I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Brightsky69 on April 21, 2010, 06:17:04 AM
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??? What is up with this not sleeping!!!! Last night I got maybe a good 4 hours of sleep. Ever since they changed my PD scrip I haven't been able to sleep very well. >:( I must admit I think I am getting use to living on 3 or 4 hours sleep.
I usually go to bed around 9 or 9:30pm then i wake up around 11:30pm/12:30am. Toss and turn a little bit (maybe a half hour) then i wake back up around 2:30am/3:30am. Then i toss and turn again then wake up around 5;30am when my alarm goes off and i have to get up for work. UGH!!! Sleep use to be my hobby. It's weird...I could take two Benadryl and lay awake for hours. I have taken ambien and laid awake for hours. But then the very next night I could take 2 Benedryl and it'll knock me out for 8 hours straight. And the very next night I could take an ambien and sleep 8 hours straight. Whats up with that??? One day it works and the next day nothing.
Last night i took a Excedrin PM and a benedryl and laid awake for an hour. Tossed and turned till 1am.
I JUST WANNA SLEEP! :Kit n Stik; Thanks for letting me rant and rave.
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I know the feeling! Have you tried Sleepytime Tea?? It is supposed to work well and its actually made for kids but I bought it for my mom too lol. I hope you get some good sleep soon
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OMG! Funny you should mention SleepyTime tea. I had a cup of that last night. Noting...nada not sleepytime effects at all.
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Oh and I forgot to mention...I was laying down last night and my legs started to ach. If it ain't one thing it's another.
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Well I wouldnt take ambien, I saw the side effects my mom had from that and that stuff is bad news!!!
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When I take AmbienI end up talking in the middle of the night. Last time I was asking my boyfriend if that was on sale? I had no memory of talking. Kinda scary if you ask me. Thats all i need is to start sleepwalking when I am tied to a machine.
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I have sleepless nights too. Just part of the whole disease I guess. I also use Ambien occasionally. Sometimes it works sometimes it don't. Maybe a hot bath would help. (just remember not to get you cath site in the water)
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For whatever reason, Dialysis medical care professionals never mention that a good percentage of Dialysis patients develop sleep apnea. I went for a sleep study four years ago and it was determined I was waking up over 100 times a night. Because of that, REM sleep is never reached and you feel exhausted all the time.
Dialysis is bad enough without the added annoyance of sleeping less. I receive about six hours a night at most, and let me tell you, its nowhere near enough. I'm to the point where I can barely concentrate at work and I make egregious mistakes on the air.
I hope my personal history helps.
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I don't let sleeplessness bother me. If I'm awake, I get on with something unless I'm feeling bad.
It's 2.15 a.m. here now.
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Are you home, yet, Stoday?
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I have used tylenol pm and sleepy time tea. They worked until my gfr got to 20. Now I take ambien. It has worked well for me, but everyone is different.
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Are you home, yet, Stoday?
Yeah I got home just before the volcano erupted.
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Hello,
I'm running on a few hours of sleep also, the nerve pain in my feet just kills me, Ive
tried the tea's, all other means to sleep.....i'm in the same boat....
I hope that you do find something that helps and inform others....sleepy wolf :waiting;
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I am still not sleeping well. My sinuses have been killing me so I've been taking a Tylenol sinuses pain and conjestion medication. it usually knocks me out at night. But I've been having weird dreams.
I had a dream that i was watching my drain bag and it was coming out completely brown. I freaked and went to call my PD nurse. When i looked over at my drain bag again it was completely clear. Weird.
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I surmise ambien is a sleeping pill in America. My husband was give one (UK) because like most dialysis patients he could not sleep. it freaked me out, he woke in the night with hallucinations it scared the sh** out of me so we threw them. I just hit him over the head now with a mallet that sees him off. Only kidding or am I!!!!!!
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Ambien can do that. sleep walking, talking, memory loss.
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For me, it is a crap shot everynight. I have tried everything. Sometimes Ambien does the trick, then the next night - nothing. I went to bed at 10:30, tossed and turned, meditated and then just threw in the towel and got up. Here I am at 1:45 am and stll not going to sleep. I am sorry you are having problems sleeping, Quickfeet. We all need a good night sleep every single night. Not happening, is it?
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hello, im still sitting up too, 2:25 am, guess I'll catch up to my sleep when I'm dead....
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The nurse practitioner told a patient right beside me, that the drug he had was the strongest sleep drug she could give him, but if it did not work that was the was the dialysis ball bounces.
