I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: boxman55 on July 16, 2009, 04:13:10 PM
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Hi all, The past 3 months have been just brutal. My Father pasted away and I had a number of medical problems. They started with my right ring finger. I got a little cut that would not heal and then got infected. The Doc decided to cut out half the nail with hopes that the infection which was underneath it would drain. Instead it just created a bigger wound that would not heal and so on 4/30/09 they cut the finger off above the middle knuckle. At the same time this was going on I started to get, after many different diagnoses, a case of Epididymitis (inflammation of the scrotum) It was the most painful thing I ever went through. I could not lay down or back the only time the pain would slow was when I sat up. So I never got any sleep I would ride around the house all night just to try and keep the pain at bay. They put me on just about every pain pill there is all the way up to a time release morphine pill. I wound up overdosing on them. I took one and felt no relief so I took another. Well both kicked in and I was kicked in the a.. I was falling out of my electric chair every where, out on the driveway in the kitchen coming down my ramps and so on. I wound up puking my guts out and had to go to the hospital. Also for some reason I could not lay back in my dialysis chair. I would get hooked up and the pain would start ooh would it start. I could only sit up for it to be not so bad but then my BP would drop and the techs where trying to make me lay back but I wouldn't. I wound up cutting my treatments short every time. I just told them to take me off. So now I am losing time at dialysis with no end in sight. To make matters worse I started to develop a urinary tract problem which was not allowing me to pee regular. What urine I make was backing up and cause bacteria to continue to inflame the epididmytis so the pain continued and all I did was live on pain pills I was so out of it all the time. I finally had surgery on the urinary tract and slowly all that went away. back to the finger this whole time the finger was not healing and was always infected and painful. They put me on IV vancomycin (antibiotic very powerful) which was given M-W-F while on dialysis and I am still on it. So to end my diary of the last 3 months I went to the hand Doc today and guess what...the rest of the finger has to come off. Surgery will be next Thursday. The last thing I am dealing with (ooh come on pile some more on) is a problem with my hands shaking it makes it very hard to type but at least they don't hurt. So there you have it thanks for all your thoughts and prayers know that they mean a lot...Boxman
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That's a lot to deal with
Sending good thoughts your way Boxman
Voice recognition for the computer? Hate to see your IHD support line down in a time of need.
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:cuddle; I am sorry about all the difficulties Boxman.
But I am HAPPY to hear from you.
Thank you for the update, I pray things improve for you.
Sending you hugs and love!! :grouphug;
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I am sorry about the loss of your father. I don't know what to say about all the things going on with you. I hope things start getting better. We missed you. :grouphug;
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So sorry to hear about all that you have been through. :grouphug;
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This is soooo painful just reading about it. I hope they can help you with some of this real soon! We've missed you Boxman.
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OMG, I am amazed at your strength to get through all of this. And your courage. A lesser man could never have done it.
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Well I am happy your back, sad that you have had such a hard time tho. I just want to give you a really big hug :grouphug; :grouphug; :grouphug; :grouphug;. Take care of yourself.
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Lotsa gentle hugs and kisses
Shit, don't ask to 'keep piling it on'
you've been through enough. I know what
you mean: what else could go wrong?
Keep updating and get a seat belt for
the e-chair, and no more DUI's!
:grouphug;
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It sounds pretty damn awful. I hope things go your way soon!
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How wonderful to see your post; although I will say, it made me cringe just reading about your pain. You have been in all our thoughts and prayers. And will continue to be until you get through this incredible time in your life. You have been very missed here. That was a long post! Next time you could just use a smiley icon :2thumbsup; Good to see you, Mark. :cuddle;
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Boxman, what a truly hellish time you've been going through, every level too, physical, emotional, everything. I'm so sorry about what's been going on yet so glad to see you here.
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I'm so sorry you have to go through all of this. My husband had epidytmitis before and I know he was so uncomfortable and in pain. I hope you get better soon and surgery on your finger goes smoothly.
