I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: Des on November 18, 2009, 01:57:51 AM

Title: Do people with PKD stop passing urine?
Post by: Des on November 18, 2009, 01:57:51 AM

I have read and heard that with PKD you still pass urine..... but it just doesn't "filter" the way it used to?

Please tell me about all the PKD'ers experience with this? 


Edited: Fixed subject line error - okarol/admin

Title: Re: Does people with PKD stop passing urine?
Post by: whiskeyfrank on November 18, 2009, 04:49:16 AM

I have had PKD since 1986 and my urine production was totally normal up to the 2nd of October, when i had to have both kidneys removed.

Title: Re: Does people with PKD stop passing urine?
Post by: lizabee on November 18, 2009, 07:12:21 AM

I have PKD and I still pee, until they take out my last kidney.

Title: Re: Does people with PKD stop passing urine?
Post by: willowtreewren on November 18, 2009, 07:16:16 AM

Hey, Des,

This is the only place in the world where talking about peeing is perfectly normal! Hahaha

Carl still has normal output with PKD. That means we don't need to pull off extra fluid during dialysis. We still need to cleanse his blood, though!

Every once in a while, especially if we have eaten out and he has had extra sodium, his weight is up. I'll take of a bit more fluid then.

But peeing is still a go! Haha.

Aleta

Title: Re: Does people with PKD stop passing urine?
Post by: RightSide on November 18, 2009, 05:46:14 PM

Quote from: willowtreewren on November 18, 2009, 07:16:16 AM

This is the only place in the world where talking about peeing is perfectly normal! Hahaha

Oh, no, you forgot about the Urology forums on the Internet.

And you should see what they talk about on the Irritable Bowel Syndrome support forum! 

http://www.ibsgroup.org/forums/

Title: Re: Does people with PKD stop passing urine?
Post by: Des on November 19, 2009, 12:26:14 AM

So far it seems that PKD people do go on pee-ing..... as long as they keep their kidneys....

Keep the responses coming please....

Title: Re: Does people with PKD stop passing urine?
Post by: Ang on November 19, 2009, 04:08:12 PM

if  your  kidneys  are  removed  so  does  the  peeing,generally  speaking  you  will  stop  peeing  at  some  point  in  the  journey,just  depends  on  your  situation

Title: Re: Does people with PKD stop passing urine?
Post by: cloud393 on November 20, 2009, 09:06:57 AM

I was diagnosed with PKD in 1990 and my urine output has decreased significantly.  Mostly in the last year and a half.  I started PD in Feb. 2009.  I also had two uncles with PKD and they lost all output.  I guess it goes with the territory.

Title: Re: Do people with PKD stop passing urine?
Post by: okarol on November 20, 2009, 11:18:04 AM

Here's another thread called "Tell me about number one" http://ihatedialysis.com/forum/index.php?topic=226.0 which is not just PKD related but may have some info for you.

Title: Re: Do people with PKD stop passing urine?
Post by: charee on November 20, 2009, 06:50:45 PM

I lost most of mine after about 6 months on hemo , before that it was fine .

Title: Re: Do people with PKD stop passing urine?
Post by: Ken Shelmerdine on November 21, 2009, 04:47:03 AM

From my experience on IHD I do believe that PKD patients generally keep a good urine output for longer than usual in kindney failure. I don't know why that is. Maybe the build up of cysts which causes the problem in the first place is only obstructive to kidney function rather than the directly destructive pathology associated with other kidney deseases.