I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Roxanne610 on December 18, 2008, 01:11:01 PM
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Hello everyone
Im at the hospital and they are saying they are scared for my fathers like. he has a blood infection,,,Grandpas cockseye,,,sounds like that...dont knw what it really is called....Can this be caused by his fistula?
EDITED:Topics merged-Kitkatz,Moderator
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Gram positive Cocci, There are Gram positive, and Gram negative bacteria. Just determines the kind of antibiotic it will be treated by. Usually very treatable. Could be from the fistula, or respiratory, urinary or wound. Would definatley be a catheter, if he had one. Not usually a fistula. Good Luck , and keep us posted.
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Yes thats what it is ............but......since he has a liver transplant with a supressed immune system they told us its very dangerous!!!!!!!!!!!!! The do have him on anitbiotics, they are waiting to find out what strain it is....of that
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Hang in there my thoughts are with you and your father...Boxman
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:grouphug;
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Roxanne, you and your Dad are in my prayers.
Nursewratchet, Thanks for your helpful posts.
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Lots of love and :bestwishes;
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thinking of you hun! Hope your dad will be ok!!
:grouphug;
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the doctors say they fear for his life.........levels are dropping they are seeing what strain it is to the Gram positive cocci however you spell it. we have troubles because he has the liver transplant so his immune system has to be suppressed so these antibiotics that they will use can damage our liver were damned if we do and damned if we don't. we are in such dispair if we lose him to an infection that he caught that will be devastating and not the way we should of lost him....any words of knowledge will help.
also his arm is very swollen now down to his hand,,they say it could of been infiltration or the vein is clogged...we are so worried you can even imagine,,,,i cant even stay in my own skin
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:cuddle; :cuddle; :cuddle; :cuddle; :cuddle;
all of us are hoping for the best outcome here hun!
:cuddle; :cuddle; :cuddle; :cuddle; :cuddle;
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:grouphug;
I hope your Dad can beat this. Our prayers are with you.
Alene and Rolando
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:grouphug;
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Roxanne,
we have been exactly in the same situation about what antibiotics to give to kill the infection in the blood which could not harm the liver. Nanay's neph and her liver specialist had it configured. Please have your drs. confer and insist on knowing everything. They gave her a shot of strong antibiotic for 5 days, it's an IV antibiotic, and when the infection had gone done, they started treating her liver, all at the same time. Nanay turned really very green-yellowish in color, bone and skin, but we pray to God, she is all well now.
love,
cris
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We will keep your family and your Dad in prayer for strength to pull through this, and mostly for you the hope to keep positive thoughts. :grouphug;
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Please know that our caring thoughts and prayers are with you all the way. :grouphug;
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Its 12:51 east coast time,,,,,On Thursday nite worrying my head off, we got home from the hospital and are goin back up early morning,,,we need to pray that even though he has so many other problems,,,hep c is active, liver transplant levels are not normal, hemoglobin, white and red blood cells and his kidney failure that he can beat this!!!!!!! His Neph said he is scared for his life!!!!
He is mad he has to be there,,my just told him tonite about the blood infection dont think he knows how serious and right now he just doesnt wanna talk....He had to get this infection because of the times the nurses put the wrong needle in, and the dialysis nurse ripped his taping when he told her not too he had a puddle of blood in his bed. I did go to the Head Nurse of the hospital and told her how reckless the nurses were with him. Causing two friggin open wounds, as I have said what they did in my previous posts....She visited our room changed his dressing said she will be the only one removing his paper tape.....She will investigate the reasons this happened like this and will have an answer tomorrow........ITS TO p*ckING LATE though!!!! I am so mad right now I wanna see the both nurses who did this too and I want an explanation I cant wait to hear what they have to say!!!! Assholes!!!!!This is just so disgusting if we lose him to a blood infection and not for the reasons he is sick.
Words cant describe how I feel,,,its indescribable the hurt you feel,,,the hardest cry doesnt meausre how I feel...
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My prayers and cares are with you and your family.
Keep us posted.
Love, Mmi
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Hey mate
I have tears in my eyes and in my heart
I too am worried
But you know what - we never know
And faith and love is what counts
Lots of love to you, your Dad and the entire family
Lots of prayers and positive thoughts too
:flower; :flower; :flower;
:grouphug;
Oh and for the fuc%#en idiot nurses and staff
:Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik;
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Roxanne, hang on in there. I felt just like you did on Monday, I was too upset and scared to post about it but my Dad too was in hospital (rushed by ambulance) and I didn't think he'd make it to the next morning, but he's home now and although very poorly I can see he is on the mend very very slowly. This too was the fault of the hospital who should have changed his line last week but messed him about and sent him home and I'm so angry about that as well as worried so I kind of know how you feel.
I hope things can turn around for your Dad, I will keep you all in my thoughts and prayers. Don't ever give up hope.
Sending love from one daughter to another :grouphug;
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Roxanne,
Just wanted to check on you before I go to bed. Thinking about you and sending lots of hugs and support.
