I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: Lucinda on November 11, 2009, 08:59:58 PM

Title: Hoping this might help someone in the future
Post by: Lucinda on November 11, 2009, 08:59:58 PM

Hi everyone.  I decided to post my recent experience in the hope it may help someone. I have had huge issues with my blood pressure.  I have been admitted to hospital a number of times with readings around 290/180.  No amount of blood pressure medication helped.  It has to do with my own kidneys producing too much renin and when I take fluid off, they get dehydrated and my blood pressure rises to ridiculous levels.  I am only able to do a few hours every day on the machine but I have now found through experimenting, that if I take off fluid at the start of dialysis and then put half of it back on in the last hour of dialysis then my blood pressure doesn't rise.  My neph said she hasn't seen the problem before but seems my residual function was quite good when I started and my kidneys are still kicking up a stink about me being on the machine.

It has taken well over three months to find a solution but I was determined to find another way to their suggestion of taking out my kidneys altogether.  I still have good residual function and I didn't want to lose it that dramatically.  After eight months on dialysis, I still don't need to take any fluid off.  My own kidneys are still get rid of all the fluid, just not the toxins.

Residual fuction is generally an asset so taking out your kidneys should be a last resort. Just wanted to let you know there are other ways of reducung your blood pressure when you are new to dialysis and your own kidneys are still producing renin.  Short daily is working well for me. 

Title: Re: Hoping this might help someone in the future
Post by: galvo on November 11, 2009, 10:29:58 PM

Thanks for that, Lucinda. To-day my BP fluctuated from 153/91 to 180/90 to 147/94. I'll keep watching my readings.

Title: Re: Hoping this might help someone in the future
Post by: RichardMEL on November 12, 2009, 03:08:20 AM

WOOHOO!! A post fron Lucinda!!!!!

not such good news about the BP rises... that is scary high!!! yikes...

definitely something to keep in mind. I hope you can keep going without needing your kidneys removed!!!

good to hear from you!

Title: Re: Hoping this might help someone in the future
Post by: monrein on November 12, 2009, 04:51:34 AM

Sorry to hear you've been having such a tough time with your BP Lucinda.  I'm really glad you've found a solution though and I was also glad to see a post from you.  Keep well girl.

Title: Re: Hoping this might help someone in the future
Post by: willowtreewren on November 12, 2009, 04:53:34 AM

It is good to hear from you, Lucinda!

The short daily treatments more closely mimic natural kidney function. I hope this solution continues to solve your problem!

Aleta

Title: Re: Hoping this might help someone in the future
Post by: Goofy on November 12, 2009, 05:43:14 AM

Persistence pays!!  See, the doc's don't always know what's best!

Title: Re: Hoping this might help someone in the future
Post by: jbeany on November 12, 2009, 12:09:08 PM

Hi Lu!

Glad you worked it out without resorting to surgery!

Title: Re: Hoping this might help someone in the future
Post by: paris on November 12, 2009, 12:30:17 PM

Glad things are getting better.  Thank you for sharing what you have gone through.  Nice to see your post!

Title: Re: Hoping this might help someone in the future
Post by: thegrammalady on November 12, 2009, 03:23:26 PM

good to hear from you, you are missed. sorry to hear of the problems you have been having, glad you found a solution.

Title: Re: Hoping this might help someone in the future
Post by: Chris on November 12, 2009, 09:31:24 PM

Hi Lucinda,
Sorry to hear what you have gone through, but glad you have found a solution bfore taking that big step of having your kidney's removed.

Hope the rest goes well for you Lucinda.