I Hate Dialysis Message Board
Off-Topic => Site Requests, Comments, Technical Help. => Topic started by: MandaMe1986 on January 24, 2010, 12:25:05 PM
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I have recently posted in the God thread. And nothing I said was out of line or uncalled for even tho there were plenty of post from other people including the moteraider who changed my post. I came to this site for help, and still think of this site as a wonderful and helpful site. I on the other hand made the mistake of getting to involved. Commenting on the off topic subjects and thinking that I have the right to my own opinion just like I do on the dialysis topics. I was wrong. I do think this is a wonderful site, and I do love so many of you guys from this site. But however think that it has gone to far. I think there is a serious glitch in the admin and moteraider portion of this site. I along with so many people on this site are sick and have actual issues to deal with. I just can't let stupid things upset me anymore. I do wish you all good health or as much good health as you can get out of life. And wish you all good things. I am sorry to leave like this but its best for me. I just don't think there has ever been a time when I felt truly lost in my health as I do right now, and right now is the time I need what I believe this site was truly meant for. But seeing as how it is not what it once was, I am going to move on in life. Thank you all for the good I did get out of this site. So from now on I am going to stick to background and stay out of it.
The best to all of you....
~Amanda Maire Griego
EDITED:Moved to site comments area-kitkatz,Moderator
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Amanda...
I'm REALLY sorry you feel this way!... I hope that you've gotten more from this site than the difficulties you mention....
I'd like to ask you to take a day or two and reconsider... This site, and those of us who use it need people with your perception, and your wilingness to help...
You are one of the relatively few very yong people here, and you're needed... The next generation of young kidney patients need peer support from mentors such as yourself!...
If you decide after reflection that you don't want to stay, please leave contact details with someone on the site that you trust... We'd like to keep in touch and know that you're okay!...
God bless...
Darth...
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I have recently posted in the God thread. And nothing I said was out of line or uncalled for even tho there were plenty of post from other people including the moteraider who changed my post. I came to this site for help, and still think of this site as a wonderful and helpful site. I on the other hand made the mistake of getting to involved. Commenting on the off topic subjects and thinking that I have the right to my own opinion just like I do on the dialysis topics. I was wrong. I do think this is a wonderful site, and I do love so many of you guys from this site. But however think that it has gone to far. I think there is a serious glitch in the admin and moteraider portion of this site. I along with so many people on this site are sick and have actual issues to deal with. I just can't let stupid things upset me anymore. I do wish you all good health or as much good health as you can get out of life. And wish you all good things. I am sorry to leave like this but its best for me. I just don't think there has ever been a time when I felt truly lost in my health as I do right now, and right now is the time I need what I believe this site was truly meant for. But seeing as how it is not what it once was, I am going to move on in life. Thank you all for the good I did get out of this site. So from now on I am going to stick to background and stay out of it.
The best to all of you....
~Amanda Maire Griego
I do not know which post was modified, but I have not modified any posts in that thread.. I stay out of that argument as much as possible. I will send your complaint to the admins.
kitkatz-Moderator
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Manda, I am sorry you are so upset. No one changed a post. We do fix quote errors or smiley errors, but it will always say at the bottom why it was modified and who did it. We can't go in and change things without it automatically stating who made a modification. I hope you know you have many friends here and lots of support.
paris, Moderator
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Note that at the bottom of my last post it says a time and name who modified my post. It is automatic and nothing can be modified without that showing up.
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Fix a quote by all means, don't erase the rest of my post that was there. And don't tell me I didn't write other things, because I know what I said. And if I didn't then why did I have other members comming to me telling me not to cross Rerun. Like I said there is a glitch in that portion website. I know what happend Paris, and it was rude, and wrong to do. I have tried time after time to keep the peace in here. Today I realized something, its not worth it. Although I love so many of you guys on this site, this kind of thing is unnecessary stress. And like I said this is what is best for me. I was trying very hard to keep it positive, but I will not have you or anyone else tell me "what happend" I know what happend. Yes it dose leave a mark everytime someone goes into a post. All that dose for me is prove she was in it. She did not "fix" anything cause I copy and pasted that exact quote from a bible on line, so there was NO need for her to go into my post what so ever. You all can believe all you wish to believe, as will I. I know what happend, even if you all chose to look the other way. That right there is why I have decided what I have.
