I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: deafman on February 04, 2009, 04:15:49 PM
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Hello everyone.
Was recommend by a work colleague (thank Jessup :thx;) to have a look at this website. Love the name of the website as it is the only way you can describe it.
I have suffered kidney problem for most of my life, I was first diagnosis with it when I was 16 year old. It was caused by blood poisoning and as a result I had a temperature of 41 C for 3 days. It was soon after that it was discovered that I had kidney problem. It worked well for over 13 years until I had to start dialysis. I was on PD for 3 1/2 years until I had a transplant. It was just wonderful. Never felt so good in my life. Unfortunately 18 months after the transplant I had a silent rejection which was only discovered when it was discovered my creatine level was getting higher. They did a biopsy then and found that there was some severe scarring in the kidney.And they were able to stabilize it at the time and still working. Just in the last few months the doctors have noticed that the creatine level is increasing probably because of the scaring, and had a biopsy yesterday. I am hoping that they will be able to stablise it again.
I am working full time as a special education teacher in Darwin, Northern Territory Australia.
And yes as the name suggest I am deaf. However it is NOT related to my kidney disease before you ask. :banghead; :banghead; ( I get sick of doctors and nurses thinking that there are some connection.)
Looking forward to communicating to you all.
Deafman.
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:welcomesign; to this community Dm, that Jessup is a sweetie and I'm glad she told you about us. I hope you'll post often and I look forward to knowing you here.
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:welcomesign; deafman. So glad you joined us. We are a wonderful group with loads of information and support at a moments notice. Great introduction and we are so happy that Jessup told you about us. Please post often, we look forward to hearing more about you. :cuddle;
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:welcomesign;
Glad you joined us!
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:welcomesign; First, thanks to Jessup for pointing you to the best site on the internet! Second, we are very glad you joined us. I am sure Jessup has told you all about us (don't believe everything) . There is so much information and even more support. You have experienced all aspects of this disease and I am sure we can learn a lot from you. Looking forward to reading more of your posts. You are amoung friends :grouphug;
paris, Moderator
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It's great that you joined the "team". Let us know the results of the tests and I hope that they can keep the kidney going for a long time. :welcomesign;
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Hi Deafman :welcomesign;
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Welcome, Deafman! You will find a very supportive community here and a lot of useful information as well!
:welcomesign;
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:welcomesign;
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:waving; You will love it here! I look forward to hearing more from you.
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Welcome to IHD we are glad you found us. Look forward to your posts
Boxman,Moderator
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Welcome from another Aussie from country NSW hope to see more of you around here
cheers charee
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Welcome Deafman, good to have you aboard.
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Welcome to our community, Deafman!! A special welcome for a fellow member of the Commonwealth (born in Barbados, presently living in the British Virgin Islands) We have a great group from your country. We also have some special ed teachers here. (I too belong to the teaching profession) We are really glad that you obeyed Jessuo and decided to join us. This is a wonderfully caring and sharing group. Sometimes it is hard to believe that we are all over the world. We are more than a website - we are a genuine family :grouphug; Just look around the site. Read as much as you can, but also post as much as you can. We want to know how that kidney is doing (and how you are doing too!)
Looking forward to hearing more from you :flower;
Bajanne, Moderator
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:welcomesign;
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:ausflag; :waving; Glad you found us.
Aussie aussie aussie OI OI OI :cheer:
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Did you loose your hearing due to Dialysis. (just kidding, playing doctor) :o :sarcasm;
Glad Jessup pointed you in our direction.
Just curious if you worked the whole 3-1/2 years while you were on PD.
And did you use a cycler or just do manuels?
Wishing you the best on them keeping that kidney working well.
Hope to see you on many of the threads.
P&K
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Welcome aboard. I wish you luck with the kidney.
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I thought all men were deaf
(just joking)
I was a special education teacher before dialysis ruined my career
I envy you to still be connected with teaching
do you know Ang ?
we seem to have cool members from Australia
we have a thread on what did you eat for supper in the Diets and Recipes section
I wish you would share with us what you eat
it is fun to hear interesting things people eat
like yorkshire pudding and we eat hushpuppies
it does not have to be renal safe
just whatever you ate
nice to know you
Kitkatz is another teacher and so is Mibarra and we have others
I often wonder if teaching causes kidney problems
( just joking)
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Welcome and good luck to ya!
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Did you loose your hearing due to Dialysis. (just kidding, playing doctor) :o :sarcasm;
Just curious if you worked the whole 3-1/2 years while you were on PD.
And did you use a cycler or just do manuels?
Wishing you the best on them keeping that kidney working well.
Hope to see you on many of the threads.
P&K
PK
The answer to the first question is nope, I was born deaf. There is no connection between the deafness and the kidney condition.
I had just completed teacher training when I had started dialysis. At the time I was living in Brisbane, Sunny Queensland, Australia, and I was not able to get much work there as there was too many teachers there looking for work.
About a year after I started dialysis I found out that they were short of teaching in Darwin, so I moved there and they were so short of teachers I was able to get plenty of work both relief and contact teaching until the year after I had a transplant. I then was offered a contract teaching in a remote Aboriginal community about 900 km out of Darwin (In the middle of the Tanami Desert) for a year. After that I got permanent teaching position with the Department of Education and have been so since then.
I used to do the manual format of dialysis while I was teaching and I really had a good excuse why I couldnt do yard duties during lunch. I am still looking for an excuse to get out of yard duties at lunchtime since I now have a transplanted kidney. Any suggestion?
EDITED - Fixed Quote Error - Bajanne, Moderator
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G'day mate and :welcomesign;
Glad you joined IHD
:2thumbsup;
You are such a positive and humerous bloke
You and Ivy (your darling woofer) are a great asset to our school footy team - the kids reckon it's great that Ivy is the Aussie rules footy trainer and you are one of our assistant coaches
Catch ya later "chalkie"
:beer1; :beer1; :beer1;
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Real good to have you with us!
:beer1;