I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: Adam_W on November 13, 2009, 04:09:17 PM

Title: Something AMAZING is happening!
Post by: Adam_W on November 13, 2009, 04:09:17 PM
During the last month or so, I have noticed I seem to be producing a little bit more urine. Not a whole lot more, but enough to notice. This last week however, I've started peeing like a racehorse! I've been peeing just as much as I did before I developed kidney problems. On top of that, due to various reasons, I've missed a lot more dialysis the last few weeks than I usually do, and when I drew my latest labs last week, they were not any worse, like you would think they would be after missing a lot of dialysis. My phosphorous had in fact went DOWN! My nurses are going to have me do a 24 hour urine clearance test next week to see just how much my kidney is doing on it's own. My nurse is fairly optimistic that I might be able to lower the amount of dialysis I do, or perhaps even come off of it completely for a while. Physically, I feel just as good as I've felt when I wasn't missing a single day of dialysis (sometimes even giving myself 7 days instead of 6). I know that if I can reduce or come off of dialysis, it will only be temporary, but I'll take all I can get. I'll try to keep you all updated on what I find out.

Adam
Title: Re: Something AMAZING is happening!
Post by: Hanify on November 13, 2009, 04:38:18 PM
Wow how amazing.  Let us know how you get on.  Yay.
Title: Re: Something AMAZING is happening!
Post by: pelagia on November 13, 2009, 04:45:15 PM
This is great Adam.  :thumbup;
Title: Re: Something AMAZING is happening!
Post by: willowtreewren on November 13, 2009, 06:53:30 PM
OMG, Adam!

That IS amazing! Wonderful, in fact! Fingers crossed for you that you CAN get some time off.

 :cheer: :cheer: :cheer:

Aleta
Title: Re: Something AMAZING is happening!
Post by: Jean on November 13, 2009, 07:10:06 PM
That truly is amazing Adam. Best of luck, I hope it just keeps getting better and better for you.  :bandance;
Title: Re: Something AMAZING is happening!
Post by: Romona on November 13, 2009, 07:33:16 PM
Wow, amazing.  :clap;
Title: Re: Something AMAZING is happening!
Post by: cariad on November 13, 2009, 07:46:07 PM
Congratulations, Adam, and best of luck for it to keep on this way.

Such great news - I'm so happy for you!

 :cheer:  :cheer:  :cheer:  :cheer:  :cheer:
Title: Re: Something AMAZING is happening!
Post by: Chris on November 13, 2009, 10:29:06 PM
Hey adam, hope that does happen and as you said even though it may be temporary, ENJOY it while you can to the fullest.
Title: Re: Something AMAZING is happening!
Post by: Mimi on November 13, 2009, 10:42:24 PM
Wonderful Adam!!!  My Doc says that there are some people that are able to improve and come off D and then go back on when the numbers fall.
I hope this is true for U.
Title: Re: Something AMAZING is happening!
Post by: kristina on November 14, 2009, 01:18:37 AM

This is amazing!

Do you know/guesstimate what "makes" your kidneys "pick up" again?

Have you changed anything? Diet? Life-style? Anything particular?

Is there a medical explanation?

Whatever it is, I wish you very very very good luck

and I hope you have a chance to "relax" from dialysis.

Best wishes from Kristina.  :bestwishes;
Title: Re: Something AMAZING is happening!
Post by: RichardMEL on November 14, 2009, 06:49:17 AM
how exciting! I'd love to wake up and start peeing heaps!!!

I hope this isn't a false positive kind of thing and you can lower your dialysis time.... let us know... sounds great!!! :)

Title: Re: Something AMAZING is happening!
Post by: Poppylicious on November 14, 2009, 07:35:31 AM
That's fabulous!  ;D
Title: Re: Something AMAZING is happening!
Post by: ceejster on November 14, 2009, 12:00:18 PM
Awesome!!!  :)
Title: Re: Something AMAZING is happening!
Post by: RightSide on November 14, 2009, 08:27:44 PM
That's fantastic news.  I'm really happy for you.

Spontaneous improvement of Stage 5 chronic kidney disease is rare. But it's not totally unheard of.  I'm glad it's happening to somebody on IHD.
Title: Re: Something AMAZING is happening!
Post by: Hanify on February 08, 2010, 06:16:33 PM
Hey Adam - any update?
Title: Re: Something AMAZING is happening!
Post by: jbeany on February 08, 2010, 07:55:39 PM
 :clap; :clap; :clap;
Title: Re: Something AMAZING is happening!
Post by: Zog on February 08, 2010, 08:35:59 PM
 :2thumbsup;  COOL!
Title: Re: Something AMAZING is happening!
Post by: tyefly on February 08, 2010, 09:13:05 PM
 ???    I know I missed the message
Title: Re: Something AMAZING is happening!
Post by: sullidog on February 09, 2010, 04:32:07 PM
Any updates?
Troy
Title: Re: Something AMAZING is happening!
Post by: peleroja on February 10, 2010, 11:03:18 AM
So, I guess the obvious question now is if you're peeing like a racehorse, are you built like a racehorse?  Sorry, someone had to say it  :rofl;  Sounds wonderful, Adam; less dialysis or a break from dialysis completely would be nice.  Hope you keep getting better.
Title: Re: Something AMAZING is happening!
Post by: Zog on February 10, 2010, 11:19:58 AM
We should all look at the date of the original post... I know I should have! It appears that Hanify was trying to get an update from Adam.  Adam is probably out drinking a Coke, happily peeing away and has forgot all about us.  Oh well, worse things have happened. 

I can't blame him!  I wouldn't be here if it weren't for my wife.  When was the last time any of us has gone on cysticfibrosis.com, burgada.org or some other niche health forum to chit chat?  I never have... and hope I never have too!
Title: Re: Something AMAZING is happening!
Post by: nycrtst85 on February 14, 2010, 06:48:24 PM
That is amazing it is possible that your kidneys regenerated to the point of being almost normal thats beautiful.Anything you did differently that you noticed when your condition improved.???God Blessed You and keep the gang updated.
Title: Re: Something AMAZING is happening!
Post by: JennyGiggle on February 15, 2010, 04:49:14 AM
I know its a few months old, but reading this has brightened my day. To hear that someone has suddenly had a turn around is so lovely to read! Gives me hope! I hope it continues to go good. Would love to read an update!

Jenny