am going to be late this afternoon. The doc wants to see me. So I head out to Kaiser a two oclock today and get to his office. I am taken by the doctor into his office and he closes the door. "Uh oh." I think. He then tells me he wants me to know they found a tissue mass between my sacrum and the rectum. He wants to send me to a surgeon to get it biopsied or looked at. I hate all of this crap! Then I spoke the the transplant coordinator and she says the urology consult will be done and this has to be checked out before they send me back to Loma Linda She sent the paperwork to the urologist. Maybe this is why they could not catheterize me for one of the xray tests I had done. :banghead; :banghead; :banghead;
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You have a urostomy why would they catheterize you anyway?
Don't worry until you have to. Just go get this test out of the way.
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Okay, so today I get a message on the phone in my classroom from my nephrologist. "Come by my office you do not need to check in, I need to talk to you." So I call the dialysis center to let them know why I am going to be late this afternoon. The doc wants to see me. So I head out to Kaiser a two oclock today and get to his office. I am taken by the doctor into his offce and he closes the door. "Uh oh." I think. He then tells me he wants me to know they found a tissue mass between my sacrum and the rectum. He wants to send me to a surgeon to get it biopsied or looked at. I hate all of this crap! Then I spoke the the transplant coordinator and she says the urology consult will be done and this has to be checked out before they send me back to Loma Linda She sent the paperwork to the urologist. Maybe this is why they could not catheterize me for one fo the xray tests I had done. :banghead; :banghead; :banghead;
Geez I hope they get to the bottom of this stuff so you can move forward.
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Me too, literally! :2thumbsup;
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Geez I hope they get to the bottom of this stuff so you can move forward.
Mr. Sensitive! :waving;
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... He wants to send me to a surgeon to get it biopsied or looked at. ...
*&%$#^&!! >:( Enough already!!
So, when are they going to do that? I know I would hate the waiting, so I hope you get it done soon! :cuddle;
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They were trying to see if I had any bladder left to use again. It has been fun and frustrating! (Sarcasm goes here!) Holy Hell! I am going to rant and rave and swear up a storm over the next few weeks. Bear with me!
Sluff, you made me laugh! Thanks! :rofl; :banghead;
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It wasn't intentional, but I'm glad I made you laugh. ;)
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I figured it was not intentional but it had me cracking up. Get this behind you....Hahahahahaha!
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You have a great sense of humor! :D
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sluff, LOL.
I thought you were kidding too.
kitkatz, think positive.
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So they called me, I called back. We had an appointment for you, but it is gone now. WTF! Just because I did not call back quick enough you gave my appointent away! These people are crazy! So now I am on the first available appointment shit list. Sometimes I hate this crap.
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It may get to the point where you just have to show
up and insist that you have an appointment.
Rant and rave that someone even called to confirm it!
Two can play at that game.
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It may get to the point where you just have to show
up and insist that you have an appointment.
Rant and rave that someone even called to confirm it!
Two can play at that game.
Good Advice!
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It may get to the point where you just have to show
up and insist that you have an appointment.
Rant and rave that someone even called to confirm it!
Two can play at that game.
EXCELLENT IDEA! Remember, the squeeky wheel gets the oil! Go for it!
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OKay, so Kaiser called the other day. You know the soonest appointment they can get me to the surgeon is? March friggin 6th! Can you all believe it is a month later before they can see me? Thank God I am not dying anytime soon from it. I hope anyway. So now I wait. (Crazy lady with big stick does not like waiting!) I even called the transplant coordinator for help and she told me to call them back and fuss. I tried; nothing until March 6. Funny how the March calendar came up and they could not get to me until the 6th. *Sigh* The sound you here is me banging my head on a wall! :banghead; :banghead; :banghead;
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Here it is March 6th and I have been to see the surgeon. The results...no results...more tests to do. I figured that was coming. So it is off to a minicolonoscopy to look at the 5 centimeter mass between my colon and the tailbone. He said he could feel it. I am not describing how he did that, use your imagination. He also wants an MRI to go with it and an ultrasound. He says he hopes they can see if it is malignant or not with the MRI or if it is just a benign thing sitting around doing nothing. So March 13 th is the colonoscopy, and then March 23 is the MRI. Then I go see the urologist on March 29. Fun, fun and I am on break so I can schedule these things anytime.
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Good Luck kit, Thinking of you . :cuddle;
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Ugh. :cuddle;
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Here it is March 6th and I have been to see the surgeon. The results...no results...more tests to do. I figured that was coming. So it is off to a minicolonoscopy to look at the 5 centimeter mass between my colon and the tailbone. He said he could feel it. I am not describing how he did that, use your imagination. He also wants an MRI to go with it and an ultrasound. He says he hopes they can see if it is malignant or not with the MRI or if it is just a benign thing sitting around doing nothing. So March 13 th is the colonoscopy, and then March 23 is the MRI. Then I go see the urologist on March 29. Fun, fun and I am on break so I can schedule these things anytime.