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Mandy I fixed your quote as it was all in blue and you could not tell where the person you quoted (ME) and where you started with your own post on judging started. That is my job. I was not "judging" you I was fixing a simple error that we all make from time to time. You can tell when you are typing where the word quote should be.
This thread SHOULD not be in Dialysis General Discussion, but I ain't movin' it. :o
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I do not think I erased anything. I truly don't think I did. I did have to go look how to write the quote symbol on another post but came right back to yours and fixed it. I can't ever remember where the / goes.
I'm so sorry if I did erase something.
People usually don't cross me because I get in their face. I have no problem with debate and confrontation. I do have a problem with criticism. Not "constructive" criticism but just criticism. Like someone told me to present things differently so not to sound so mean. I can take that. That is constructive. I don't really like "Don't cross Rerun". That tells me noting to change.
What else did you write? I AM so sorry if I erased something. Did you read your post after you submitted it? Did you see that everything was in blue? You can modify your own posts to fix that.
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Okay I am moving this to the site comments, problems area.
kitkatz,Moderator
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See you on facebook manda
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To Manda and all other members:
It has come to my attention that someone (a member) is hacking the site and moving or changing things. The software company and hosting is tracking the activity and we will know more soon. Please let me know if anyone sees changes in their posts, or if things have been removed.
I am sorry that some jerk decided they have to screw up everything, especially during a period of personal tragedy for me and my family. I spend countless hours of my own time volunteering for this forum, and I cannot believe someone feels they have to hurt me or our other members by screwing around playing a game, especially now.
okarol/admin
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The issue is being resolved.
Sluff/Admin
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It really is a mad mad world! Such a shame that extra work is being created for someone's idea of amusement.
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Thank you to all the moderater's and admin for clearing everything up. I just got so upset because I came to this site because of what Epoman had said about having the ability to speak freely. And thank you okarol for addressing the matter. I did not want to bother you with the problem. I know what is going on with you and your family and thought better of it. You need to be there to take care of your daughter and not have to deal with this. I am sorry to have botherd you.
I am still upset at what happend but not at you. I understand it is something that you guys have no control over. Thank you all for everything.
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OMG, hacking???? R U kidding, sick who ever it was..................Glad your still here MandaMe :cuddle;
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Yay Mandame!! Is this to do with the qweqwe guy?
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The issue is being resolved.
Sluff/Admin
It doesn't seem reasonable that "someone" would hack the site just to change a post. Hackers usually have much stronger motives than that. Laying it off to that, and saying that "The issue is being resolved." is ludicrous.
It's like there's an elephant in the room and everybody's politely stepping around it and pretending it isn't there. The individual in question has been found out and still continues to wreck havoc. (too strong?) Because of previous relationships or for what ever reason, they are allowed to keep on doing things that are out a bit of kilter.
I realize that this is Sluff's sight and it can be run as he sees fit.
I'm an American and I realize the freedoms that we have here in this country are really great. I sometimes wonder if we have too much freedom. But we have to have rules, in any situation, when there is more than one person. For what ever reason, we can't just say BEHAVE! and allow a person with too much freedom bend/break the rules because we like them, or liked them.
The only way to correct a problem such as this is to bring this kind of behavior out into the open and openly discuss it and openly have the person responsible admit to mistakes.
Rules, laid down, need to be for everyone I have been "put in my place" and told that this sight belongs to someone and even though the site is supposed to be someplace that you can say what you want, (within reason) some of the people say what they want no matter what.
If the perpetrator is in the Admin. and is allowed the keys to the front door, so to speak, there is something wrong.
The administration does a pretty good job at keeping things straight in here. Understanding is a concept that goes a long way to helping people that continue to have so little in their lives. I understand the ideal of thinking "Oh that's just ol' so and so, his/her's/ it's life is in the crapper so we've just got to have the understanding to help him/her/it along the trail of life." But there comes a time when feet have to be put down and say "Enough is enough!" Again it could be that said person's whole life is wrapped up in IHD and it would kill them if they couldn't have that sort of control. But it wouldn't hurt to at least say BEHAVE or else.
