I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Hazmat35 on March 22, 2011, 07:49:39 AM
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I just learned that one of my fellow patients at our Dialysis center has passed away from Uremia.
She was only 20 years old and had not been at our center very long, only a few month at most. She was terribly ill with ESRD as well as other things too, I'm told. I don't exactly what else was wrong with her.
I am so sad! :'( I didn't really know her very well, but I sat next to her a few times, and cried with her as she was in such pain.
GOD I HATE THIS DISEASE!!!!!!!
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:grouphug;
I understand. Hugs to you. Keep yourself as healthy as you can....
:cuddle;
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so sorry.... :cuddle;
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So young... so sad....
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:'( So young. So sorry for you too. :cuddle;
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I can understand a dialysis patient dying from a heart attack, but from uremia? I would think THAT is the one thing that dialysis is supposed to effectively treat! This just seems to be so illogical, which makes it all the more tragic.
I am so sorry. How awful. Twenty years old... :'(
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I can understand a dialysis patient dying from a heart attack, but from uremia? I would think THAT is the one thing that dialysis is supposed to effectively treat! This just seems to be so illogical, which makes it all the more tragic.
I am so sorry. How awful. Twenty years old... :'(
From my understanding, she did not NOT come to her treatments regularly, she did not follow her renal diet, and she did not take her meds. Unfortunately she was in complete denial.
She had other health issues as well. She was a very sick young lady. My heart broke every time I saw her come in to the center, but broke even more when I knew she was too sick to make her appointment.
I sat next to her a few times, and listened to her sob and cry because she was in so much pain, I cried along with her! It was awful, just awful. But I have to say, she AND her family brought it on themselves. Her parents made excuses for her when she didn't come, they didn't push her like the should have.
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Ah, that explains it. This story just gets sadder and sadder.
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Oh gosh, that's so terribly sad. *huggles*
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Invincible ..no sad , very sad ..yes
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:grouphug;
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:grouphug; Sorry to hear, I had the same thing happen to me not too long ago.
But she was actually a friend on mine. I hate this disease more. :'(
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I'm so sorry. (((((((((( hugs ))))))))))
The war against kidney failure is like a real war--we have to be able to deal with casualties.
I had become friends with a dialysis patient at my center. He died five months later.
And another patient sitting across the way from me coded--the EMTs came but couldn't restart his heart--and that was that.
All you can really do is mourn for a few days--and then get on with our jobs and our lives.
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I'm never sure of the etiquette when someone it the unit stops coming. I have asked other patients where someone was (that time the woman had died; I had only talked to her once, about cats, but it was still a shock) but other times they have had a transplant or just gone to another unit.
Still, it's asking the nurses where someone is: is it good etiquette? I have heard a nurse telling someone off for asking (this on a regular ward): some privacy issues that time. Since then I have not liked to ask.
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Yes, it is a sensitive issue. So sad to notice that "one of the family" is missing; whether just noticing them in passing, or having an meaningless conversation. They are physically not there. It hits home what a devastating disease this is. It kills. I think we are all humbled by the truth of life. It is fleeting. We are lucky for each day. I'm sorry for your loss. Take today with good heart.
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We have a young girl who misses all the time. You can't or won't understand that part of the reason she is sick is that she misses dialysis. She eats and drinks without regard to her D either. Her parents indulge her behavior and even lie for her to our unit. She was moved from our unit to the Royal London which is the base for all the units in our area. She has improved but still misses. It is sad but I don't know what the docs and nurses can do.
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I'm never sure of the etiquette when someone it the unit stops coming. I have asked other patients where someone was (that time the woman had died; I had only talked to her once, about cats, but it was still a shock) but other times they have had a transplant or just gone to another unit.
Still, it's asking the nurses where someone is: is it good etiquette? I have heard a nurse telling someone off for asking (this on a regular ward): some privacy issues that time. Since then I have not liked to ask.
We were never told that she passed away from anyone at our center. I happen to ask our Administrator how she was doing. I just assumed that she was still either in the hospital or she was doing the 1st shift (I'm on the 3rd or later shift at the center). That was when she told me.
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I'm never sure of the etiquette when someone it the unit stops coming. I have asked other patients where someone was (that time the woman had died; I had only talked to her once, about cats, but it was still a shock) but other times they have had a transplant or just gone to another unit.
Still, it's asking the nurses where someone is: is it good etiquette? I have heard a nurse telling someone off for asking (this on a regular ward): some privacy issues that time. Since then I have not liked to ask.
SAdly, it is againt HIPA privacy for the nurses to discuss another patient. Most nurses will freely give that info if asked, because it is just human kindness and most know that people get to know one another.