:grouphug;
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:grouphug;
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THANKS EVERYONE I APPRECIATE IT.....ITS SO HARD...WE HAVE SO MANY THINGS AGAINST US BEFORE EVEN THIS HAPPENING... I will keep everyone posted will bring my laptop to the hospital going early in the morning,,,there is suppose to be a snow storm tomorrow hows that??? Just our luck i have a 2005 Mercedes ML350 fourmatic so we should be safe but it doesnt matter what you have when theres ice.....
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Roxanne,
Just now reading these posts. I feel so very badly for
what you are going thru, and I can just imagine your
anger, and feeling how needless this was!
Please know you are in my thoughts and prayers, as is
all your family.
Also, the weather up north NJ is supposed to be very bad-
plse be very c areful!
Anne
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Hi Roxanne
I'll be thinking about you all day today and of course praying that they can do whatever it takes to get your Dad well. I also want YOU to be super super careful driving to the hospital and back today. I say this especially because of how upsetting the whole situation with your Dad is and I worry that you'll be preoccupied as you drive. Take care girl!!! :cuddle;
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Roxanne - It seems that you are strong. You can help you dad fight for his health. I can tell from what you've written that you are trying to be as informed as possible and to make sure those docs are paying attention and thinking about the options/alternatives. Keep asking them questions -- they are humans too and they can make mistakes. The more questions you ask, the more it will make them think about what they are doing and the less chance they will miss something. I'll be praying for all the daughters and fathers out there today. :grouphug;
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Find out what antibiotic he is on. Make sure they (everyone) washes there hands. As compromised as his immune system, could have gotten this infection from that. Keep asking questions, and keep us posted. :grouphug;
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:grouphug; You & your dad are in my prayers... hang in there.
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Hello,
Thanks everyone....They have him on Vancomycin excuse me if my spelling is off...His fever went down, maybe we caught the infection in time we will just have to wait and see.
His arm is swollen into his hand, they had to give him a morphine shot right in his arm because they said the fistula wasnt working, they are going to see if there is narrowing of the veins and the surgeon who did the surgery is coming in to take a look...Right now the nurse who is in charge of all the nurses (I told you about her Susan) is here changing his dressings..Keep you posted.
ps,,,,he is tiger here trying to get out of a cage....
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:clap;
Sounds good Roxanne. Well not good good but you know what i mean.
And if your dad is still being a tiger i assume that is a good sign as well.
Hope all continues to get bettter for your father.
P&K
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... Staphylococci is the blood infection he has......
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Yes! about the hand washing. Stephen's transplant hospital had signs in every room -- "It's okay to ask - Have you washed?" My husband and my brother-in-law (his donor) had fun with that one, but it also reminded us all to be vigilant.
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Hello,,,
Were home safe and sound the roads were torturous up north..The drs say they want him to stay just to play it safe because his culture is still coming up positive and they wanna get him more dialysis tomorrow neph would prefer them to do it in the hospital because ITS SO SWOLLEN, its not hot to touch and he doesn't feel infection at all, the blood he says is when they take the needles out????? The nurses are more experienced in the hospital and he feels safer with him there for now since the fistula is so young and agarvat ed.
Guys they are kissing our asses up there :sir ken; My father says even the nurses are being more nice they must of got in trouble from the Nurse super,,,I raised so much hell up there and I even got them to give him a private room,, :rofl; :rofl; :rofl; I feel it will help CUT DOWN ON THE GERMS.. Also I found this special tape its silicone lined and skin friendly,,,so they gave us a prescription for us to be able to get it...If anyone is interested let me know and i could give you the information. Thats all the updates I have for now thanks everyone for staying in touch with me and helping with your caring thoughts and valuable information I APPRECIATE IT SO MUCH...
My prayers are with you all..
Love ,,,
Roxanne
xoxxoxxxooxxo
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Roxanne,
your Dad's staphs infection was the same thing my Nanay had. Please check the antibiotic resistance test, if they did it. This is very important for you to know. Closely monitor the regular blood test and blood culture they get. You would know if the infection has gone down on the counts. It may be different with your Dad, but when Nanay had the Vancomycin, it was effective only for some days, but didn't really fight the infection. I called up home and got the antibiotic, Tazocin, which had been really effective with Nanay. Please know that we are of different country, this may not be the case in the U.S., and may not be as effective with your Dad. One effective way that I always beat these doctors is always look up the internet for whatever effects or description of the drug that Nanay was given. You would find out that there is a lot that the doctors, doesn't even care to know about meds. The fistula swelling, it will go down in time, if there is no infection, you should always raise his arm above the head and warm compress also helps. Make sure that the doctors are consulting each other, the neph, the liver specialist, the vascular dr.
I pray your Dad will overcome all this. You are a wonderful daughter!
love,
cris
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Thanks Rose I will definately ask the doctors I know it is taking 3 days for the results to come back and that is the test they are doing. I always know the answer before the question..They are all working together with him,,,I always believe you should be on top of things they are only doctors they are human and make mistakes everyday.. If the vancomycin doesnt take I will ask them about it,, I will mention it before hand though.....
thanks
kisses
xoxoxo
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Roxanne this sounds encouraging that they are getting on top of the infection AND treating your dad properly !!!!!! I am so glad have been thinking about you all day and wondering... so I am glad things are starting to look up at least. Fingers crossed over the next few days!!!
hang in there!!! :cuddle;
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:waving; Roxanne :cuddle;
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:grouphug; to Rose and Roxanne.
