I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Jessmomto3 on January 24, 2009, 09:09:43 PM
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Hi all! I'm Jessica, mommy to Cristian, Jaden, and Logan--ages 8 (in a week), 3 1/2, and 11 months. I am here because my 11 month old is on peritoneal dialysis and I am hoping to learn more about what he is going through and feeling. He can't tell me how he feels and he is an exceptionally sweet baby. But, it never hurts to learn more and sometimes I feel very inadequate with his care. Dialysis wise--he has done fairly well. He's been on dialysis for 6 months now. Anyway, it is nice to meet all of you and i hope to get to know you guys better. Just from lurking for the past few days I have learned something new which is that people on dialysis typically have restless leg syndrome. So now I know why he kicks the covers off every night while he's going to sleep. :)
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:welcomesign; to a great site. Bless you for taking care of your child.
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Wow. Your story just made me stop. I am moved by your young son and your situation.
I'm fairly new to dialysis still - only 5 months. The restless legs drive me crazy!! God bless your little son. I can't even find words to describe the feeling but it's terrible. When I get them, I can't sleep at all. Until I can find something else, I have found oxycodone to work. I don't like taking it and I don't like the side effects but it sure beats the feeling of restless legs and zero sleep.
I will look forward to reading more posts from you about Logan.
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Jessmomto3, Good to have you aboard.
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:welcomesign; Jessica. Bless that sweet little boy. I believe you have the youngest dialysis patient on IHD and we are so happy you found us. There is loads of information here and when you need a shoulder, we are here for that too. Hope we hear more from you and give your children a big :grouphug; from us. :cuddle;
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:welcomesign; Jessica. I am truly saddened and sorry that your sweet little Logan has to go through what he does. I am however very happy that you found this site and us because we really do "get it" and we are a wealth of information and support.
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Welcome, Jessica. I did PD for 5 years and am hoping to get back to it in a couple of months. Feel free to email me on IHD if you have questions. I've never heard of anyone as young as Logan being on PD. Amazing what they can do nowadays.
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Welcome Jessica, and give Logan a big hug. It broke my heart knowing that an 11 month has to go through this. Please post often with your questions. We will line up to help you
Boxman,Moderator
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Welcome Jessica! I'm a new member also (well, I joined last year but just posted yesterday). I am new to PD - 2 weeks now but I am 42. It's a new and different world but I can't imagine what it would be like if I was caring for a child doing PD. God bless you!
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Hi Jessica, I pray for you and your family. You have got your hands full. Like Monrein and all of us say, this site is a blessing. The support is amazing and so is the information. The members truly care about one another.
I am here for my mom who is pre-dialysis. We've been through a lot and I don't know what I'd do if I wasn't a member here.
:cuddle;
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Poor little Logan. But i am glad he is doing pd and not having to use needles. If that is even a possability.
I pray he will get a New kidney SOON so he can live a normal life and be like all the other children. But until then he is in Great hands with his mom at his side. Talk about having a full load three little ones must be a task.
Glad you found us here. And hope to see you post often about dialysis and just in general.
Oh sorry :waving; Jess and kids :clap;
P&K
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WOW , I sometimes think that I've got it hard and then I read about your little one. I hope that we can help in some way so please stay in touch. :grouphug;
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Welcome, sorry to hear about your little one. I am a mother of 3 year old twins. I feel for you. But his is a wonerful site, I am sure you will get what your looking for. Ask anything and anwsers will come flying at ya.
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:welcomesign; to a great site. Bless you for taking care of your child.
Thank you very much! I am already learning so much. He's a sweet little guy. I updated his picture since the one I had there was from this summer.
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Wow. Your story just made me stop. I am moved by your young son and your situation.
I'm fairly new to dialysis still - only 5 months. The restless legs drive me crazy!! God bless your little son. I can't even find words to describe the feeling but it's terrible. When I get them, I can't sleep at all. Until I can find something else, I have found oxycodone to work. I don't like taking it and I don't like the side effects but it sure beats the feeling of restless legs and zero sleep.
I will look forward to reading more posts from you about Logan.
I can imagine it must be! His legs kick like crazy until he falls asleep. I'm stopped even trying to cover him up until he's out. The worst part for us is his nausea. Sometimes he gets so nauseated that he will gag if he even sees someone eating. Thank God for his feeding tube!
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:welcomesign; Jessica. Bless that sweet little boy. I believe you have the youngest dialysis patient on IHD and we are so happy you found us. There is loads of information here and when you need a shoulder, we are here for that too. Hope we hear more from you and give your children a big :grouphug; from us. :cuddle;
I'm happy to be here too. From what I understand it's pretty rare to have an infant on PD. He is one of 2 in all of South Texas. and it's a BIG state.
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Welcome, Jessica. I did PD for 5 years and am hoping to get back to it in a couple of months. Feel free to email me on IHD if you have questions. I've never heard of anyone as young as Logan being on PD. Amazing what they can do nowadays.
Hi! And thanks for the welcome! I just may take you up on that if I have any questions. Since having my little one I've even found a few online who started PD a few days or so after birth. We prolonged it as long as we could safely but I could tell he was starting to feel worse and worse. He has his good days and bad days. And he has the happiest disposition. I guess he really doesn't know anything else.
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Welcome Jessica, and give Logan a big hug. It broke my heart knowing that an 11 month has to go through this. Please post often with your questions. We will line up to help you
Boxman,Moderator
Thank you! Big hugs back to all of you guys. My little guy has a one up in a sense since he has no clue what it's like to be "normal," this is his normal. He sleeps through most of his PD. And he hates me taking his temp as much as he does his EPO and growth hormone shots.
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Welcome Jessica! I'm a new member also (well, I joined last year but just posted yesterday). I am new to PD - 2 weeks now but I am 42. It's a new and different world but I can't imagine what it would be like if I was caring for a child doing PD. God bless you!
Hi mama! How is PD going for you? I saw in your siggy you are homeschooling 2. I am homeschooling my almost 8 year old and soon to be with my 3 1/2 year old.
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Hi Jessica,
Welcome - I was reminded of another Jessica when I read your story. Her son Gavin has a similar story and it might be helpful for you to read their journal.
Here's the link to their caringbridge site. http://www.caringbridge.org/mn/gavindahms/
Best of luck to you and your family!
okarol/admin
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G'day and :welcomesign; mate
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PD, feeding tube, epo and growth hormone shots...
...and he's a sweetie. Jess, I hope your little man's life gets nothing but better. Welcome, we're here for you.
Alene and Rolando
:grouphug;
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Your little mans story is exactly why I can't complain. Such a sweetie and dealing with so much. We are so glad you found this site. There is lots of information, but we are really good at support too. This is a safe place to rant, cry or just let yourself go. We also have some good laughs together. We are now all in love with Logan, so please keep us updated. I hope you find some good friends here. :cuddle;
paris, Moderator
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Welcome and I agree with Paris I am getting close to dialysys but, I have nothing to complain about. Glad your here