I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Robert on November 06, 2005, 09:40:05 AM
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Hi, I'm Robert.
I'm not on dialysis yet, but I just know I'm going to hate it.
I'm feeling pretty rough at the moment so I'll pop back and do a proper intro when I feel a bit better.
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Hi, I'm Robert.
I'm not on dialysis yet, but I just know I'm going to hate it.
I'm feeling pretty rough at the moment so I'll pop back and do a proper intro when I feel a bit better.
Hi Robert,
Welcome to the site. YES you are going to hate it and anyone who tells you any different is full of shit. Come here for the truth and to meet others that are in the same situation as you. I hope you enjoy your stay. And good luck in the upcoming months your going to need it, but we will be here for you.
Epo
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I know you guys are going to hate this post. I know you all hate dialysis and and come here to complain and vent or rant.
I have to say that I don't love dialysis, however it's not so bad. I knew I would eventually be on dialysis, so I accepted it and decided to make peace with the idea. Dialysis is my life line, what keeps me alive, I can't hate something that is giving me life. Sure, many of you will say i'm so optomistic about it because I haven't had any complications due to dialysis. that is true, but I also believe that attitude is everything. SUre, I many times wish I could just take off at the drop of a hat and not worry about packing my supplies, but the fact is that I do have a choice. I can take off at the drop of a hat and not worry about my supplies or my exchanges and pay the consequenses. The only thing that I hate about it is the fact that I can't eat as much cheese as I'd like. So Robert be optimistic and positive and your experience won't be as bad as you think. I thought the worst before dialysis and once I started dialysing I realized that I had worried for nothing, it's been a pretty easy ride.
God Bless!
Marina :)
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I know you guys are going to hate this post. I know you all hate dialysis and and come here to complain and vent or rant.
I have to say that I don't love dialysis, however it's not so bad. I knew I would eventually be on dialysis, so I accepted it and decided to make peace with the idea. Dialysis is my life line, what keeps me alive, I can't hate something that is giving me life. Sure, many of you will say i'm so optomistic about it because I haven't had any complications due to dialysis. that is true, but I also believe that attitude is everything. SUre, I many times wish I could just take off at the drop of a hat and not worry about packing my supplies, but the fact is that I do have a choice. I can take off at the drop of a hat and not worry about my supplies or my exchanges and pay the consequenses. The only thing that I hate about it is the fact that I can't eat as much cheese as I'd like. So Robert be optimistic and positive and your experience won't be as bad as you think. I thought the worst before dialysis and once I started dialysing I realized that I had worried for nothing, it's been a pretty easy ride.
God Bless!
Marina :)
Marina,
Don't take this the wrong way but you do not get stick with 6 needles a week nor do you go through cramps and dealing with fluid overload or any of the other many complications of hemo. Plus as you mentioned you can pack your supplies, people on hemo do not have that luxury. I too have made peace with my condition and I too have accepted it however I honestly hate dialysis and maybe when you have been on dialysis for as long as I have been or others on this site. Then your outlook WILL change believe me. I do not mean to offend you nor persuade you to have a negative outlook but once you are a veteran in this battle you will change your attitude. Again I will say I accept my fate and I know I have a choice not to continue dialysis and just die however that would be unfair to my son ( age 8 ) who needs his father.
You said "I can't hate something that is giving me life." Well you are correct dialysis is keeping me alive however it has also caused me to have the following:
Severe Osteoporosis (In wheelchair because of it).
2 Broken Hips.
High Blood Pressure.
Enlarged Heart.
Calcium Deposits in my Joints.
My Teeth are ruined (Calcium pulled from teeth due to hyperthyroidism).
Left Vocal cord cut due to surgery complication to remove parathyroids.
So as you can see Marina all those things listed above are complications of dialysis/kidney failure. So forgive me but your statement "I can't hate something that is giving me life." sickens me, you see because yes dialysis is giving me life but at what cost.
I am not attacking you, I am just venting which is what this site is for. I welcome you and all your posts to this site, I am glad you are a member. But dialysis/kidney failure really is bad and in the long run it destroys everyone, it destroys us not only physically but mentally.
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Thank you for your welcomes :)
I can see what you mean Marina and I take your point Epoman.
I just seem to be waiing for the next thing to go wrong with my body all the time, I've had a heart attack brought on by a change in drugs, surgery on my hand because of gout, I'm off for an MRI scan on my knee next week to see if its the same problem I had with my hand, I feel like crap all the time, I can't work because of tiredness.
It all jsut seems so overwhelming sometimes and I haven't even started on the heavy stuff yet.
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I don't think you can magically go from having a somewhat negative outlook to having a totally positive outlook overnight... just deal with things the way you normally would. Trying to change your behavior because of what people think you 'should' be feeling will just stress you out even more. As you get more experiences behind you, you'll gain more confidence that you can live long-term on whatever modality you decide is right for you.