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Roxanne,
Thinking aabout you and your Dad and Family = and of course praying for you all
Please let us know how everything is :cuddle;
Anne
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Hello Everyone,,,
My dad had dialysis yesterday and they said his white blood count went up a little which is good they said......They changed his antibiotic to Ancef. His arm is SO SWOLLEN even his hand there is a black there too....The neph says this all due to the face that the fistual is young and new..it just looks soooooooooooooooo terrible....they said it has a good beat to it, the other day they had to give him a morphine shot in his fistula are because it wasnt working? Anyone hear of that one?????????? So far he is hanging in its a day by day thing I guess we are just praying for the best....
Thanks everyone big kisses to all of you for caring so much and being there for me... :grouphug; :grouphug; :grouphug;
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Roxanne, we will keep your Dad and your family in our thoughts and prayers. :cuddle;
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roxanne,
Glad to read about the white count. I have never heard
of a morphine shot into fistula - perhaps someone else can give
you info on that.
My hubby had to have 3 fistulas done, the first two did not take.
I know how scary access issues are with this condition.
As far as the blackness - I would not feel too comfortable with it-
keep asking the Drs the cause and what they are doing for it, also
the swelling
will keep praying for you all,
Anne
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you and your family are in my thou ts and parers . in your time of need . :cuddle; :grouphug; Carol
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Hello,,
I just got home from the hospital,,,His hemoglobin has been low he is going to get another transfusion tomorrow with dialysis. It's so sad to see him so weak. I guess it's a combination of low hemoglobin,,dialysis, liver, & Hep C..............His arm looks horrible,, i took everyones advice,,,, its not hot to touch,,It,has a good beat (so they say) but I felt it today for the first to it but its swollen into his hand...the vascular surgeon came in to check it and he says its fine...I don't know guys he so weak and its so sad for it to be like this and on top of it its Christmas :(
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gee must be serious if they're giving him a transfusion. Is he on EPO as well?
hang in there R.. you have to trust that all the experts are looking at it and proclaim it is OK despite looking horrible... hopefully it will calm down soon and return to normal and your dad will feel better....
:cuddle; :cuddle; :cuddle;
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i am so sorry that you are going through this at this time. My caring thoughts and prayers are with you all. :grouphug; I am really hoping to hear better news very soon. :cuddle;
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:o :o I dont know guys,,,,its so sad
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hang in there Roxanne.. what your dad needs from you most now is for you to stay as positive as you can. Inside you may be scared and your heart breaking but he needs you to be strong and supportive of him when you see him. Remember everyone is saying he is doing ok and improving despite how it looks.... have some faith sweetie.... things will come good I am sure of it!!! I am putting my "christmas wish" towards your dad!!!!
:grouphug; :cuddle; :bandance;
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amen honey, hang in there. I am sure his doctors have seen this before and know what they are doing. Keep the faith and be positive around him!! :flower; for you
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Hello everyone,,
They let my dad out of the hospital,,he hated being there I dont know if this was the best move, but I guess better than being in there with all the germs..He is very weak, today he had another blood transfusion, his hemogloban is low anyone familiar with that? Is that from dialysis???? All his blood work is messed up mainly there concerned with the liver levels...So the drs said dont leave him alone for long, and any diarrea or fever go to the emergency room...Thanks everyone for the prayers and kind words I appreciate it...I wish everyone a peaceful holiday....
You are the best everyone of you ,,,,you are so kind..
xoxoxoxo
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I just hope you have a good Christmas together with your Dad. :grouphug;
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I will try it will be hard,,I guess the best I can have due to the circumstances...
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I bet this is so tough for you Roxanne, but I hope your dad does ok at home and gets some rest.
Best wishes to you! :cuddle;
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Roxanne,
the blood transfusion will make your Dad better. Keep encouraging your Dad and your family. Is he still on antibiotic? He must have improved, otherwise the drs. will not discharge him out of the hospital.
Keep your faith up. Your Dad and your family is in my nightly prayers.
love,
cris
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Hi Roxanne, hopefully your Dad will improve now that he's home. At least he can get some rest. Most dialysis patients have low hemoglobin and are given a drug called EPO. It will usually eliminate the need for blood transfusions. It can take a few weeks for EPO to bring hemoglobin to an acceptable level. Hang in there Roxanne!
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Low hemoglobin is my middle name, have no clue why, epo and transfusions are the constant. Hang in there.
Ann
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:grouphug;
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Most of us have low haemoglobin Roxanne. It's a very common side effect of ESRD. We get Epo and sometimes transfusions to bring it up.
Enjoy the holidays with your family. Not an easy task given the circumstances but I hope you'll try and that you can relax a bit at least. :grouphug;
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agree with everyone re hemoglobin. EPO (or aranesp) is usually perscribed to up the hemoglobin rate. I don't know of any dialysis patient who isn't on it. In the meantime the transfusions should help up his levels and sort him out.
