I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: jeannea on March 17, 2011, 02:18:35 PM
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Today is my transplant anniversary. 13 years. It used to be an occasion for a party but now I'm on PD and it's a little depressing. I'm sure there are others here post transplant who know how I feel. I'm back on the list but it will be years...
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:cuddle; so sorry.....
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Oh gosh...I am so sorry to hear that. There must be few things more demoralizing than to have enjoyed life without dialysis and then have to go back on it. I don't even want to imagine. I really hope you get another chance very soon. Life is really hard on the list. :cuddle;
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@Noahvale and jeannea, do you get extra "points" on the list for having already had a tranplant? Wouldn't that mean you might get further up the list quicker? I sure hope so!
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Hugs to both of you. :grouphug;
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Thanks everyone for the support. Noahvale - at least I didn't start dialysis on my anniversary.
I don't know about the points. I'll take what I can get. My antibodies are at 97% because of the previous transplant and 4 units of blood when I was bleeding out. I hope to get treatments soon to bring that level down.
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I never remember the dates of bad things. You got 13 good years - hope you get more. :2thumbsup;
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Sorry to hear this. My daughter's surgeon was discussing the new idea of removing the transplanted kidney that no longer works - in order to bring down the PRA. Once the foreign tissue is gone, some of the antibodies go down. Has anyone heard of this?
There's also desensitization treatments that have helped some of our members to get transplants. Not all centers do it, but it's worth asking about. My friend just got her transplant from her non-matching donor on Feb 4 - it's her 4th transplant and her PRA was 100%!
Even having a non-matching, but willing, living donor - some patients have gotten lucky in paired swaps or chains, where your tissue is put into the system and compared to donors at over 30 participating hospitals. They've already matched a few patients who were over 97% PRA.
I hope something works out for you both. :cuddle;
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sorry to hear this I felt the same way too when my kidneyversary came up in December...hang tough!
xo,
R
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I don't have a protocol yet for the antibodies. I was waiting for some insurance stuff to get worked out. But they could do IV Ig or plasmapharesis. I'm with Hershey Med Center in PA. They refused to make me any promises or plans til I had medicare all in place.
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This is kind of why I don't want a transplant. I can't imagine going through renal failure twice. The emotions the sickness the stress......ugh!
I also am one that never remembers bad dates. You were lucky to get an extra 13 years and I wish you many more.