I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Krisna on September 09, 2009, 03:55:07 AM
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September 6th was the anniversary of the date I started dialysis after my 4th transplanted kidney rejected. I am still not eligible for another transplant. I've been contemplating giving up! In November it will be 30 yrs since I was diagnosed with ESRD. I don't know if I can keep it up. It's so hard for me to go and lately I've been calling and rescheduling for the next day. I'm not going any miore than 2 days in between but it's still not a good habit to get into.
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:grouphug; :grouphug;
Hang in there, Krisna.
:cuddle;
Aleta
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Is PD out of the question for you? You get to sleep right through it, without all those alarms going off that the technicians are ignoring. I feel your pain. I was only on hemo for 6 months waiting for my peritonitis to go away, and I hated every minute of it. Any time you have to call the front desk and demand that a technician come and turn off your alarm, which has been ringing for over 20 minutes, you know there's a major problem in the system! Good luck, whatever you decide to do.
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7years of dialysis? and 4 transplants ! Is that right ? Wow , i have been doing dialysis for nearly 5 yrs and not had one transplant. I know it gets difficult but whats the option ? I said i would call it a day when i had to do Hemo (after 4 yrs + on PD) but here i am into my 3rd week on Hemo and i hate it. I know its horrible , but try and stay positive after all you know what the other option is!
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4 Transplants? I gave up after one~ But it was a good one.
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Krisna, Please dont give up, you have been through an awful lot, if you give up, it would have been all for nothing. You sound like you are having a really bad day to-day. Is there any one you can talk to, can you talk to your care givers or your family? I send lots of hugs, and prayers. :flower;
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Wow.. I just want to give you a hug :grouphug; It's been a rough go... I'm sorry :(
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Is PD out of the question for you? You get to sleep right through it, without all those alarms going off that the technicians are ignoring. I feel your pain. I was only on hemo for 6 months waiting for my peritonitis to go away, and I hated every minute of it. Any time you have to call the front desk and demand that a technician come and turn off your alarm, which has been ringing for over 20 minutes, you know there's a major problem in the system! Good luck, whatever you decide to do.
Yeah, my new doctor just asked me that last month. The answer is PD is not an option for me. I have mesh holding my abdominal muscle together. I've had 4 kidney transplants and numerous other abdominal surgeries. Plus many hernias. Actually at my center they're pretty quick to shut off the alarms. But then the RN's and tech's are right there by the patients.
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Why aren't you eligible for another kidney transplant?
I just recently met a man who has had 5 and he's doing very well.
I wish life didn't have to be such a challenge for you.
Sending lots of love your way Krisna! :cuddle; :cuddle; :cuddle;
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Krisna, I am stunned. You have been through so much. I hope someone can help you find some solutions to make life easier.
:cuddle;
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Why aren't you eligible for another kidney transplant?
I just recently met a man who has had 5 and he's doing very well.
I wish life didn't have to be such a challenge for you.
Sending lots of love your way Krisna! :cuddle; :cuddle; :cuddle;
I have to get all my teeth taken out plus I have some other physical problems that the doctors and I are conflicting abt. Basically, I have a history of ovarian cysts. A surgeon has already removed my right ovary because he discovered a cyst the size of a grapefruit on it while he was repairing a hernia. I am refusing to have to other removed because the cysts on that one haven't been that bad. They sent the cysts they removed before to the lab and they were benign.
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Sorry you are going thru all of this, and hope it gets better soon. I have no advice for you except, dont give up now. There has to be light at the end of the tunnel somewhere.
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Krisna I have a cyst somewhere in the area of my rectum and backbone. The transplant team wants it out and I refuse to have major back surgery.