Best wishes to you all for a Christmas spent together and NOT in the hospital!!! :grouphug; :grouphug; :grouphug;
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Hello,,,,,
We had dialysis today,,,,it went welll with the nurses but HE IS SO VERY VERY WEAK...His color is grey looking and his eyes cloudy,,,and I belive jaundice is setting in cause his eyes have a tint of yellow that has to be the Heptatiis C,,,the Dr's are worried that its causing damage to his liver and if the worst case scenario he would need a liver transplant too on top of a kidney Pittsburgh where he got his original transplant said they would do it....but we are so far away from that because this damn frigin hep c is active and u just dont know when it will go inactive , I dont believe anyone would do a transplant with that active....I have to call about our appointment January 5th...see if its worth heading out to... :( :( :(
His legs are very weak too anyone experience that..Not cramps weak where we have to help them walk to the car and has to lift his legs to make them move thats how weak he feels in his legs....Any advice???????
Well everyone try to have a Merry Merry Christmas I wish all of you a peaceful Christmas....
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Hey guys one more thing I wanted to give you some blood results.......Billirubin is 7.4....Which is very bad!!!! Bun is....28. Creatine...... 3.80
There is no need for renal diet those particular levels are fine... Any thoughts feel free....
xooxox
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Roxanne,
Nanay's Billirubin shoot up to 3x the normal because of fluid overload. She was given a "celemine" bath, a liver vitamin everytime she was on dialysis, plus she took maintenance tablets for her liver. Tho, she hasn't been transplanted. When all the fluids had gone down, her liver started to heal, it took months, before her color improved.
I am still praying for your Dad. I can feel you.
love,
cris
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Hi Cris,
Thanks for the email...your in my prayers to...its a horrible thing were going through,,,now your nannay??? Who is that your mom or gradma?
Our disgusting problem is that hepatitis C....Its doing a number on him right now....its at 50 million viral load wich is very high and since its a transplanted liver it will damage it alot faster than our own liver..Im going to start him on Milk thistle (liversupport.com) I had my dad on it 12 years ago before the liver transplant and we had great success on it for his liver levels he had NO JAUNDICE, OR EXTREME FATIGUE, LOSS OF APPETITE it helps protect the liver and speed up rejunvenation of that organ..I saw with my own two eyes how it helps the liver so I am going to start him on that asap, I just ordered theres from that website..From all my research that one has the most benficial properties....
For anyone who takes alot of medicines, advil, any prescriptions drugs it protects the liver from not getting toxic from the RX's...I really wish I would of given my dad it back again after his transplant but I didnt know that the meds he takes damages the kidneys.. :( But its never too late I will tell everyone the updates on the effects..Im confident that it will I know that Germany has it approved for pharmaceutical use...Our country needs to concentrate on more of the cause then just constant medicines...
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Roxanne, Nanay is a filipino word for Mom.
Nanay had 30 million bacterias, it was treated with antibiotics for 10 days and the celemine bath and frequent dialysis to dry up the liver from excess fluids. This one's really slow to heal. Nanay even went out of her mind during that time. Psychologist said because of high imbalances that affects the brain. She was bone and skin.
Surely your love is one great thing that's holding your Dad and Mom. Keep on Roxanne, you are not alone on this.
lots of prayers,
cris
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Phosphatidyl Chloline is very good for liver, just a thought. It is a complex Omega 6 to Omega 3 at a 4:1 ratio is best. Look at BodyBio, you may be able to order online. I had Hep C and it helps. Other than that, lots of hugs to you dear!!
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Hello,,,
Thanks everyone for your comments and help through all this....Today I brought him a lobster tail, (his favorite) ;D had a little little piece of flounder,,a hard boiled egg which made us happy to see him eat a little we have to get his false teeth fixed because that is making him hard to eat also, he said maybe he will be able to eat more with them fixed...
Question???????????? His legs are hard to move no strength in them, anyone know what this could be caused be?
I wish everyone a beautiful peaceful Christmas...xoxoxoxo
:flower; :flower; :flower; :flower;
Thanks for all the support I appreciate it through this scary road were in...
xoxoxoxoxo
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Good to hear he's eating!
His leg muscled may be atrophied..when I was in the hospital for 10 days I could barely walk 50ft without sitting down. The muscles just wear down when we don't use them. As long as he gets walking around surely but safely it should be fine!
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Thank you for your post,,,I will check that out..Yes he is eating little bits which is better than nothing....
Have a Merry Christmas
Thank you
xoxo
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atrophied I just read and omg that scares me if its that, cause it could be caused by kidney and liver disease both he has that can cause muscle damage to the lower limbs I pray its just from the 10 days in the hospital,,,its been two days and no sign of improvement....I will die if its that
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Please don't 'die', your dad needs you very much. My caring thoughts and prayers are with you as you go through this challenge.
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Roxanne,
today at the Christmas Mass, I asked for your Dad's recovery if only because of your overwhelming love.
