I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: bette1 on March 01, 2009, 12:37:27 PM
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I've been on hemo for about a year and I have been having more and more leg pains. It is hard for me to walk. I find myself wobbling and walking stiff legged. I am only 42! My phos and calcium are good but my PTH has been high. I'm on Sensipar and I hope that helps. Anyone have this problem? What can I do about it?
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I fell and broke my hip. I can't tell if its that or sitting in the chair, but I am quite stiff after treatment.
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I'm sure others can be more helpful on this, but from my experience with my mother on dialysis, she gradually had more and more pain in her feet and legs but it was neuropathy. That may not be what you're experiencing though. Other than that, I am not not sure what it can be except if it is from sitting in the chair like ketchum said. If it only happens after your dialysis session then that may be it.
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I've been having the pain all the time. My Doc said it may be due to muscle weakness and I am going to start physical therapy to work on building myself up. It's really frustrating bucause I can't do the things I want to do, and I don't want to start down the painkiller path.
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I was having terrible joint pains in my hip joints and spine, back when my PTH was over 1200. It got to the point where my legs just gave out from under me, and I collapsed on the floor a couple of times. I felt like that classic TV commercial: "I've fallen and I can't get up!" Evidently the high PTH was just sucking the calcium right out of my bones.
I've been taking plenty of calcium, and Zemplar to lower my PTH, and that has helped a lot. My neph said that my bones have started remineralizing. But it's taken a good number of months to see any improvement.
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You're right. I hadn't realized I was having more leg pains since going back on hemo. I just assumed it was a combination of age and too much bike riding. Something for me to think about.
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During the past week, my leg pain has also been increasing. Our situations sound similar. I'm only 45, been on hemo for 2 years. My potassium and phosphorous are good levels, but pth is high. I'm also on Sensipar, and I take Vitamin D. My legs have been aching so very, very much. I could barely walk up the stairs the other night. I really hadn't thought about it being related to the pth, I thought perhaps it was ill effects from the cramping I had during dialysis. Now, I'm thinking I'd better talk to my neph about it. My appointment is next week. I'm putting it at the top of the list.
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During the past week, my leg pain has also been increasing. Our situations sound similar. I'm only 45, been on hemo for 2 years. My potassium and phosphorous are good levels, but pth is high....My legs have been aching so very, very much. I could barely walk up the stairs the other night. I really hadn't thought about it being related to the pth, I thought perhaps it was ill effects from the cramping I had during dialysis. Now, I'm thinking I'd better talk to my neph about it. My appointment is next week. I'm putting it at the top of the list.
Yep, high PTH is your parathyroid's attempt to raise blood calcium levels. And there is one place to get more calcium--your bones. So your bones will lose calcium and soften, which causes aches and pains and difficulty walking.