One way or the other just saying "IHD! love it, or leave it" isn't the answer. The reasonable thing to do is analyze the situation, see if there is a problem, and do something about it.
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Hurlock, I just don't what to say. Yes, I am going through hell with my daughter's kidney rejection. It is horrible and emotional and everyday I wonder how I am going to cope. So perhaps I should not be on here, trying to deal with the forum. I need support just like anyone else.
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Okarol, yes you do.... :grouphug; :grouphug;
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Hurlock, I just don't what to say. Yes, I am going through hell with my daughter's kidney rejection. It is horrible and emotional and everyday I wonder how I am going to cope. So perhaps I should not be on here, trying to deal with the forum. I need support just like anyone else.
Yes you do Karol and I want you to know you have my support and my prayers for you and Jenna. I haven't been able to keep up very good so
how is Jenna? and what is the prognosis? We love you and please know you and Jenna are in our daily thoughts.
Love, Mimi
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The issue is being resolved.
Sluff/Admin
It doesn't seem reasonable that "someone" would hack the site just to change a post. Hackers usually have much stronger motives than that. Laying it off to that, and saying that "The issue is being resolved." is ludicrous.
It's like there's an elephant in the room and everybody's politely stepping around it and pretending it isn't there. The individual in question has been found out and still continues to wreck havoc. (too strong?) Because of previous relationships or for what ever reason, they are allowed to keep on doing things that are out a bit of kilter.
I realize that this is Sluff's sight and it can be run as he sees fit.
I'm an American and I realize the freedoms that we have here in this country are really great. I sometimes wonder if we have too much freedom. But we have to have rules, in any situation, when there is more than one person. For what ever reason, we can't just say BEHAVE! and allow a person with too much freedom bend/break the rules because we like them, or liked them.
The only way to correct a problem such as this is to bring this kind of behavior out into the open and openly discuss it and openly have the person responsible admit to mistakes.
Rules, laid down, need to be for everyone I have been "put in my place" and told that this sight belongs to someone and even though the site is supposed to be someplace that you can say what you want, (within reason) some of the people say what they want no matter what.
If the perpetrator is in the Admin. and is allowed the keys to the front door, so to speak, there is something wrong.
The administration does a pretty good job at keeping things straight in here. Understanding is a concept that goes a long way to helping people that continue to have so little in their lives. I understand the ideal of thinking "Oh that's just ol' so and so, his/her's/ it's life is in the crapper so we've just got to have the understanding to help him/her/it along the trail of life." But there comes a time when feet have to be put down and say "Enough is enough!" Again it could be that said person's whole life is wrapped up in IHD and it would kill them if they couldn't have that sort of control. But it wouldn't hurt to at least say BEHAVE or else.
One way or the other just saying "IHD! love it, or leave it" isn't the answer. The reasonable thing to do is analyze the situation, see if there is a problem, and do something about it.
Hurlock,
I really don't understand what your issues are. I think you need to figure out how to use a forum before you complain on how a forum is run. I will not expect any moderators to help you any further here. If they choose to help than fine but I have seen messages and more messages from Admins, Moderators and other members who have tried in vain to help you. I really think a lot of the issues you are having are self inflicted( regarding the site). There are much bigger fish to fry than trying to keep explaining the why's and how's to one member who just does not appreciate what we are trying to do here. There are other sites you can go to, in fact I know Dan is building one as well so why don't you get with him and help him out. You will then understand how a site is run and moderated correctly to keep it organized, I'm sorry you feel the way you do but I understand we will not please everyone. I expect this will end your membership voluntarily, but please understand you are welcome to come here if you need us and if you can do it within the IHD rules which I did not construct. Epoman did and if he were here, you probably would not.
I also stated that if anyone had a problem with the way I do things you could contact me in several ways, without doing it in public forum, but I have yet to recieve one message from you. I guess some people are just not happy unless they can make themselves look like a victim of some kind of mysterious comspiracy. I can assure you there is none of that going on here at IHD. That concept was created by other members who are no longer welcome here and some people just want to fall into believing ridiculous falsehoods.