Eating the egg white of the hard boiled egg will help reduce the fluid fast. Exercise his legs, move it, feeling weak, stiff and wobbly for a while but with your indulgence to exercise it, he will regain his strength.
love,
cris
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Yes Roxanne we're all thinking of you and sending our wishes. I thought of you and your dad today on Christmas. My best wishes for his continued improvement - it is really good that he is eating - even if but little bits... this is a positive sign I think.
I think you need to talk to the experts - the docs - about his legs and see what they say.
hang in there.. it's a rocky road but know you have so many of us on your side!!!! Right now I want your dad to get better even more than I want a transplant call for me. I am totally serious with that wish.
:grouphug; :grouphug; :grouphug;
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Have you ever just sat around all day and then gotten up and your legs were tired/weak? That's really what happens, except after all that time in the hospital the muscles get really weak. It took me several weeks til my legs were "normal" again.
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My brother just told me that the neph dr told him that my dad doesnt have long he said this Monday when they were releasing him from the hospital. I am upset and disturbed by this comment...He is not a liver specialist no lvier biobsy was done,,,Yes his liver levels are going up but if we make him stronger Pittsburgh where he got his liver transplant said they would do a transplant. the kidneys will be fine on dialysis right and he wll get stronger just from that alone....We just have to pray that this hep c goes away and stops damaging the liver, I am putting in on that Milk Thistle.............. Germany has it now in Pharmacy and they use it as a treatment for liver disease and Hep C. This is just disgusting on Christmas I read everyones comments to my mom and we just crying reading all the kind thoughts of everyone...Thanks again...
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Roxanne, i hate that this is your Christmas. We will all die, you and I included, but your Dad's Dr., nor mine know when for any of us. We are all on "the same list", who knows when it will be. Hope you stay positive through the holidays. :grouphug;
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Roxanne,
Please know that I am thinking and praying
for your Dad, and all your family
Please try and stay strong, I do know how
hard that can be. Also, try to stay positive
for your Dad, also your Mom :grouphug;
Anne
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Roxanne, don't give up hope! There are no guarantees, but your dad is a fighter and he has you on his side. The medical professionals won't try Milk Thistle, but you've done the research and you will. Good. It is a double whammy - a treatment and maintaining hope in your dad. And he has his family's support. There are intangibles that doctors don't take into account, you keep right on hoping and fighting. You are doing your best for your dad.
Alene
:grouphug;
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Thinking of you all on this Christmas Day. You are a blessing to your parents. I'm putting all my strongest good thoughts towards your Dad. :grouphug;
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Your dad is clearly a fighter and I feel you've gotten some of that spark from him because you are too Roxanne. He's already been through so much and proved them wrong let's just see how he goes now. I too would be very concerned and upset from the comment relayed to you, but it's an opinion. We need to have hope that that opinion is wrong and your dad will pull through these very trying times. We are all behind you and your dad!!!! Like Nursewratchet said I too am so very unhappy that this is the christmas for you and your family during a time of celebration and joy you are suffering so. I am praying in my heart for things to turn around for you all.
:cuddle; :cuddle; :cuddle;
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Roxanne,
The same way with Nanay, the doctors told us that Nanay may not live that long because of the infection. But we did everything we can, just like what you are doing right now and God had blessed us, Nanay recovered. Be diligent on the laboratory results, how about his urinary tract? I hope it is good. In Nanay's case they found out that most of the virus are also coming from the urinary tract infection. You need to check his urine, if it's improving. With the liver case, the urine is colored a red tea. If the color improves, that means he is fighting the infection. I don't know but Nanay's doctor said, Hepa C's best cure is sunlight and rich vitamin foods. Also, the doctor mention something about an injection that is so expensive. I didn't get the name of it since it will costs us a fortune. One type is 2x injection a month which costs about $300 each and the most potent is $600 injection once a month. Our doctor said this will make the liver healthy. We did not go for these injections, since we can't afford it, we just really took care of Nanay and really watched her labs.
Carry on.
love,
cris
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Thanks everyone,,,I am trying to stay positive but its so hard especially when you see how he is sooooooooo thin and weak,, and what the dr said just makes it so much worst. Today he didn eat much. One thing to about my dad is not a complainer so he will just tolerate anything he is feeling and not tell my mom..He doesnt complain at all he is amazing my dad in how he handles things he just lets the doctors do what they have to do, he has such a will to live its so sad to see him like this....
Guys I left my parents and I just cant stop crying I just feel this is my last Christmas with him and it is heart wrenching the tears can keep up with the hurt I feel inside...My heart is breaking inside from all this I just cry and cry...Its beyond words...Im sitting here and everyone wants to come over and I just wanna be by myself everyone with no real problems makes me sick when they say there stressed...
Thanks again for all your support,,,I need it....Im out of my mind with this...
xoxoxoox
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Roxanne it is very difficult for those of us dealing with, or for our loved ones dealing with, a crippling illness like we are and the concerns of "normal" people are suddenly shown to be so trivial because, relatively, they are. 80% of the time I personally am so happy for such people because they do NOT have to suffer with or see someone they love suffer through a horrible situation like that. The rest of the time I am envious that their life is so rich that their main complaint seems so trivial to me. However everyone's situation is different and I try very hard to not judge others by my own standards. Consider that someone whinging about something aparently trivial may not be telling the whole story, or they may have other concerns they are not letting on about - sometimes you just don't know.
