I Hate Dialysis Message Board
Dialysis Discussion => Advocacy => Topic started by: Bill Peckham on January 26, 2009, 09:08:45 PM
-
I came across three videos that I think give dangerously bad information. They are:
The Dangers Of Dialysis Treatment Part I http://www.youtube.com/watch?v=vpseAHkPPkc
The Dangers Of Dialysis Treatment Part II http://www.youtube.com/watch?v=jipGr7Q4fbk
The Dangers Of Dialysis Treatment Part III http://www.youtube.com/watch?v=TTmzSz3a5Vs
copy and paste the urls
The question is what should be done about it? Anything? At first I was thinking that the videos should be removed, the site censured. But maybe instead this is an opportunity for a new kind of advocacy. An opportunity to educate by responding with good information. YouTube has the option to post a video response and to post comments.
Thoughts?
-
I watched the first one - there's 10 minutes of my life I can't get back!
Two completely uninformed people talking about something they don't have a clue about. I'm not sure it's worth responding to.
-
I couldn't watch more than the first one. Arrggggg :stressed; :stressed; :stressed; :stressed;
One clueless talking to another clueless. This proves you can't trust everything you read or see on the internet! 8)
-
Oh geeze! I actually watched the entire thing, and that was the most ridiculous piece of shyte I've ever seen. I did leave a comment on the first and second parts.
Adam
-
Good grief!!!
-
Dumb and Dumber talk about dialysis. That is what this should be called. I only watched the first one.
:rofl;
Yeah, we should all comment. Let me know!
-
Bill, I vote that you do a video rebuttal, point by point, the only thing I wonder is...who would be watching this garbage anyway? So, perhaps you've better things to do. I know I do, why I think there's some urgent lint in my navel that needs attending to. :rofl;
-
YouTube has the option to post a video response and to post comments.
Posting comments on that YouTube site would be a good step.
8)
-
I wont even look at it.
I trust my IHD family..
-
I was outraged by that video. That young lady has not the first idea about what dialysis is about. When she said that she quit, I said 'Thank you, Lord!' I was embarrassed too to listen to a brother and a sister spout such fatuous ignorance!
I had to post a comment. I will post another, because I need to post one explaining what dialysis is about.
Sure we hate dialysis, but we know we need it!
-
I think it makes sense to post links back to IHD and other nonprofit sites like Home Dialysis Central (http://"forums.homedialysis.org/) and Nocturnaldialysis.org (http://www.nocturnaldialysis.org/).
A video response is more work than I'd want to commit to for this quackery.
-
Truly distressing to listen to this talking about her NOT UNDERSTANDING why they dialyise 3x/week - why do they "have" to do that? And how they take "tons" of blood from them every week. She never saw anyone get better in two years and nobody ever gets off it? Hello have you never heard of transplants? or moving to home hemo? or pd? This woman was ASSISTANT to the tech (heavy emphasis on the ASS) and a receptionist so honestly she would have no clue.. but I know our ward clerk would know heaps more than this person. ARGH! And they are talking about a lot of cases of very elderly patients too, which doesn't help.
It's just sad really.
What I'd like to know is who is behind this? This seems a reasonably professionally produced video and there's clearly an agenda there. But what and whom is behind it would be very interesting to learn more about. Maybe lock them in a room with that liver4you idiot....
-
OMG!!! Part 3!!! OMG IDIOTS!!!! "You don't urinate because they don't drink enough water and what little water they're drinking is held onto by the body" OH MY GOD!!! IGNORANCE!!!!!! For crying out loud!!!!
-
OMG!!! Part 3!!! OMG IDIOTS!!!! "You don't urinate because they don't drink enough water and what little water they're drinking is held onto by the body" OH MY GOD!!! IGNORANCE!!!!!! For crying out loud!!!!
:rofl; :rofl; :rofl; OMG Rich are you that bored at work that you are watching that dribble!!!
Don't torture yourself!! :urcrazy;
-
RichardMel...At the end of this crap it said "Century Cable Santa Monica University of Common Sense Hawthorne CA" both local communities.
I think this is a great argument against reuse. Do you want this woman cleaning your dialyser?? Not me!! She said she worked at a D center for 2 years and believes patients are being "duped" into D. The reason they can't pee is because of the fluid restriction...so the body holds on to every last drop!! I think I have met both of these geniuses working in the ER!
-
yeah no common sense there. Holy crap! The worst part is I am sure they both honestly believe they are spreading a good word to "warn" people about dialysis and all that. They probably believe they are Good People (and I am sure the intentions arre there) but the ignorance and rubbish spouted just makes me mad enough to boil (not hard in this heat, despite good work air conditioning).
And well Wattle yeah it is dribble but I wanted to hear the whole thing for myself... wish I hadn't.
horrible, horrible stuff.
-
well, i'm going to email the admin of youtube. that series is actually dangerous and needs to be deleted. there's already enough ignorance about dialysis around, thanks.
:Kit n Stik;
-
Hmm. I posted a couple comments on those and they're gone now. I wonder what happened.