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I am ready to try acupuncture. Something has got to give. I got 2 hours of sleep last night then had to get up and go to work.
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i tried ambien and still sat up. I also tried lunesta and one other. None helped. I take trazadone now and it works great. I can get up in the middle of the night if needed and not be strung out.
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Research indicates that 70% of dialysis patients will suffer renal insomnia. Unfortunately, I am one of those. I can take a bucket load of normison but it doesn't help. I find my insomnia works in a cycle. Eventually I become so tired that I collapse into some form of sleep. When that happens I will be on a sleeping cycle for a week or so, but will then fall back into an insomniac cycle. It happens so regularly that I have Lent to accept this disorder.
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I am not trying to live like this for the next 4 to 7 year while i wait for a new kidney. I am trying a mega dose of benadryl.....that seemed to help. I was only awake till midnight or so and not 2am like usual. I only woke up a couple of times and I think...I am not sure but i may have gotten 6 hours of sleep on the benadryl. :cheer:
Like I said ....sleep use to be my hobby. Iam ready to go back to thoses days.
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I also sing the praises of trazadone. Ambien made me sleep walk. Lunesta did nothing at all. Trazadone lets me sleep but doesnt turn me into a zombie. I wake up clear headed and if I have to get up in the middle of the night I can do so safely.
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Well it's nice to know I'm in good company,no sleep,aching feet, just basic irritation with everyone in the household.
If the darn crap doesn't stop soon my wife will probably move me into the garage. My hat goes off to all of you that suffer the same types of problems known usually just to Kidney patients. Usually go to sleep around 0400 hrs and back up at 0700 hrs to go to work again and it starts all over . God bless all my friends I need to hear from you,all
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Here we go again, to sleep or not to sleep. New prescription to-day called Gabapentin capsules. They are supposed to be for restless leg syndrome. R LS means no sleep, starts as soon as husband gets into bed. Have been reading the distructions and what do you know they say don't take if you have kidney deceases, they all so double up for epilepsy, lots of DO NOT TAKE If's so what do you do. Any one out there taking them?
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My sister takes Gabapentin. She has fibromyalgia and Rheumatoid arthritis. She has had great luck with the drug and sleeps 8 hours everynight. I hope it works for your husband. And don't you just love all the "do not take if you have kidney disease" labels? Crazy.
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I wish i could get up and do something when i am laying there wide awake. I am on PD so i am tied to a machine for 8.5 hours at night.
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Ok....last night i took all my drugs and was ready for a nice drug induced sleep. UGH!!! I get into bed and my legs were all achy. So I could not get comfortable. I lay there exhausted and not able to sleep. I managed to fall alseep after 1am. Then I woke up at 3:30am. I think i got about 4 hours of sleep total last night.
And here I am with achy legs still.
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First two nights of taking Gabapentin. and he has slept like a baby, no restless leg, no aches I hope this keeps up.
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The best part about having acute insomnia is that I can watch the 20/20 cricket world cup into the wee hours of the morning. Can't sleep so might as well enjoy myself.
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The same thing has been happening to me since I started! I can sleep for usually 4-5 hours before I am wide awake and unable to go back to sleep. Sometimes it's less than that. I figured I would eventually fall asleep when I was tired enough but so far that has only happened once or twice. I have tried tylenol pm, melatonin and bendryl all without success. I have an appointment in a few days with my neph and I am going to talk to him about getting me something. I work 65-70 hours a week in addition to doing dialysis and this sleeping thing is killing me!
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We haven't had a sleepless night for 5 days.(fingers crossed) neph prescribed Gabarpartin 100mg for hubby's restless leg syndrome, which he has suffered a lot in the last year with and never had a good nights sleep,. these seem to be working. yes. If he sleeps, I sleep.
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Boy it sure would be nice if the doctors had a clue about what type of side effects we all go through.It seems like they don't want to get outside the main issue of Kidney.
What can we do to make our other effects of Kidney Disease important to the doctor as well.
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Billy, I took gabapentin for a month, prescribed by my nephrologist. It didn't do any damage. I had no idea it was for RLS - I took it for nerve pain, and it worked a charm.
I must discuss the RLS treatment with my husband (who is not in renal failure). Not only does he have terrible RLS, but he also is currently suffering from nerve pain, so perhaps we can solve two problems here. Gabapentin (neurontin) is also used as an anti-depressant.
Thank you for this info. My poor husband took a drug for RLS (ropinirole) and it made matters worse. I was up all night after he took that first dose and I told him if he ever wanted to give it another try, he knows his way to the guest room....
