I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: F.A.Q. (Frequently Asked Questions) => Topic started by: msleeter on January 13, 2009, 02:18:44 PM

Title: Anyone out there with Goodpastures Syndrome?
Post by: msleeter on January 13, 2009, 02:18:44 PM

I was diagnosed with Goodpastures Syndrome in October 2008 and apparently it is pretty rare.  Many of the medical staff I have interacted with have never worked with anyone with it.  Just wondering if anyone else has any experience with it.  Other than the standard information I have found on various sites (and it all says the same things), it would be good to connect with someone who actually has it.

-Mark

Title: Re: Anyone out there with Goodpastures Syndrome?
Post by: kitkatz on January 13, 2009, 02:23:50 PM

http://ihatedialysis.com/forum/index.php?topic=3152.0    Try this link.

Title: Re: Anyone out there with Goodpastures Syndrome?
Post by: G-Ma on January 13, 2009, 04:04:13 PM

Or type Goodpastures into the search line and all posts about it will come up for you to look at.
Ann

Title: Re: Anyone out there with Goodpastures Syndrome?
Post by: Sunny on January 14, 2009, 12:05:32 AM

Welcome to the rare Goodpasture's Disease Club. You are not alone. 1 in 1 million get it and nobody knows where it comes from.
I had Goodpasture's Disease in 2001 and live to tell the tale. You can too. Hope your treatment is going well. I'm happy to answer any questions.