I hope this turns out to be benign but I'm sure you won't sleep well until you know for sure. It just seems that this has dragged on for a long time. I can't wait til you can get some closure on this.
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Me too. But in the end it is all stuff.
Stuff- Stupid, terrible, unusual, foolish fluff.
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Stuff- Stupid, terrible, unusual, foolish fluff.
:2thumbsup;
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I need to whine today before I go to the doctor's appointment. I have a colonoscopy scheduled this afternoon. The doctor wants to see if the oogie googie (what to call it?) I have has tendrils in the colon or anywhere else and see if he can determine if it is harmless or bad. ME, I want harmless, please. So I had to do three enemas this morning. A shitty thing to do! I have not eaten all day and the appointment is at 3:45. I am staying out of the kitchen as much as possible today. So here I am whining at you all. I hate doctors appointments and I especially hate tests. It usually involves a needle somewhere in the body! Whine whine whine. A friend of mine tells me it is not bad, her Mom had one done. Thanks for the first hand information! Why can't these things be easy? I want a Star Trek tricorder where the doctor just says beep beep and you are done and healed. *sigh* whine! :wine; :banghead; :banghead; :banghead;
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Hoping all goes well kitkatz, will keep you in thought and prayer.
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I want a Star Trek tricorder where the doctor just says beep beep and you are done and healed.
I actually bought my husbands GP one for Christmas off of E-Bay!! (no-it didn't help!!)
Good-luck with your test-hubbt had one and he was knocked out for it-I hope you are too,so its easy for you... :grouphug;
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:grouphug; Goodluck today Kitkatz.
Take your big stick with you and poke them hard if they hurt you!! I will be thinking of you. :cuddle;
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Well here I am reporting on the entire shitty subject again. I had the butt rotorootered this afternoon. That was fun! Not! The doctor was as gentle as he could be and it was not bad at all. Just time consuming because the surgeon was running late. I was getting myself all worked up when I had to wait an hour. I am very quiet when I am getting worked up over something so I was silent while waiting even though hubby was there with me. They took me back into a mini-operating theater which just about freaked me out totally. I said: This look famliar. They said Oh you have been here before. No a place real similar to it. I answered. Got draped on the the table butt side up and then the fun began. They inflate your insides to get a real good look at them. I saw the pictures on the TV monitor and watched him run the thing through my colon. Pretty smooth walls even if I say so myself. Nothing was found. The oogie googie may be just a cyst. Not sure yet. He looked back at old CT scans and said it had not grown in six to eight years so they think whatever it might be is a slow growing thing or a cyst. Then he did an ultrasound with printed pictures of the mass. Interesting. I saw the pictures briefly. Then he sent me down the X-ray for an x-ray of the pelvic region. I guess he wants all the pretty things to look at. The MRI is on the 23rd and I will go see him again April 17 at 2:45p.m. We should know more then. I have a case of the serious farts tonight. (I bet you really needed to know that!)
:banghead;
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thats great everything went smoothly kit. and i guess thats a good thing you have "pretty smooth walls". ;D :lol;
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Well glad it went well.
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Glad you got that over with! And congrats on those "smooth walls" - that's actually quite important. As for the farts, just think of each one as a little commentary on the sh#t you've had to put up with lately! ;)
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Wow talk about someone who knows themself inside and out. ;)
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:rofl; :rofl; :rofl;
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Since this is the subject of colonoscopy i wanna ask this here. On CBS they are doing a big thing on colon cancer and the benefits of being checked out with colonoscopy's. They say to get checked in your 40's or 10 yrs before a familywho was diagnosed with Colon cancer. Question is: My aunt is currently going through colon cancer, and I wonder with all my medical issues should I get one sooner than 40's?
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I had to have one as part of the transplant evaluation. With family history, you might ask your doctor.
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Since this is the subject of colonoscopy i wanna ask this here. On CBS they are doing a big thing on colon cancer and the benefits of being checked out with colonoscopy's. They say to get checked in your 40's or 10 yrs before a familywho was diagnosed with Colon cancer. Question is: My aunt is currently going through colon cancer, and I wonder with all my medical issues should I get one sooner than 40's?
If it runs in your family why not be checked?
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Im 29 years old, the dr said i dont need to be checked until im older.
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With a family history, I'd get checked sooner than 40, especially since the immunosuprresant drugs up your risk of cancer.
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Well m transplant Dr's said I don't need it done anytime soon.. so f I get it done before 40 it will be when I'm in my 30's.