One other thought Roxanne... you have friends who want to come around and show support to you. That's something to not be sneezed at. I totally understand you feel so desperately helpless and sad in this situation - and that you want to be alone to try and deal with it. That is OK. Just remember that at least you do have people who care enough about you that they want to show some support. Some people don't even have that in their lives.
This may or may not be your last Christmas with your dad. Maybe his struggle is nearing an end or not. I do not know. I DO know that at this point the goal should be what is the best for your father and what HE wants.
Thinking of you and sending best wishes.....
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Hello its 3:50 am cant sleep thank you for your post....I'm trying to be strong and then reality hits and its so difficult....Everyone one knew when I called my aunts I guess they didn't wanna tell me,,I guess they knew how I would re-act...I just feel horrible and I guess I need to gain my thoughts I have no idea I don't even know how I am suppose to feel...
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I wish I had some words to say, some of encouragement, wisdom, or guidance, but I have nothing that comes to mind. I hope the neph is very wrong and that the transplant center gets more involved with your fathers care.
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thank you Chris,,,its the Hep C thats causing havoc,,,Kidneys can be compensated by dialysis, but when you have hep c that is so active and is doing havoc on the new transplanted liver its very very hard...But I'm keeping positive by getting Milk Thistle I'm not giving up I will fight till the end...
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I too have no words of wisdom but............
my heart is full of hope and love for your Dad, you, your Mum and the entire family
Yes it does SUCK that at this time of the year or bugger that any time of the year this shit happens
Just know that I and everyone else pray for you all
I don't know what else to say but :grouphug; :grouphug;
HAVE FAITH :thumbup; :thumbup;
EDITED:Moved thread to general discussion area-kitkatz,Moderator
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Hi Roxanne. I know it is hard but my Dad came back from similar infections time and time again. They were always saying there was no hope and then he would come back around again. That went on for years and years. In the end my father chose his own time and he went very peacefully and at a time where we were ready to accept that he was ready to let go. If your Dad wants to fight then I am right there fighting with you. Lots of love, Cindy. xx
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Roxanne is there any updates on your dad??? Been thinking about you guys and hoping all is going OK with the struggle...
:grouphug; :grouphug; :grouphug;
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Hello,,
The only update is that his bilirubin is at 10.1 Which is very high...the range is the highest it should be is 1.3...So we are in trouble with that one...I am calling the drs tomorrow and I should know more...Hope everyone is well,,,I think of all of you everyday,,,its just amazes me how nice all of you are..... :cuddle; :cuddle; :cuddle; :cuddle;
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Thinking about you and your Dad Roxanne. Hope things will soon improve.
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:grouphug;
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Hello,,
I just got back from the emergency room, my mom called me hysterical 9 am this morning my dad fell, he was putting the heat on and then tripped on the piece of wood that divides the room doorways,,,He hit his head on the floor and gashed the top of his hand on his dialysis arm..... :( :( :( :( Does it ever friggin end what the heck like my poor father doesnt have enough...
They didnt do stiches it would just tear his skin more...so they did butterfly ones..I feel so bad and sick to my stomach I could throw up :puke;...He couldnt even make it up the steps when he got home, his side is hurting now from the fall to another thing to make him feel worst...
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:-(
:cuddle;
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Oh Roxanne, I'm so sorry to hear this latest. :grouphug;
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:grouphug; Poor Dad. :(
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Hello,,
I just got back from the emergency room, my mom called me hysterical 9 am this morning my dad fell, he was putting the heat on and then tripped on the piece of wood that divides the room doorways
This just tells me how strong he is......the driving force which you have inherited....
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Question,,,
The hand that he hurt was all swollen and now it went down seems that the laceration skin tear released fluids so his hand is not that swollen.?????? Dont know if that is good or bad?
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It really is so hard to see those we love suffer, but he is lucky to have you to care about him...................I hope things improve for him (and consequently for you), you are always in my thoughts, as daughters we are so used to our Dad being the strong one, now it's our turn. Keep your chin up (as we say in the UK) :grouphug;
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I wish your Dad would get a break. Hope you had a nice Christmas with Dad.
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:grouphug;
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Skin color is a good indication of circulation.
Also, can he feel his finger tips? Or no numbness?
I should also explain my earlier post. Your dad still has
the wherewithall to get up and move. He may have
hurt himself, but he still wants to do stuff. How
is Dad now?
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Dad is sore he is home we are all feeling bad that he had to go through this and he had to endure pain on top of being so sick..Its sad..
Thanks everyone...
xoxoxo
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it's good that he's home around people who love him and care about him rather than at hospital which I am sure you all are well and truly sick of!!!!
I will have a (small) toast to you and your dad tomorrow night (NYE) with best wishes for a much improved 2009!!!! :grouphug;
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Hi Roxeanne, My thoughts are with you and your family as your dad goes through this difficult time. I wish him and your family nothing but a smooth recovery and much happiness in the new year and beyond! One thing I can tell is that he is very fortunate to have such a loving and caring daughter. It's been a struggle and ordeal for you but he has beniffited from your attention and hell-raising at the hospital. I hope things are getting better. :grouphug;
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Hope things are looking up a bit. Hope to hear some news soon. :grouphug;
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Roxanne,
Please know I am thinking and praying for your Dad and all of you.