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cariad, it is still working, I told him only to take it when his legs are really bad, along with other tablets you just do not know if they interact, so he takes it when he feels the need and with in 10 minutes he is away. I feel better because I can sleep as well.
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I have been off of work for a month and a half and I am not sleeping well anymore. Sigh.
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I had enough of not sleeping and restless, and moving from bed to bed. I work as a cop and this has been effecting my job pretty bad.
I cornered my doctor at the Dialysis Center and told him I need sleep and that was all I had to say. Well he prescribed a drug called GABAPENTIN 100 MG , it seems to be working, I have three good nights so far and I'm actually pleasant at work.
I hope this may work for as well ,I do know what your going through no sleep just adds to the frustration of life.
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Gabapentin.has been a godsend to my husband. He started taking it about 3 weeks ago, not every night, only when his legs ache and they actually work, they don't make him dopey, he is dopey any way.
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Gabapentin.has been a godsend to my husband. He started taking it about 3 weeks ago, not every night, only when his legs ache and they actually work, they don't make him dopey, he is dopey any way.
:rofl;
Gwyn spoke to our GP about his RLS (I was in the room) and the GP prescribed him Mirapex, which he can apparently take as needed. Apparently, I don't know what I'm talking about (try to contain your surprise, everyone) and the twitching that Gwyn does in his sleep is not restless leg, but a separate condition termed "periodic limb movements disorder" (although these parasomnias are all related, this I remember from my studies of them). The GP said Mirapex won't make him sleepy, whereas I believe Gabapentin does. Also, the GP said that he has RLS himself, but does not believe in medicating it unless it starts interfering with his life, and he encouraged Gwyn to approach medication the same way. Gwyn only gets RLS a few nights a week at most.
We asked about Gabapentin and the GP said "That's just buckshot." We don't understand hunting metaphors, so he explained that the drug can treat so many things, it's basically "shooting and hoping you hit something". I'm a little disappointed, because I know it's a great drug that is working for many, but I think Gwyn is secretly relieved as he can have his beer and not worry about drug interaction.
Nice to hear that you all are finding solutions. Sleep difficulties are miserable.
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I am still not sleeping well. My sinuses have been killing me so I've been taking a Tylenol sinuses pain and conjestion medication. it usually knocks me out at night.
Ah, somebody else who has sinus problems as well as kidney problems, just like me!
I'm finding the combination of sinus problems and kidney failure to be really tough. The main treatment for sinus problems is to stay well hydrated, which is not so easy when you're on fluid restriction for ESRD. And the sleep aids all dry out the sinus membranes.
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Having terrible sinus problems, constant insomnia and being on dialysis is really hard for me. The meds for my sinuses dry me out so bad, some nights I could cry because I'm so thirsty. I try to avoid using them, but I can't breathe otherwise so it's the lesser of 2 evils. The best thing I've ever found for dry mouth/thirst is those ice pop tubes you stick in the freezer-they come in many brands. Some are even organic and some sugar free. They're only 1-2 ounces and they pack a lot of cool relief for a tiny amount.
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Been over two weeks with sleep, its made me a new man. The GABAPENTIN 100 MG is working for me at least. after about 14 week with little or no sleep it is a relief.
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Maybe i should try this Gabapentin stuff. No matter what i take I normally wake up at least twice during the night. Last night I woke up every hour on the hour.
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I had been struggling with insomnia for a few months until I got a blood transfusion because my hemoglobin was 7.1. For some reason, I have gotten solid sleep for at least 8 hours each night now. Probably because the extra energy has helped me stay up and active all day and be tired at night.
Just my input and experience.
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Well.... my doc gave me a script for gabapentin. Hopefully it will work as well for me as it has for everyone else.
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Now I use it for restless leg syndrome, but it allows me to sleep better,I don't take any kind of sleeping Ade. I tried that and I could not focus for about 2 hours after waking up.
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I took the Gabapentin last night. I only got up twice cause of the itching. Gabapentin did knock me out. I feel like I slept hard. One bad thing is it made me feel kind of dizzy and left me with a hangover. I only took 100mg. I think I'll save it for the weekends when I can sleep 10 or 12 hours. ;D
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Now I do catch up on weekends, because i need to be at work at 0800hrs during the week. As long as I stay away from milk products I don't itch and that also helps help.
It takes about 2 or 3 days to get enough in your system to be effective. And also I take about 2 hours before I go to bed.Its not a miracle drug its just something in the arsenal of medication available to us when we find out.