You chose to do this in public which is why I responded in public. Any future response in public will result in banning you from IHD.
Sluff/Admin
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Hurlock, I just don't what to say. Yes, I am going through hell with my daughter's kidney rejection. It is horrible and emotional and everyday I wonder how I am going to cope. So perhaps I should not be on here, trying to deal with the forum. I need support just like anyone else.
Okarol,
I know what it feels like to have an offspring in dire circumstances. It's horrible. I think that everyone knows my feelings about transplantation for myself. If it were my daughter, my attitude would be completely different. I get haughty from time to time and say something like "I wouldn't do it! "I" have a real life! But the truth is, YOU are the best, most reasonable of all the Admin.. The site would be much less without you. There are some that know their place. They think, no they know that they "run the show"
I committed to an Alcoholics Anonymous "moderated" News Group as a moderator in the early 90s. I spent all of my spare time trying to keep things straight and the only reward I got was criticism. A thankless job. I thought that it was my calling, my destiny, but I couldn't believe the relief I felt when I quit. I would never do that again.
In the 80s there was a woman elected to mayor in the City of Houston after a string of buffoons. She was popular, fresh, sharp and hard working. She got elected 2 more times. During the 2nd administration, she did OK, but by the third term, she reigned power and rubber stamped things that really required attention, and basically became ineffective. She had been in office too long.
In this situation, New leadership may be in order, but people with power think that they are irreplaceable and they think that that power in their fingertips is what they need to stay alive. It IS their life. I know. too bad.
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FYI Okarol's "offspring" has a name and it's JENNA!!!!! sorry had to put that out there.......
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Hurlock,
I really don't understand what your issues are. I think you need to figure out how to use a forum before you complain on how a forum is run. I will not expect any moderators to help you any further here. If they choose to help than fine but I have seen messages and more messages from Admins, Moderators and other members who have tried in vain to help you. I really think a lot of the issues you are having are self inflicted( regarding the site). There are much bigger fish to fry than trying to keep explaining the why's and how's to one member who just does not appreciate what we are trying to do here. There are other sites you can go to, in fact I know Dan is building one as well so why don't you get with him and help him out. You will then understand how a site is run and moderated correctly to keep it organized, I'm sorry you feel the way you do but I understand we will not please everyone. I expect this will end your membership voluntarily, but please understand you are welcome to come here if you need us and if you can do it within the IHD rules which I did not construct. Epoman did and if he were here, you probably would not.
I also stated that if anyone had a problem with the way I do things you could contact me in several ways, without doing it in public forum, but I have yet to recieve one message from you. I guess some people are just not happy unless they can make themselves look like a victim of some kind of mysterious comspiracy. I can assure you there is none of that going on here at IHD. That concept was created by other members who are no longer welcome here and some people just want to fall into believing ridiculous falsehoods.
You chose to do this in public which is why I responded in public. Any future response in public will result in banning you from IHD.
Sluff/Admin
OK, never mind. . . :)
jmz
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In this situation, New leadership may be in order, but people with power think that they are irreplaceable and they think that that power in their fingertips is what they need to stay alive. It IS their life. I know. too bad.
God Bless you Hurlock, but you really don't get it. :rofl; For the life of me I can't figure out why you keep pursuing this topic. Leadership is not going to change here no matter how much you beat this horse. :stressed;
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Hurlock -- first, you need to learn how to post a quote without putting your comment inside the quote. This happen a day or two ago, and no one touched it for fear of you (Hurlock) ranting that we changed your post. I, for one, would love to know who you want to be in charge. I have read so much the past few days. 99% of the comments are supportive. Then there is the less than 1% who continue to complain. Why continue to argue a dead issue? Hurlock, if you aren't happy here or getting anything from the site, why do you want to continue to post?