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I have a case of the serious farts tonight. (I bet you really needed to know that!)
:banghead;
At least you have a reason, (wish i had a reason) ::)
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Well m transplant Dr's said I don't need it done anytime soon.. so f I get it done before 40 it will be when I'm in my 30's.
Mid 30's sounds about right - a bit earlier than most because of the family history, and by then you'll have been on the transplant drugs for quite some time.
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I had the MRI today to look at the mass. What fun it was! I remembered to close my eyes before he put me in the machine and I remembered thinking geez shall I open them now. I did for all of a second and then I shut them for the duration. Panic would have set it. You are nose to nose with that machine! I just told my mind to go sit on a rock and I plastered myself on a rock and relaxed. Thank God I have taught myself not to panic in medical situations. April 17th I will have more news for you all about this episode in my life.
I decided two days ago it was not cool to go through my life scared. So here I am.
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Congratulations on getting through the procedure! I hope all turns out well - how agonizing to have to wait so long to find out!
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I had the MRI today to look at the mass. What fun it was! I remembered to close my eyes before he put me in the machine and I remembered thinking geez shall I open them now. I did for all of a second and then I shut them for the duration. Panic would have set it. You are nose to nose with that machine! I just told my mind to go sit on a rock and I plastered myself on a rock and relaxed. Thank God I have taught myself not to panic in medical situations. April 17th I will have more news for you all about this episode in my life.
I decided two days ago it was not cool to go through my life scared. So here I am.
Good for you Kit, you made it through, i dont think i could but if and when i ever have to i am definetly going to take your advice on "sitting on a rock" that sounds kinda cool. Looking forward to some good news on April 17th girlfriend. :cuddle;
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Me too. I finally decided that living scared over this stuff was not good for me. So I stuck it in my worry basket and said okay.
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So I stuck it in my worry basket and said okay.
Where can I get myself one of those Kit? :2thumbsup;
I am so glad you sailed through the MRI. Thank god for that rock! I am crossing my fingers for only good news ahead. :cuddle;
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I just made my self a worry basket in my mind and set in on a huge rock. I use it to help me sleep and when things happen and I cannot get them out of my head. I imagine it looks like one of those old fashioned baskets with the hinged lids. I open it up and shove my worries into it. The funny thing is every time I open it, it is empty.
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Kit, i am sure you couldnt help BUT to worry, anything that has to do with our health (especially with this damn disease) gives us reason to worry. You know, it is sad cuz there is no one in my family who understands when i try to talk about dialysis and/or kidney failure to them but my family here at IHD,they totally know where i am coming from and how i feel, now they (and of course you too) are MY best support group and i couldnt do it without them (or you) ;) :2thumbsup;
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Me either. This group of people had saved me from jumping in front of a semi this year! You all have walked by me through the fires of hell and kept me going.
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The surgeon said today....(drumroll...please...)
The Oogie boogie is a benign cyst! We shall see what Loma Linda says about it now.
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:clap; :clap; :clap; :clap; :clap;
:cuddle;
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Hurray! :clap; :clap; :clap;
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:yahoo; :yahoo; Woohoo for you Kit. I think a little chicken dancing is must! :cuddle;
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Yippee Yah Kit! I Hope there is a lot of chicken dancing goin on !
Once again Yippee Yah ! :clap; :clap; :yahoo; :yahoo;
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EXCELLENT! :thumbup; :clap; :2thumbsup; :thumbup; :clap; :2thumbsup;
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Great News Kit :clap;
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:2thumbsup; :2thumbsup; :clap; :clap; :yahoo; :yahoo;
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:clap; Who doesn't like to hear the words, benign cyst! So great that you got to hear them now, Kit! ;D
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That is good news!
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The surgeon said today....(drumroll...please...)
The Oogie boogie is a benign cyst! We shall see what Loma Linda says about it now.
I'm so glad it turned out benign. :cuddle; What did Loma Linda say?
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That is wonderful news Kit!!!! :clap; :clap;Time for a drink now! :popcorn; :wine;
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Wonderful news!! :wine; :beer1; :wine; :clap;
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:2thumbsup; :clap; Wonderful news. HOORAY!!!
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I just now saw this, Congratulations Kitkaz, I'm sure that was some relief to get good news for a change.
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Damned Loma Linda and Kaiser finally spoke to each other after I made three phone calls for one appointment., I am supposed to see urologist soon and then we shall see what happens from there. I am going to start screaming and running in circles at these people. Tapping toes!
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Damned Loma Linda and Kaiser finally spoke to each other after I made three phone calls for one appointment., I am supposed to see urologist soon and then we shall see what happens from there. I am going to start screaming and running in circles at these people. Tapping toes!