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Boxman the epidytmitis is terrible. I had it twice many years ago and it was bad. I can't imagine going through that in addition to everything else. Sorry about the finger but it is better than allowing it to get worse. I will be thinking healing thoughts for you. :grouphug;
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:cuddle; Good to here from you boxman. Sorry to hear about your troubles. Hope things start to get better soon!!! Take care. :grouphug;
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:thx;...Boxman
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Thinking of you.
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Boxman, I think you can have a complete discussion using just the smileys! Here is a hug for you :cuddle;
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Wow, you have been through the wringer in more ways than one! Hope the surgery goes well (remind EVERYONE who comes within 3 feet of you that their hands must be clean and NO SNEEZING!) Glad you're back.
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I'm sorry you've had to endure so much pain. My prayers are with you. :grouphug;
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Boxman, take care of yourself and thinking good thoughts for your surgery next week.
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Oh, Boxman.
I shudder to think of all the trouble you have experienced. I hope that you are firmly on the road to recovery!
Healing thoughts and hugs. :grouphug;
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Bugger hope things start to improve Boxman :grouphug;
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:cuddle; Oh boxman, I am so sorry for all that you have been through. I wish I lived close by to come help you out of just sit and talk. I had tears in my eyes reading your post. You have had a lot on your plate and I pray things will continue to get better. Your in my thoughts and prayers. :cuddle;
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Boxman,
Its ironic that you are posting today because just a few days ago (I have not been online much either) I was thinking about how YOU were doing? WHEW!!!! You sure have been through hell and back, haven't ya bud? I feel bad for ya and I do hope you can somehow get through it all. You seem to have a fairly good attitude about it all tho but maybe that is still part of the pain pills kicking in! ;) Please do let us all know how the surgery goes next Thursday. My thoughts and good wishes are being sent to ya! :bestwishes; :cuddle;
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I'm at a loss for words. I cannot imagine what you've been going through. I am terribly sorry for the loss of your Father. That alone is extremely hard to deal with. You are a very strong Man. So glad you're back! I hope that by removing the rest of the finger that will end the infection 100%. :cuddle;
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Sorry to hear of all the crap you have and are going through. I hope you feel better soon. As Bill suggested, Voice Recognition software may help you, but cost maybe prohibitive. The main player in that type of software is Dragon naturally Speaking software and the basic model starts at $99. Then there is the training that takes time, so it's not simple instal and use.
Get Well Soon!
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you will always be in my heart
I miss you
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Mark it it SO good to see you post but SO bad to hear what's been happening to you. One of those things alone would be bad enough but to have it all piled on................oh my goodness life really sucks!
You know you've been missed and now we know all the issues I join the others in saying just a smiley posted on here will let us know you are up and about and alive.
Hope you got my card, I just wanted you to know that you are missed by people all over the world.
Hope the op goes well, that you heal quickly and that this is the end of all the cr*p you've had thrown at you. :cuddle;
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Dear Boxman,
It is so painful to read what you are going through
and I do hope you are on the road to recovery.
I send you my best wishes and
lots of strength from Kristina :grouphug;
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You guys are soooooooooo great, I am feeling better already...Boxman
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That sounds awful! So sorry you had to endure that. Here is hugs and prayers coming your way!
:cuddle; :grouphug;
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Hoping you are soon on the road to recovery , take care.
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I'm sorry you're having to endure so much. :cuddle;
Thank you for letting us know what's going on.
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Boxman, it's soooo good to have you back!!! Stay strong!
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:bestwishes;
Hopefully things turn for the best. Keep fighting the pain. I have this nerve pain on my foot that I'm taking Lyrica and it doesn't help much, but I'm fighting the pain. That's all we can do is bare it and deal with it until it stops. However, it won't since we are on dialysis so the only things is to look on the brighter part of things.
