I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: Goofy on October 08, 2009, 07:18:01 AM

Title: PKD and Fluid Build Up
Post by: Goofy on October 08, 2009, 07:18:01 AM

For some reason I'm under the impression that people with PKD don't generally stop urinating as the kidney function declines.   I thought it was just that the kidneys can't filter out the toxins but you would still continue to produce urine and therefore there would be no fluid build up.

Is that true?

Title: Re: PKD and Fluid Build Up
Post by: KICKSTART on October 08, 2009, 01:02:02 PM

Sorry nope ! You will find everyone on here is different , ive been doing dialysis for 5 yrs now (ish) and still pass a good amount , others may only have been on dialysis for say 2 yrs and pass nothing. It does get less as time goes by and no doubt will stop at some point.

Title: Re: PKD and Fluid Build Up
Post by: lizabee on October 08, 2009, 03:56:36 PM

My Neph told me that many PKD patients produce urine, I have started peeing more since starting dialysis but it is clear, so I know that it isn't getting rid of the toxins.  I am not on a fluid restriction because I still urinate enough, but I know that's not true for everyone.

Title: Re: PKD and Fluid Build Up
Post by: cookie2008 on October 08, 2009, 05:28:08 PM

I have PKD and been on hemo dialysis for 15 months and still pass urine.