I hope he is doing better -
Anne and Les
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Wish there was someway that someone or something could help your dad. An old phrase comes to mind, but people like us know that there is another side to it, "It can only get better". I wish that was 100% true.
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I hope your Dad is doing better! He's in my thoughts and prayers. :cuddle;
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Hope the new year is better for your dad and your family.
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I hope being home is good for all of you and you all can get some rest. Sending good wishes to you. :cuddle;
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Hello Everyone,,,,
Havent been on been in the dumps since New Years,,,New Years Eve really depressed me... He missed dialysis today he was too sore from the fall. The drs said no pain pills but my mom gave him one percocet he never takes pills never ever..but hes in pain hes sore..I ran around for him to get him a comfy pillow for dialysis dont know if this theraputic pillow will help it molds to you but it seems a little hard, just in case im gonna go get him a feather pillow will help.... Any suggestions to help him get comfy when he sits in the dialysis chair???
His spine bone ends up hurting after sitting in that chair cause there is no fat padding on his back since he is so skinny :( I ran today got him Linguini Bolognese he didnt like it,,but then I ran and got him gravy fries and he ate them with pink lemonade,,,he has a thing for pink lemonade. Its soooooooo sad makes me sick to my stomach when I get home,,I stay so strong around him then it hits me always on my way home...he said to my mom last night cause he had a bad nite up and down up and down restless,,,and he said to my mom I dont think Im gonna make it,,and my mom says noooooooooo this is the way your gonna feel,,Roxanne talks to everyone and its the same with all the people she is talking to who started dialysis...I dont know guys I wish this hep C would go into remission we might have a shot but i dont know whats gonna happen..
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I ran around for him to get him a comfy pillow for dialysis dont know if this theraputic pillow will help it molds to you but it seems a little hard, just in case im gonna go get him a feather pillow will help.... Any suggestions to help him get comfy when he sits in the dialysis chair???
His spine bone ends up hurting after sitting in that chair cause there is no fat padding on his back since he is so skinny :(
Rolando has had great success with a Waffle Cushion from EHOB for his wheelchair. It is an air cushion - there are other similar things but nothing else has been so effective. They make a full size cushion for chairs like a dialysis chair. You can search EHOB online and call them to place the order. The best day is a Monday. You should receive your order by week's end. PM me if you would like more info.
(We tried pillows, gel pads, a very expensive therapeutic pillow which also seemed hard. Nothing has been so effective as this EHOB Waffle Cushion)
Your dad (and you) is having such a hard time. I hope you can find a way to soften the edges.
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Hang in there Roxanne. He's eating and that's good.
Have the docs given him diet recommendations? He probably needs some protein if he is on dialysis. I think that would be important for helping him to keep up his muscles. Ask about eggs or beef, or maybe get one of the special protein drinks made for those on dialysis (the dialysis clinic can give you the brand, or someone here can chime in as I've forgotten the names).
I think you need a hug :cuddle; because you have been through a lot. Here are some for your mom and dad, too :cuddle; :cuddle;
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Gee Roxanne if someone could come up with a way to make those damn Dialysis chairs comfy they'd be on a bloody goldmine!!!! I'm 38 and relatively healthy and non-sore and find them a pain in the... everything to sit in!! Even when they get new chairs in they still suck - so I totally sympathise with your dad and the problems he is going through.
One thing I really must stress here that I think is vitally important for your dad's health... you said he missed Dialysis because he was so sore... really this is not good for him (I am sure you know this). The more he misses the more toxins will accrue in his blood and the more stres it will put on his body's systems which are already overstressed with the liver and hep C stuff. I'm sure the unit and whatever have told you guys this but really even if he feels horrible he should not miss Dialysis if at all possible. I've not missed one session in 2.5 years because I know how important it is to keep regular dialysis going. Heck we get so little in comparision to what our kidneys need every little bit counts (and that's what I tell myself when I enter hour 4 of 5 and I so want out!!)
I hope people's pillow suggestions help. I take in 2 pillows in addition to the supplied pillow (and I take a blanket too). I use a firmish one for my pack, and I use a softer one for my backside so I sit on the pillow rather than the hard chair. I seems to help a little. It's quite funny the nurses see me bring all my stuff in and one time they said "Are you all set to go Camping?" :yahoo;
Thinking of you and sending hugs :cuddle; :cuddle; :cuddle;
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hey richard u up wanna calll me
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Hi Roxanne...I'm so sorry your dad is having such a rough time. You are such a sweetheart, it makes me cry. I have found just sitting on a thick foam pad really help the d chair. Like Richard said, protein is really important for d patients. Ask the neph or nurses at the unit about Nepro. It is a protein drink especially for dialysis patients. It really helped me when I first started d and I still drink a can a day.. You and your Dad are in my thoughts and prayers.
