I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: General Discussion => Topic started by: Everlasting on August 19, 2009, 10:19:46 AM

Title: searching for stem cell info.
Post by: Everlasting on August 19, 2009, 10:19:46 AM

Hello:  I am so pleased to pass on the information that we succeeded to find a donor (last Thursday).  On Friday a Nurse Practitioner of the renal transplant team contacted Victor to tell him that he is not in need of a kidney at this time -- numbers have change eg. the lower end of the scale indicating the need for dialysis or transplant is 15% nto 20% as we were led to believe.
     We have moved on and are now seeking information on stem cell therapy as well as exploring how we can join a "chain" registry south of the Canadian boarder.  This strategy is not in effect in this region and infact the paired donor program is still in its development stage.  To my knowledge a chain registry does not exist in Canada (only 3 provinces have a paired registry program.)
     Does anyone have words of guidance and/or direction on how we can reach out to an American registry?
     On another subject:  Stem Cell Therapy - this is the direction we are now exploring and if anyone has any ideas of how this can be achieved considering the political stance.  One thing Victor has done is sought out sites that invite names for clinical trials.
     Be Well, Everlasting
     

Title: Re: searching for stem cell info.
Post by: monrein on August 19, 2009, 12:31:21 PM

http://www.cbc.ca/health/story/2009/06/25/kidney-swap-toronto-edmonton-vancouver.html

Here is an article about paired exchange in Canada and there is mention that the program is going national.  Not sure if there is any useful information in there for you but thought I'd post it.  Dr Cole (pictured) has been my nephrologist since 1985.

Title: Re: searching for stem cell info.
Post by: Everlasting on August 21, 2009, 12:46:59 AM

Hi, Monrein:  Good to see your name come up.  Yes Canada will hopefully have a national wide registry by Christmas.  A pilot program passed in flying colors in three provinces - BC, Alberta and Quebec.
     I was speaking with the Canadian Blood Supply reps. here in Nova Scotia and was told that it is all down on paper just waiting to be put into use.
     The article you mention - with Dr. Cole - was very insightful and I join him when it comes to the efficiency of the process if it is option (shared) by both countries.
Be Well and Thank you once again for your reply.
Everlasting