I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: tubes on July 20, 2010, 02:11:34 AM
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Well, I didnt want to come here and rant. Since it's been so long since I've posted. I have ranted a bit on my facebook. But it's almost 3:40am and I'm still up so thought Id get it out.......again.
My last treatment was Wednesday of last week. Well I did run Friday for an hour of a 3 hour treament. So that didn't do much good. Oh and I have NO urine output. So everything I drink stays put. >.<
On Friday my machine kept alarming and the tech guy said to pull my machine. Stupid me, I decided not to wait for the spare machine to be set up. I figured, I can make it till Monday. No PROB!!!! Pffttt, yea right. My mistake. Ok, first let me say this. My unit does not call me on my cell phone. They call my emergency contact, which is my moms house. I've given them my cell phone number countless times, yet they can't get it through their thick skulls that my moms number is FOR EMERGENCIES ONLY!!!! Morons I tell ya. :stressed; So if they would of called ME this morning I wouldnt of gone all the way to dialysis only to be told I wouldnt be able to run..
So, ok...I get to my unit today and one of the RN's tells me she just called me. I was like, "no you didn't". Then she proceeds to tell me my machine is still broken and so is the spare. She tells me the tech guy took parts off the spare machine to fix the machine I was running on Friday. That they got the spare set up, turned it on and water comes pooring out of the bottom of it because it is missing parts. Really!!!!!!! :banghead; :banghead; :banghead; :oops; :oops; :oops;
She tells me she can get me setup to run at another Duh-Vita unit in town. But it is pretty far from me so I declined. She tells me she can get me in at my unit on 3rd shift. "right then the phone rings, she answers" I can only assume is was the FA of our unit, Jinette. The FA I've ranted about before. She still doesnt talk to me. LOL.... So the RN comes back to me and says she has to fit some other guy in today (monday) during 3rd shift.
She tells me she will call me later to let me know when to come in. So 4pm comes around and no call. So I call. Im told they can't fit me in today. I'm wondering if they ran that other guy instead of me. She then tells me they can get me in Tuesday morning at 7. I have about 3 more hours.
I cant wait. I feel so sick. I cant ly down because all the fluid goes to my lungs and I cant breath. Im so naseated, my arms and legs feel like lead, my entire body feels like hell. I just want to eat and sleep. I think I have about 4 + kilos on. Treatment is not going to go well but Im looking forward to it. Im so pissed at them and at myself. I should of gone to another unit but how was I suppose to know they would blow me off.
/end rant
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Tubes!
Good to see you dude, unfortunately under bad circumstances for you. Best of luck at dialysis today. Was there any attempt to bring you in on Saturday?
:cuddle;
Alene
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Tubes you have got to get this sorted out. Do you want to feel sick all the time. Go to a different unit if they are more rely able. Hope you feel better soon.
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what the hell kind of place is that?? You have "your" machine and if it breaks and the spare breaks then you're out of luck? WTF? Geez, the world of for-profit dialysis sounds horrid if that's normal.
But Tubes you are doing yourself a disservice by refusing the offer of the other unit. Yes it's far away, but you KNEW you needed it. Frankly if it was me I would put my life/wellbeing above the distance or whatever.
I so hope you're not stuffed around further and do get a full run at 7 because you so need it.
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"what the hell kind of place is that?? You have "your" machine and if it breaks and the spare breaks then you're out of luck? "
Like Richard I can't believe this really happens. It's people's lives they are dealing with!!! I am so glad we are not for profit here with medical!! In a case like this the person would definitely be done supposing it was after hours!! We have a hemo machine at home and it it breaks down hubby is fitted in at the unit.
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Have you thought about just going to the ER? Really, you need a treatment.
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Jeeeeezzzzzzz! :Kit n Stik;
Tubes, I agree, you may need to go to emergency. Don't wait til you're too sick to get yourself there. Please. :cuddle;
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If you're on the transplant list, this center is jeopardizing your chance of receiving a kidney on many levels. UCSF asks for blood once a month, along with how compliant you are in attending your Dialysis treatments. This is no fault of your own obviously, but they are risking your chances by their incompetence.