I have kept fairly quiet the past few days. This really isn't a thankless job. So many have posted and pm'd their support and thanks. Their kind thoughts are greatly appreciated. And, by the way, I have an extremely busy, fullfilling life. This site is a part of my life, but you have no idea what else I do. You don't get to know people and assume we are lonely, sad people who have nothing else going on. WRONG!!!!! I don't need to be in any position of authority. I volunteer here. I volunteer many places. I have been a teacher for many years---and this is like a school yard bully situation. Well, the principals and teachers are still in their positions and the bullies aren't taking over.
Thank you, Lola, for using Jenna's name :cuddle;
paris,Moderator
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Paris is a Mother, Wife, Grandmother, Mother-In Law, IHD Moderator/Member, kidney disease struggler, Volunteer, and overall do gooder!
I love my Paris. :-*
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Hurlock, you're in a hole, Quit Digging!
Mimi
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you forgot to add that Paris is also a very part time cupid - trying to match me (or Chris) up with her Beth!! :rofl; :rofl; :rofl; :rofl;
As for the Hurlock thing.... sounds like you want to run for class president or something? Mate I think, and meant in the nicest possible way, that you need to be able to use the forum properly (ie: finding your own posts, quoting others properly etc) before you could consider being a moderator (and this is what you seem to desire, with your comment about the "leadership" needing to change).
I actually 100% suppiort Sluff's earlier response to you - he was reasonable, polite and to the point. Nobody here is "against" you that I have seen - everyone's tried to help multiple times.
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Since this thread was about Manda thinking that I erased her post; which I did not do intentionally. We have resolved it between us and are fine with it.
I kind of think Hurlock is talking about me and I'm not in a real power position. Only a working position.
I have no idea who could fill Karol's shoes! I couldn't even if I was on the site 24/7. She keeps us all up on the news. I've read things from her that my doctors have not heard of yet. She puts on a PROM for kidney teens, raises 4 kids and keeps a husband. I would not blame her if she wants to pursue higher endeavors, but I selfishly want her here taking care of us.
Hurlock..... when you hit quote..... scroll down until you see the word quote in brackets at the end of the person's post that you are quoting.. Hit return or enter at the end of the quote until your prompt passes that word and then start your post.
Hope this helps.
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Hurlock -- first, you need to learn how to post a quote without putting your comment inside the quote. This happen a day or two ago, and no one touched it for fear of you (Hurlock) ranting that we changed your post. I, for one, would love to know who you want to be in charge. I have read so much the past few days. 99% of the comments are supportive. Then there is the less than 1% who continue to complain. Why continue to argue a dead issue? Hurlock, if you aren't happy here or getting anything from the site, why do you want to continue to post?
I have kept fairly quiet the past few days. This really isn't a thankless job. So many have posted and pm'd their support and thanks. Their kind thoughts are greatly appreciated. And, by the way, I have an extremely busy, fullfilling life. This site is a part of my life, but you have no idea what else I do. You don't get to know people and assume we are lonely, sad people who have nothing else going on. WRONG!!!!! I don't need to be in any position of authority. I volunteer here. I volunteer many places. I have been a teacher for many years---and this is like a school yard bully situation. Well, the principals and teachers are still in their positions and the bullies aren't taking over.
Thank you, Lola, for using Jenna's name :cuddle;
paris,Moderator
I think that you have me mixed up with someone else. i've never complained about some one changing my posts other that moving them.As far as replying to Okarols post, She mentioned "her daughter" she didn't mention any names.
I can walk about 50 steps. I can barely sign my name. I have dialysis 3 times a week. My 36 year old Daughter, Lena is paralyzed from the waste down from a car accident, and my grand daughter, Julia has leukima.
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you forgot to add that Paris is also a very part time cupid - trying to match me (or Chris) up with her Beth!! :rofl; :rofl; :rofl; :rofl;
As for the Hurlock thing.... sounds like you want to run for class president or something? Mate I think, and meant in the nicest possible way, that you need to be able to use the forum properly (ie: finding your own posts, quoting others properly etc) before you could consider being a moderator (and this is what you seem to desire, with your comment about the "leadership" needing to change).
I actually 100% suppiort Sluff's earlier response to you - he was reasonable, polite and to the point. Nobody here is "against" you that I have seen - everyone's tried to help multiple times.
