I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Dad on March 16, 2009, 12:15:13 PM
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Read the Intro section and for some reason - could not find the "NEW Topic" button ?? - Went to the Caregiver page - and low and behold - there it was - So posted an intro on the Caregiver page. Went back to the Intro page and now the "New Topic" button shows up ?? So now - Intro
Real Quick - I am Dad who has been caring for three (3) children in kidney failure since they have been 8-9 years old. The oldest and youngest manifested the malady when they were at that age. The oldest (now 29) has had 2 transplants and is now back on dialysis (PD) awaiting a third. (You can read more of her story on the caregiver page). The youngest - son age 24 - had his transplant at age 13 and - so far is doing very well. He holds down a full-time job close to home. The middle daughter - 26 - was just diagnosed with adult onset of the same genetic disorder that beset her brother and sister - and is also on PD at home with her sister. She is a music teacher and doing very well on PD while teaching every day.
So while Mom has a real job - Dad is the caregiver for the oldest who is on a constant treadmill of therapy, doctors visits, and path to recovery and back into the work force while on PD and waiting for a 3rd transplant.
Let's see - Did I make sure I put in the last Baxter order ??
Great site - wish I would have found it sooner.
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this site is being upgraded in the next few hours-it may have some anomalies.
http://ihatedialysis.com/forum/index.php?topic=12839.0;topicseen
dont despair- it is a very reliable place. :welcomesign;
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:welcomesign; to the best place for support, information etc. I'm sure, from your intro, that you have tons to share with us also and I look forward to reading your posts. I'm so sorry that you and your family are all dealing with the lifelong implications of ERD. :grouphug;
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Welcome Dad, good to have you aboard.
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:welcomesign; I second everything that monrein said. Please post often. :cuddle;
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:welcomesign;
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:welcomesign;
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Welcome to the community!
:beer1;
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Dad, so glad you found our site. Your road is a tough one but I'm glad your children have you to rely on. When did you know that this was a problem. Were like the first 10 years good and then you were slammed with the realization that all 3 of your children would end up on dialysis?
I'm hoping you learn something from us as we will learn from you.
:welcomesign;
Our site was being overhauled today. Sorry you ran into problems.
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Welcome Dad. I guess you must be a super expert caregiver by now. I look forward to reading your posts and learning about your experiences. I hope you will find the information here at IHD useful and also find support if you need it. :welcomesign;
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Welcome! :cuddle;
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:welcomesign; What a great caregiver....hope YOU have someone you can fall back on as I know caregiving is very difficult.
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Hi Dad and welcome
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:waving; Dad
Well you all have your hands full.
Glad you found us here and hope to see you posting often.
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Welcome Dad, I'm sure you'll find loads of info here....and maybe a few laughs! You've got your hands full!
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:welcomesign;
I am also a parent of 3, one on dialysis (14 years old on dialysis for 15 months waiting for transplant), another with CKD in denial (18 years old; hanging in there with 18% kidney function, and one kid with healthy kidneys! :-)
This is a great place to hang out for support and they are very informed. Welcome to the group! :grouphug;