I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: tee on June 14, 2009, 03:33:38 PM
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My husband was scheduled to start home hemo training in July, and they just told him yesterday, he has to wait until September, because there are two people ahead of him. He was so mad, I was able to calm him down, but it just annoys me that they do not have more people to train for home hemo. It like they want to keep you coming to the center, until they can fill your seat, to keep the ins dollars flowing.
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First off, welcome to IHD. I can relate 100%. I've been on home hemo for two years, after four months being in a centre. I knew I wanted home hemo right after I started dialysis, and within a month or so I finally had my HHD orientation, and they told me I would be on a six month waiting list. I wasn't doing well at all with in-centre dialysis, emotionally as well a physically, so at the time it felt like a lifetime. I was on the waiting list for both home hemo units in the city, and right after I had the orientation for the second one, I found out from the social worker at my centre, that a new HHD unit had opened up, and they could start training me in six weeks. It actually only took about three weeks, and I was the third patient trained at that facility, and I've been there ever since. You and you're husband hang in there, because when he is on home hemo, I can almost guarantee he will never go back to in-centre.
Adam
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Thank You for your words of encouragement, I am happy that I have found this site. We have been down a crazy path, and I have been reading to him what other people have written on this site, to show him that others have been through some rough times and he is not the only one. He does not use the computer, but I have been encouraging him to do so, so he can start his own posts.
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Hi, Tee.
We are very, very happy with HHD. And I agree with you 100% about this site. Whenever I feel like life isn't treating us so well, I only need to read through posts on IHD to realize that there are so many wonderful people handling situations far worse than ours.
Lending support and encouragement to others is such a help to me.
Aleta
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SIGH..... Does any one else here who is not yet on dialysis get queazy at the sight of their own blood? I can not even watch when they take blood at the labs from me. I should be on dialysis soon, and I need to make up my mind. I had decided I wanted to do home PD, but the queaziness stopped me. Any ideas, anywhere???
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OUr phobias about blood and needles can get in the way of good care. I would talk to a hypnotherapist who has experience dealing with phobias, or even better, one who has worked with ESRD patients before.
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Oh, that's a good idea. Can hardly wait to see my neph in August, with my little list of questions in hand. Thanks.
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Definitely think about PD. No needles that way.
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hi i would like to know more about home dialysis? here i the Philippines never heard that always peritoneal dialysis only please give me some information about HHD
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hi i would like to know more about home dialysis? here i the Philippines never heard that always peritoneal dialysis only please give me some information about HHD
Here's an entire section of IHD about Home Dialysis:
http://ihatedialysis.com/forum/index.php?board=25.0
And this section is all about the NxStage hemodialysis machine and member's experiences:
http://ihatedialysis.com/forum/index.php?board=37.0
When I visited Manila many years ago, I dialyzed at Medical City and at Makati Medical Center
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