There really needs to be a documentary produced on how unbalanced Dialysis clinics are across the nation. This is deplorable.
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Alene, there was no offer for a saturday run. I would of taken a Saturday run. I don't mind running on Saturdays. That way I can be up early and watch cartoons. LOL
But Tubes you are doing yourself a disservice by refusing the offer of the other unit. Yes it's far away, but you KNEW you needed it. Frankly if it was me I would put my life/wellbeing above the distance or whatever.
I so hope you're not stuffed around further and do get a full run at 7 because you so need it.
I know Richard, I should of gone to the other clinic. But I was told the other clinic couldnt get me in until 3rd shift. And my unit wouldnt beable to get me in until 3rd shift also. So I opted to wait on my dialysis unit. Which they never called me back so I called them at 4 to find out Im screwed from all angles. >.<
So I had D this morning. I was on shortly before 7am. Everything was going fine up till about the last hr. I started to get a migraine. I thought I could push my way through it and finish my treatment. No such luck. With about 30 mins of treatment left I became nauseous. So I told the nurse I couldnt finish my session and I needed off. I then started vomitting and I couldnt keep my eyes open because of the migraine. So they had my needles pulled and I was all taped up and ready to go. I was in no condition to drive. Of couse I had noone to call to pick me up. My parents were all at work but they tried my dads house anyways.
I stayed in my chair and I was rolled to the middle of the floor. Where I slept for the next 3 hrs. I should of been home around 10:30 this morning but I didnt get home till 2'ish. I slept like a rock.
I'll be going in tomorrow for my regular scheduled treatment. Im feeling 100 x's better.
Ewww, Stacy, I never thought this could hurt my chances at transplant. If this does come into question. I hope they get my side of the story before passing judgement.
The tech guy was there this morning. We had 2 machines break down and needed to be pulled. Are machines really are crap but we are suppose to get new ones beginning of next month. I hope that is true because these machines seem to break down left and right lately.
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Toobers,
Glad you're feeling better. How much fluid did you have on? I hope you have a boring and uneventful day at dialysis tomorrow.
Alene
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Holy crap. I can't believe you could be treated so badly. We don't have a 3rd shift here, so if a machine breaks down, the nurses here will actually stay late to make sure you get at least half a treatment
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If you're on the transplant list, this center is jeopardizing your chance of receiving a kidney on many levels. UCSF asks for blood once a month, along with how compliant you are in attending your Dialysis treatments. This is no fault of your own obviously, but they are risking your chances by their incompetence.
There really needs to be a documentary produced on how unbalanced Dialysis clinics are across the nation. This is deplorable.
Calling Zach.... come in Zach... :rofl;
Glad u finally got in Tubes.
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I normally do my dialysis at home while I sleep every night but last week I was in hospital with a broken back - they checked my blood as decided not to dialyse me for 3 days. Man, did I ever get one killer headache! I too was throwing up. I was warned when I stared HD that it can cause this by removing too much fluid at once, which dehydrates the brain cells as well resulting in something of a hangover! Right they are! I never want to do that again!
It's too bad they couldn't have taken off, say, 2 kgs in that first treatment and then 2 more the next until you're back to normal. I really don't like waiting between treatments. I think everyone should have home nocturnal!!
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Tubes,
I didn't see your post till now and it's probably too late for any more advice,
But in general, if you miss two treatments in a row for whatever reason--busted machines, inclement weather, whatever--you should strongly consider going to the hospital. (In fact, I'm surprised that your dialysis center nurses didn't suggest that to you.)
Once you explain to the E.R. triage nurse that you're a dialysis patient who's sick because of missing treatments, they'll fix you up right away.
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here, if something like that happened to a dialysis patient, there's no use in going to the hospital, because our hospital has no dialysis machines. They have nothing to do with dialysis, unless you're on PD
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I'm glad you're OK, tubes.
:beer1;