I believe what I said was "In this situation, New leadership may be in order" I don't want any job anywhere. I'm just pointing out that people with control issues need to look at that. I think that if you read what is actually written instead of paraphrasing you'd understand that. I have no beef with anyone, except for Rerun for being blatantly rude several times. I sincerely don't really understand so much attention is being paid to what I am saying.
jmz
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I sincerely don't really understand so much attention is being paid to what I am saying.
jmz
I agree.
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Hurlock, I just don't what to say. Yes, I am going through hell with my daughter's kidney rejection. It is horrible and emotional and everyday I wonder how I am going to cope. So perhaps I should not be on here, trying to deal with the forum. I need support just like anyone else.
The world is only as large as you have time for. It's plain that you have a big heart and it's obvious that people here count on you. The only person that can make you do anything is you. Storms come and they fade away. In the big picture, decisions one way or the other depend on ourselves. In the past few days I have spent more time in IHD than I ever have. Accomplishing nothing other than getting threatened of banning. I can't imagine how you can spend as much time as you do, even if your circumstances were like anybody else's. I know that I couldn't do it. It's also plain that this place is a much better place with you in it.
jmz
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It's also plain that this place is a much better place with you in it.
jmz
And I will second that one Hurlock. :thumbup;
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It's also plain that this place is a much better place with you in it.
jmz
And I will second that one Hurlock. :thumbup;
Add me to that thought and I will add that not only is IHD a better place, but the world is a better place. :grouphug;
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I believe what I said was "In this situation, New leadership may be in order" I don't want any job anywhere. I'm just pointing out that people with control issues need to look at that. I think that if you read what is actually written instead of paraphrasing you'd understand that. I have no beef with anyone, except for Rerun for being blatantly rude several times. I sincerely don't really understand so much attention is being paid to what I am saying.
jmz
Hold on. I'm confused (well I do have CKD so that's a given I guess!). On the one hand you're saying you don't understand why so much attention is being paid to you, yet on the other hand you've started a number of posts about how you can't find your posts, and other problems you've had. Now, I have no issue with someone having problems and requesting help (sorry that makes me sound like I'm a mod or something - which I am not - just a user with an opinion - or many!)... so we show you respect by reading what you have to say and responding... and now you're saying you don't know why?
I'm sure if your posts were ignored and not responded to you'd be complaining that nobody shows you attention or respect?!
Yep, I'm confused.
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By the recent posts in this thread, I see people still want to be rude to one another.
OK, BE RUDE....BUT I DON'T HAVE TO COME HERE TO SEE THIS TYPE OF THING. I AM LEAVING IHD FOR GOOD. ARGUE WITH ONE ANOTHER ALL THAT MAKES YOU HAPPY.
I AM DONE HERE.... :waving; BYE
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I am very sad to read this, fc. I hope you have read all the good posts the past few days. This really is a good group of people and your input has been valuable. Take care. You know we will be wondering how the surgery goes. You're in my thoughts. (come back - :cuddle;)
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I haven't been here much lately, but here is my 2 cents. It has been expressed at different times that reading something as opposed to someone speaking directly can misinterrupted. When you speak to someone face to face, you can judge what a person means by tone of voice and body language. You can tell if some is upset, being sarcastic, happy sad, ect. Reading it isn't the same. Sometimes it is hard to get things across the way you mean them. I don't think many people here intentionally try to hurt people.
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I agree, Ramona. That's why these smiley faces really can enhance and help your post and let people know if and when you are joking or being sarcastic.
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Sorry was I being rude? I wasn't trying to be....
just confused.
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Sorry was I being rude? I wasn't trying to be....
just confused.
You are fine Richard. Your input is always welcomed and valuable. :cuddle;
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Richard, on your worst day, you couldn't be rude! Your Mother raised a fine gentleman and we all adore you. Oh yeah, and you are very smart! :grouphug;
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So some want new leadership?
Alright I will do it (unless theres any work at all involved in which case I will have to pass).
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A gallant offer, Bub!
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So some want new leadership?
Alright I will do it (unless theres any work at all involved in which case I will have to pass).
:rofl; :rofl; :rofl; Thanks for stepping up, Bub!! :rofl;