One must remember, patience is a virtue my friend, and good things come to those who wait ;) (especially if she holds a big stick to kick ass with if shit doesnt start happening) So you do what you gotsta do girlfriend :beer1;
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I want to curse a blue streak tonight. I call Loma Linda for an appointment now that they have a referral for a urology appointment, the nearest appointment I can get is in September. What the F****! I pitched a fit! Are they going to keep me in limbo forever? I told the secretary no f* way was I going to wait three months for a referral that can take minutes for the doctor to do! Crazy!
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Sorry you had to pitch a fit girlfriend, but GOOD FOR YOU,, at least you stood your ground, hopefully they listened to you and are working on getting you an appt. sooner than September, that is just craziness, CRAZINESS I SAID!!! :urcrazy;
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So today I get another call from Loma Linda asking me to call and make an appoinyment because my referral has a limited time on it. So I call them and they say "Oh not until September" again. I yelled at the lady on the phone, then slammed the phone down, then called my transplant coordinator at Kaiser and cried all over her shoulders and then went for a milkshake and fries at Bakers. The transplant coordinator said it would be allright and I would be calle dint he next two weeks. So I am out shopping and Loma Linda call me with an appointment. Guess what day it is on?
Go ahead Guess....I will wait.....
A friggng Moday afternoon! Are they even thinking?
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:urcrazy; I am guessing you are at dialysis monday ... right? Ask if they can make a house call to you at the center then hit them REALLY hard
with your big stick! ahhhh :boxing; :boxing;
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People are just stupid sometimes. :cuddle; Can you switch your dialysis time to Monday morning so you can make the appointment?
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:boxing;
Ah, that's what this avatar is for. . .
they should have added one waving a big stick, though!
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Here is my update....waiting...waiting....waiting. June 18th is the appointment with the urologist again.
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I think we spend most of our time waiting for doctors, appointments, etc. I am so sorry you are dealing with all of this on top of dialysis and work.
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I wait three months to see my Neph. While at dialysis the Neph's office calls to cancell the appointment.
This happened three times. So each time I call back and have to set up another apointment for almost another
month later.
Several times I call the Neph's office about a problem. They say
you must see your General Practitioner for that."
I go to the Gen Prac and he says "maybe you should dicuss this with your Nephrologist."
Hey do you darn guys communicate with each other????????????????
ahhhhhhhhhhhhhhhhhhhhhhhhhhhhh
................bd
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we found the perfect solution to the communications problem- we found a young General DR. whom we just love. Then we asked if he had a Neph who he was personal friends with, and he said yes and gave us a referreal. Now if it needs to be cross-discussed its done easily. They give each other heads up all the time.
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Okay it is June 18th and I am off to the urologist appointment at Loma Linda, a continuation of the transplant work up. Please pray it is good news in the next two hours. The know I tied at the end of my rope is frazzling fast.
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Keeping my fingers crossed for you, kit.
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Hope all goes well Kit, I know a remedy to stop the rope from frazzling do the chicken dance ! Good Luck Girl!
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My prayers are with you kitkatz... :grouphug;
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Okay it is June 18th and I am off to the urologist appointment at Loma Linda, a continuation of the transplant work up. Please pray it is good news in the next two hours. The know I tied at the end of my rope is frazzling fast.
Hey, you're not home yet? Huh? Hope you're ok and they didn't torture you too much!
:cuddle;
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No torture today. Thank goodness. Just along wait to hear no results. Then left up to me if I want more invasive tests, or do I want to leave it up to the renal transplant team. I left it in their hands. We will see what they say they want done to me in the next few months to get cleared for transplant. *Sigh* More waiting.
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hang in there kit i know what its like i have to loose weight and get a kidney removed before i can be listed although you have been waiting alot longer than me it still sucks
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:cuddle; Kit, you have amazing strength. I am sorry that they are still stuffing you around. {{{HUG}}}
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I got in touch with the transplant coordinator and she called Loma Linda. I have a new transplant coordinator over there. Like I was notified? She says they will take me back to committee and see what happens. I should be hearing back from her in two to three weeks. Waiting....waiting...
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I got in touch with the transplant coordinator and she called Loma Linda. I have a new transplant coordinator over there. Like I was notified? She says they will take me back to committee and see what happens. I should be hearng back from her in two to three weeks. Waiting....waiting...
Hang in there Kit, i can understand your frustration with all this waiting and the damn phone tag and all that but i am sure it will all be worth it in the long run. :2thumbsup;
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On my, more waiting. I'm so sorry. Seems like all dialysis patients do is wait. >:( Hope this is the backstretch and the finish line is very close. :2thumbsup;
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We need a waiting icon on the board. Maybe the dancing banana can be my waiting icon :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance;