I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: murf on December 03, 2010, 11:29:59 PM
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Have had some devastating news. After five years of waiting patiently for a transplant and looking after myself to get this gift, I may be taken off the list. Apparently, the continuous dialysis has strained my heart and the stress test wasn't too flash. Have to go through a series of tests: echo cardiogram. angiogram and a 24 hour heart monitor to see how bad it is. Then I will be told if I can remain on the list. I have never felt so low.
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Don't get to worried just yet. It could just be a safety check, a glitch on their reading due to a bad day.
Until they say no, don't worry and even if they say no, you are on a back up plan to survive. A different center may have diferent standards if one is nearby.
Good :Luck murf
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Chris is right. But waiting to find out can be pretty horrible. [fingers crossed icon] for you Murf. Can you make your dialysis slower than slow and get your heart looking flash for the readings? When are the tests and when do you find out?
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Have had some devastating news. After five years of waiting patiently for a transplant and looking after myself to get this gift, I may be taken off the list. Apparently, the continuous dialysis has strained my heart and the stress test wasn't too flash. Have to go through a series of tests: echo cardiogram. angiogram and a 24 hour heart monitor to see how bad it is. Then I will be told if I can remain on the list. I have never felt so low.
Good luck on all of the testing.
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:grouphug;
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you've been stressed lately too, because of the drainage bag thing.. I'd wait until after the tests are done to worry.. you may have just had a bad day
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I surely hope not.. I do know that hubby has gone in for 'testing' (heart but not for kidney workup) and has had such different outcomes due to stresses. Hopfully, yours will bounce back when your feeling better.. :pray;
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Try to stay Busy and Positive, till all the Testing is done. :grouphug;
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:grouphug; Hang in there. We'll wait with you...
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:cuddle; :cuddle; hang in there!!!!
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Oh no, I'd be devastated, too...I won't lie about that. So, what happens next, and when? I'm keeping my fingers crossed for you. Please keep us posted, OK? We're all here for you.
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After just being thru the stress test and the angiogram, I can tell you from first hand knowledge, that the stress test is not so accurate, so, really, try not to worry about this. Besides that, worrying is not good for you. Hopefully, all of your tests will come back okay and it was a fluke to begin with. I will be :pray; for you.
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My stress test/ MIBI chemical stressor, was extremely accurate. It indicated a blockage/constriction of the right coronary artery at the base of the heart. With follow-up angiogram there was a 90% blockage of the RCA as indicated. Angioplasty and a bare metal stent was placed. ASA for life and PLAVIX for 2 to 12 months. off transplant list until plavix has protected the stent long enough for a membrane to cover it over and reduce likelihood of clot formation with the stent.. Lots of bruising and internal bleeding with falling Hemoglobin #'s.Dialysis of any kind is very hard on the body/especially the heart.It is a battle trying to stay healthy enough to get on the transplant list, and to stay on it long enough to get to the top and actually get a transplant. I have been on the list here in Canada for 7 years, and I am just at the top getting NPO orders to stand by and then get the boot because of this heart issue. Glad they found the problem and I didn't just drop dead from a heart attack!!! but want back on that transplant list ASAP. Best of luck with your tests!!! :2thumbsup;
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Most interesting development. Saw my nephrologist and told him how upset I was and how negative the cardiologist appeared to be. Kept sayings like "you are waisting somebody else's kidney". So he sacked him! Said your stress test was not that bad. Did need another type of test with a different cardiologist. And in his own words: "We will work through this". Thank God for sensitive doctors. The old cardiologist (different hospital) rang me up and boy, was he cheesed off. Gave him the brush off. He can collect his money off somebody else.
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LOVE IT!! Murf, you have an awesome Neph... too bad we all couldn't have one like that...
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That's great murf, but what's "cheesed off"?
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Murf, that is fantastic news!!!! I am so happy for you. :clap;
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OMG I can't believe that cardiologist said that to you!!! That is appalling and quite right he was sacked. Good for you. Now, take that test and report back to us!!
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keep fighting murf!! :boxing;
xo,
R
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Boy that guy sucks!! I trust the new test will be good news. Stay positive!!
Practice Optimism
It is easy to live within the shadow of fear, procrastination, and pessimism. But these are bad habits and stumbling blocks the keep you from experiencing life, the Red Road, and the Great Spirit. It is well know to the Native people that optimism is the key to good health. Worry makes you sick--as do bad thoughts. Replace them with happiness and optimism and you shall live a long and healthy life. :2thumbsup;
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haha Murf - your neph is a keeper! That's brilliant!
Imagine someone telling you that you'd be a waste of a kidney! The insensitivity is mind blowing!!!
I'm so glad this distressing situation is being turned around and you can again be positive mate!!!
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Chris... cheesed off is a nicer way of saying pissed off... *L*
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Ohhh, well then he is an idiot. He was the one who made the mistake.