I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: ImaginaryPixel on February 27, 2009, 08:13:02 PM
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Hi everybody, I was really lucky finding this forum... really, I've read some posts and I already feel like people here will understand me.
First things first, my name is Marco and I'm 23, I've been sick since I was 13, I have Lupus, but I started dialysis at 16, but only for 6 months, then I had a transplant, but since the very first day it gave me trouble after trouble, the thing is, I rejected it after 19 months...then I started treatment for the second time.... it's been 5, 6 years, I've had lost track of it, I'd rather not to think about that. I feel like there's two of me, the one who's sick and the one who pretends not to be.
I try so hard not to feel depressed, but it's kinda difficult, sometimes treatment leaves me with headaches, nausea, low blood pressure, you know, like I've been hit by a truck, but I believe it's my duty to put myself together and not to complain much about it, because there's so much I have to do...
I've worked since I was 16, just to maintain treatment, by the way, I'm from Guatemala, and here yo need to have lots of money to afford dialysis, or... social security, that's the reason I had a job since I was 16, just to afford social security, but some days It's just too hard to juggle work, college, dialysis, I almost finish college, so I don't want to quit it. My mother has been my support, she's the one who struggle with me. People see me daily and they just don't believe I'm sick, they just think I made this up.... yeah right, like it's easy feeling like this.
I really don't have much friends, I'm a little bit aphatic, sarcastic you may say... but sarcasm is the only thing that helps me sometimes. I really hate optimist healthy people, let's see if they're optimists with non-functional kidneys....It's so easy to be upbeat when you're healthy...
Well I guess there's some things about me, I'm just a weird guy who happens to be sick... God knows how many time I have left, I just try not to think much nowadays...
By the way, I'm a graphic designer... so if you need anything, It's my pleasure...
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It's good to have you here!
:beer1;
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:welcomesign; Marco! Enjoy the site. :flower;
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Welcome and yet healthy people have a very hard time understand what we going through.
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Welcome Marco, good to have you aboard.
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:welcomesign;
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Welcome to the group, Marco. Lots of good information here and the occasional shoulder to cry on. Glad you found us!
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:welcomesign; Marco. Great introduction. You will find this a great group of folks with tons of information and all kinds of support when you need help or just want to :rant;. Hope we hear more from you. I too was a graphic designer when I worked. I still play around with it to keep out of trouble. Post often, please. :cuddle;
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Welcome Marco you sound like a real neat guy. You need to read www.butyoudontlooksick.com
Here are some smart comments back to people who say "you don't look sick". :rofl; And you don't look stupid!
http://www.butyoudontlooksick.com/2006/08/sick_humor_answers_to_but_you.php#more
Glad you found us! :welcomesign;
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Bienvenido a nuestra comunidad! Mucho gusto de recibirle aqui, Marco! This is just the place to be. Here you will find information, support and even some fun. You will find that there is even place for your sarcasm here! This is much more than a forum - it is a family :grouphug; This is just the place to vent, rant, rage or rave as you feel. The founder wanted to create a place where people could have a voice and express themselves without censorship (minus vulgarity, of course) and that is what we are. So keep reading and keep posting.
Bajanne, Moderator
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Welcome to IHD, Marco. You are so right about healthy people. I am so sick of people always saying you look great. BS. Again glad you are here and post often.
Boxman,Moderator
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:welcomesign;
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:welcomesign; Glad you are here!
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:welcomesign; Marco,
I am sorry that you have to go through so much crap. One of my teenage daughters is also on dialysis and she feels like crap a lot of the time. I am amazed that you continue to do so much, work and school and dialysis. I am impressed. Hang in there. You will find lots of support and information on this forum.
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Hi Marco, you have dealt with a lot in your young life. Being as busy as you are keeps your mind from dwelling as well as the opportunity to get social security. I have two sons 17 and 19. I am so glad your illness isn't keeping you from college. You have the strength of many. My youngest son's girlfriend's dad is a graphic designer. He designed the label for the Intense Milk line. I do some designing in my career and often wonder if I should / could make the jump to graphic design. It is so creative.
I am here for my mom who is still pre-dialysis. This group is very caring, supportive, and even ready to set you straight if you need it! - in a good way. The internet is a wonderful thing to bring people so far apart so close together. take care Marco,
Kim
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:welcomesign; I am so glad you joined this group. There is a lot of good information here and so many people that understand what you are dealing with. This is an incredible supportive group. You sound like an amazing young man with a marvelous attitude. I think you will fit right in with this eclectic group! :grouphug; :2thumbsup;
paris, Moderator
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Hi Marco :waving;
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Bienvenidos vos chapin! Como te va?
:waving;