Adam
-
That figures Adam,
Its not surprising they are censoring it.
The truth makes them look like fools.
Im glad we have the name.
I hate dialysis --but the knowledge to know why.
-
At the end of the third video, yes I watched all three, they have some information and I was able to find Mr. Tim Morrow’s website for his business “University of Common Sense”. (he needs to take his own class – Common Sense 101). You can you get his email - tmiherbs@sbcglobal.net or his 800 number ….1-800-527-5682. Maybe if we all call him “toll free” or email him, we could get him to remove his posting on youtube. If we just post a response to his video, people would end up watching the crap first and may never see a video response. If we got him to remove the video it would be better.
Has there ever been an IHD protest march? We have 2935 members….. that’s allot of emails and phone calls. That would teach him to post his crap with a phone number.
-
We had a receptionist at Jenna's clinic tell me that she didn't think that Jenna really needed dialysis (this was after 3 years on hemo!) ???
Yeah, it's just a great big conspiracy to take your money... :banghead;
YouTube has guidelines about Nudity and Sex, Children, Hate, Shocking and Disgusting and Copyrights...
and this
Dangerous Illegal Acts
While it might not seem fair to say you can’t show something because of what viewers theoretically might do in response, we draw the line at content that’s intended to incite violence or encourage dangerous, illegal activities that have an inherent risk of serious physical harm or death. This means not posting videos on things like instructional bomb making, ninja assassin training, sniper attacks, videos that train terrorists, or tips on illegal street racing. Any depictions like these should be educational or documentary and shouldn’t be designed to help or encourage others to imitate them.
I'd go so far as to say these videos give dangerous and misleading medical advice. More info:
You may not like everything you see. Some of the content here may offend you—if you find that it violates our Terms of Use, then click the button that says "Flag" under the video you're watching to submit it for review by YouTube staff. If it doesn't, then consider just clicking on something else—why waste time watching videos you don't like?
Info from: http://www.youtube.com/t/community_guidelines
-
I commented on all 3 videos and I also flagged them as dangerous acts.
-
He also have produced another video on youtube about Kidneys & The Dialysis Machine - it comes in 3 parts
http://www.youtube.com/watch?v=XYDkFhvIACs
http://www.youtube.com/watch?v=jHgbyRhCZQQ
http://www.youtube.com/watch?v=fNk2rC85xzw
-
If you go to one of his internet pages:
http://mynsp.com/commonsenseherbs/index.aspx
We can see that he is actually an independent distributor of Nature's Sunshine products.
Entirely endorsed by:
http://www.natureshealthypeople.com/Natures_Sunshine_Coinfo.html
Mercola's vision: To partner with you in your healing process,
addressing every aspect of your health on a physical and emotional level,
so you can begin to live the healthy life you were created for
-- experiencing joy and gratitude, moving well, and living free of toxicity."
As testified by these folks:
http://www.naturessunshine.com/us/opportunity/testimonials.aspx
So, use the herbs to become healthy enough to sell them and become wealthy in the process!
This is what BusinessWeek has to say about Mercola and his herbs:
http://www.businessweek.com/smallbiz/content/may2006/sb20060523_063274.htm?chan=smallbiz_smallbiz+index+page_today's+top+stories
Mercola has been warned by the FDA:
http://www.quackwatch.org/11Ind/mercola.html
So, perhaps e-mail Mercola about one of his independent distributors?
-
What a couple of numbskulls!
-
well, i complained twice to the 'feedback and suggestions' forum. it's almost impossible to find a definite address to reach youtube administration, and it doesn't look like they really read their foums much. i think the forums are just to attract users so they can expose them to more advertising.
my comments were simply trolled by some idiot. perhaps it would be best to inundate the man responsible for this bogus nonsense in the first place. mercola? :Kit n Stik;
-
I'm really proud of the IHD community. Through these posts we've not only learned of this charlatan, we also have his phone number, website and the true reason for this video: to sell useless supplements.
This individual has no idea who he's dealing with.
-
I keep leaving comments too. Signed griffgail. :Kit n Stik;
-
I emailed him. Hope it helps...
-
I cannot watch past the middle of the first one
my kidneys are too weak to hear that shit skyte ( thanks for the new spelling Adam W )
-
are either of them medical professionals? If not, youtube could be held liable for that crap.
you cannot give medical advice without some sort of disclaimer like pharmaceutical companies due in their TV ads 'consult your doctor' etc etc..... jeez! i only made it through half and through like the rest of you 'where on earth did this woman work??' (kept praying she wasn't going to spill out Davita) :)
-
I think the worse part about those videos is that people are going to goggle the dangers of dialysis and those videos are going to pop up. Not knowing a thing about kidney failure or dialysis and believe every word. And I mean I have had kidney problems for years now but dialysis is still a pretty scary subject to me. I would have been scared to death if I would have watched those videos when I first got sick at 15. They really shouldn't be able to give false information like that.
-
Pure ignorance. They know nothing about the " people" on dialysis. I'll certainly post my comments.
-
There's a lot of ignorance going around about kidney health.
8)