:cuddle; Take care, Rivy
Hi all, The past 3 months have been just brutal. My Father pasted away and I had a number of medical problems. They started with my right ring finger. I got a little cut that would not heal and then got infected. The Doc decided to cut out half the nail with hopes that the infection which was underneath it would drain. Instead it just created a bigger wound that would not heal and so on 4/30/09 they cut the finger off above the middle knuckle. At the same time this was going on I started to get, after many different diagnoses, a case of Epididymitis (inflammation of the scrotum) It was the most painful thing I ever went through. I could not lay down or back the only time the pain would slow was when I sat up. So I never got any sleep I would ride around the house all night just to try and keep the pain at bay. They put me on just about every pain pill there is all the way up to a time release morphine pill. I wound up overdosing on them. I took one and felt no relief so I took another. Well both kicked in and I was kicked in the a.. I was falling out of my electric chair every where, out on the driveway in the kitchen coming down my ramps and so on. I wound up puking my guts out and had to go to the hospital. Also for some reason I could not lay back in my dialysis chair. I would get hooked up and the pain would start ooh would it start. I could only sit up for it to be not so bad but then my BP would drop and the techs where trying to make me lay back but I wouldn't. I wound up cutting my treatments short every time. I just told them to take me off. So now I am losing time at dialysis with no end in sight. To make matters worse I started to develop a urinary tract problem which was not allowing me to pee regular. What urine I make was backing up and cause bacteria to continue to inflame the epididmytis so the pain continued and all I did was live on pain pills I was so out of it all the time. I finally had surgery on the urinary tract and slowly all that went away. back to the finger this whole time the finger was not healing and was always infected and painful. They put me on IV vancomycin (antibiotic very powerful) which was given M-W-F while on dialysis and I am still on it. So to end my diary of the last 3 months I went to the hand Doc today and guess what...the rest of the finger has to come off. Surgery will be next Thursday. The last thing I am dealing with (ooh come on pile some more on) is a problem with my hands shaking it makes it very hard to type but at least they don't hurt. So there you have it thanks for all your thoughts and prayers know that they mean a lot...Boxman
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Boxman honey, I am so sorry for all your suffering and I hope this next surgury is successful. Your a good egg. :basket:
We all miss your posts, I hope your okay soon- did they try fentynal (probably spelled wrong)?
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Boxman honey, I am so sorry for all your suffering and I hope this next surgury is successful. Your a good egg. :basket:
We all miss your posts, I hope your okay soon- did they try fentynal (probably spelled wrong)?
No way to strong they said, so is a sledge hammer to the head, but I would bet both would work ...Boxman
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Ahh- that sucks. Prayers, and sympathetic twinges from my bout with epidydimitis about six years ago.
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Just an update my surgeryy to remove the rest of my finger is july 29th...Boxman
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You know (I hope) that we will all be thinking of you :grouphug;
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My caring thoughts and prayers are with you all the way :cuddle; Thank God for the strength of the human spirit when faced with these terrible challenges. You will make it through!
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Boxman, my sister lives near you. She will come by if you need anything. Please let me know. I hope you heal quickly after the surgery. :cuddle; :cuddle;
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Hope all goes well and this will take care of the problem finally.
Good Luck Boxman
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You're in my prayers, Boxman.
Adam
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Checking in, :grouphug; :grouphug; :grouphug; :grouphug;
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Hi Boxman, Your post was a jaw dropper. I just sat and read, and cant even begin to imagine how you hung in there thru all of that. And, you dont even sound depressed, just doing what you gotta do. Good for you, and I hope and pray that the surgery went good and you are soon up and around. :grouphug;
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Not the same without boxman here
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I hope things are going better for you.
You are unbelievably brave to get through all the trials that have come your way in life. Hang in there.
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My thoughts and prayers are going out to you Boxman!
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hope everything is moving along. i think of you often. :guitar:
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I think of you often too- I hope your okay, and not in pain.... :flower; i miss your posts very much.