I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: F.A.Q. (Frequently Asked Questions) => Topic started by: Maker on October 24, 2009, 07:34:00 AM
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Hi everyone,
I would love to hear from anyone who lives alone and is doing home hemo. I just started in-center, but it is very disruptive to my life and work schedule :( Everything I read seems to indicate it isn't safe to do home hemo (not PD) without a partner, but I live alone and no prospects of finding a quick husband ;D
Thanks so much and God bless you all!
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IHD Bill Peckham does the NxStage at home alone.
Here's his blog:
http://www.billpeckham.com/from_the_sharp_end_of_the/
A few others here do it as well.
Search in the Home Dialysis, Home Dialysis - NxStage Users and Nocturnal threads here at IHD.
8)
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Maker, I am in the same boat that you are in. I am on PD at the moment and I wish i go switch over to home hemo especially since there is less dietary restrictions if are doing short daily home hemo. I too am single and they want a partner to train with you. I guess no hme hemo for me. :( :beer1;
Lisa
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In Nova Scotia Canada they just started to allow you to be trained for home hemo even if you are alone, fight for it... it can be done
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I fought for home hemo and succeeded. It will be 8 months now and I love it. I feel so much better than when I was 3xs a week in center. I live alone and of my 3 weeks training I only had to have my son come two of the weeks. They know I have an assortment of friends and family come in during my treatments and was finally okah with those arrangements. Actually except for lab days I could manage by myself, I think. Good luck with your getting to get it. :flower;
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According to the guidelines for England & Wales, you should be able to have home hemo dialysis without a partner. However, I haven't yet met anyone here who does so and my unit says I shall have to have a partner.
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It's up to the provider. In Seattle the Northwest Kidney Centers will support people who live alone. I've been dialyzing alone at home since 2002.
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Wow, thanks everyone! I am so encouraged today to know some of you are doing home hemo alone and that I might be able to look forward to that in the future :cheer: My dialysis center does not offer home hemo at all, however, my neph is so accomodating and when I ask for things that are a little outside the box he tries to honor all my requests. I think I am a "special patient" since I am the youngest one there ;) Anyway, he said he would try to make it happen if I want home hemo, but is concerned about my safety doing it alone. I am going to talk to him about learning that others are doing it and try to convince him I will be safe. Thanks again for the encouragement, and Bill I am going to check out your blog.
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Wow, thanks everyone! I am so encouraged today to know some of you are doing home hemo alone and that I might be able to look forward to that in the future :cheer: My dialysis center does not offer home hemo at all, however, my neph is so accomodating and when I ask for things that are a little outside the box he tries to honor all my requests. I think I am a "special patient" since I am the youngest one there ;) Anyway, he said he would try to make it happen if I want home hemo, but is concerned about my safety doing it alone. I am going to talk to him about learning that others are doing it and try to convince him I will be safe. Thanks again for the encouragement, and Bill I am going to check out your blog.
Check out the posts Meinuk put up on DSEN http://www.billpeckham.com/from_the_sharp_end_of_the/writer_anna_bennett (http://www.billpeckham.com/from_the_sharp_end_of_the/writer_anna_bennett%20)especially this one http://www.billpeckham.com/from_the_sharp_end_of_the/2008/08/the-right-to-op.html (http://www.billpeckham.com/from_the_sharp_end_of_the/writer_anna_bennett%20)
The thing I say is that dialyzing more frequently is so much safer than dialyzing three days a week that it doesn't matter if you are alone or not. Check out Dori Schatell's testimony at Friday's CMS Town Hall meeting http://www.billpeckham.com/from_the_sharp_end_of_the/2009/10/schatells-comments-to-the-cms.html (http://www.billpeckham.com/from_the_sharp_end_of_the/2009/10/schatells-comments-to-the-cms.html) the concern your doctor should have is for how dangerous it is to have a two day weekend.
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Ok - I think this person needs to get gone!!!
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Ok - I think this person needs to get gone!!!
??
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There was a thread there from a spammer called qweqwe - it's gone now.
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Hi Maker,
I am in a similar situation to you in the UK. I have been told by nursing staff that I cannot have it either but the guidelines state that if you are capable then you can.
I have to see my consultant and push the barriers and maybe get things going for those patients who want to treat themselves at home. I am 37 and am working and hate going to in centre dialysis.
I am going to fight tooth and nail for home hemo as I am sure it can be done and I will prove it to my docs!
m