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Hello,,
as you see im still awake,,,he is on that and protinex in a tablet...we are getting his teeth fixed Monday he says maybe he can eat more,,I hope and pray he can this is sooooooooooooooooooooooooooooooooooooooooooooooooooo sad there is no words,,im so sorry for all of you that have to suffer like this it is so unfair....
love you all
xooxo
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Hi Roxanne,
I am sorry it's been so hard. I remember my mother-in-law could barely eat, but she seemed to enjoy tapioca pudding so we got her as much as she wanted! I'm not sure that's on the renal diet, but sounds like he needs some tasty, fattening stuff. Best wishes for better days.
:cuddle;
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Sorry Roxanne I had to log off and walk home from where I was lol.
I just had a thought that karol reminded me of. When my mother was in hospital and was barely eating also and they had her on these icky Enlive (I think that's how it was spelled) drinks full of nutrients... what we did was make a few dishes that she liked... my brother does a Penne she loved and her partner made these potato things she loved... so we'd take those in and she'd eat that. Maybe if your dad has some favourite dishes that you or your mother or someone else makrs, or you can buy, it might induce him to eat a little more.. Say if there's two or three things he really likes you could maybe take turns (so there is some variety)... also be mindful of course of the renal diet so not too much potassium etc (maybe a word with a dietician might help) but I guess at this point anything to get him to eat a little more would be a bonus I think.
Hope that helps a little. :cuddle; :grouphug;
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How about Suplena protein shake (for renal patients), ice cold, sipped through a straw. :grouphug; Roxanne.
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Protein is the BIGGY for dialysis patients, and especially with HepC. The Hep has a tendancy to delete the protein. There is a liquid protein you can add to anything he will eat or drink. You can put it in the lemondaid that he likes, or anything else for that matter. He should have about 75 grams of protein per day. Talk to the dietician, should be able to get you a liquid.
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Hello,
Thanks everyone,,,my mom has the suplena I dont know why he isnt drinking it though..He is on a protein pill Protinex... Just got off the phone with my mom he doesnt wanna go to dialysis again,,he says he is in pain,,his side hurts probably broke a rib from the fall for him to complain he is hurting badly..
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Thanks for the hugs I need them.... Now my dad is still peeing my mom called the dialysis center and they said to watch out for shortness of breath,,if any go to the hospital...He told my mom you dont know how I feel.. What happens when you miss dialysis I mean say just for an example someone is sick with the flu cant get out of bed what do they do? Just curious..
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Here's a thread about missing dialysis http://ihatedialysis.com/forum/index.php?topic=4847.0
I hope your dad is getting some pain meds. Be careful of constipation if he is.
:grouphug;
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If he HAS to miss, be careful with his fluids. Give him whatever he wants to eat, though he may just not feel like eating anything at all, and that is ok too. Food is a "nurturer", it is our nature to feed when someone is not feeling well. His body will take in food when he can tolerate it. This is a hard time for you all, but you are doing a great job. :flower;
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Roxanne, PLEASE don't take this in a bad way, but here goes. Since your Dad has HepC, as well as renal Failure, he could go on Hospice Care. He could still go to Dialysis. It doesn't mean he "is about to die". It means he would have access to either by phone call, or by home visits, RN care, assistance with personal care, as well as Social Workers. It is exceptional care and extra help for you and your family. They would be a wealth of info and care for you all. I used to be a Hospice Nurse, and MANY times took care of someone through a rough patch, only to discharge them after they were better. It is not always for terminal care. Hospice is the best resource for caring for , and educating for symptoms. Either way, I know you are taking THE BEST care of him. :grouphug;
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Hospice care could be very helpful now. It is a difficult topic and I am glad nursewratchet brought it up. Roxanne, you may want to ask your dad's doctor's if they feel it's necessary at this time. Hospice can provide care and comfort and the support for the family is also incredible. It it isn't necessary for him to have hospice the doctor's will let you know.
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Hello,,
Thanks for the comments,,I never knew hospice was for that also.. My mom is taking care of him,,,he just is in a tough spot due to his fall..He was alot better before that. He is just so sore from ii,,,he was weak prior to it and now the fall just made it worst....He ate a little bit yesterday tomorrow we are going to get his false teeth fixed we are hoping they can fix them so that he will be able to chew,,with no teeth its very hard to eat anything. Im gonna make him some rice and beans he likes that,,,and I think it will be easy to eat.
They still have him blood cleaning in dialysis ,,,he still pees so they said to just watch out for shortness of breath...He will go tomorrow for dialysis he has to,,im hoping to see an improvement when I go by there today...
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Yes the shortness of breath would indicate fluid overload (fluid around the lungs etc) and that would not be a good thing. It's good he still pees that would help with what little he's drinking, but it's important to watch the fluid levels and check for swelling in ankles etc.
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Still thinking of you... :grouphug;
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Just to let you know that my caring thoughts are still with you, your dad and your family. :cuddle;
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Hey guys, I just got home from the hospital its 515, my brother stayed with my mom he's gonna leave in the morning I came home so I can drop off my aunt...BAD BAD,,really bad news.... :( :( :( :(
We finally got my father to dialysis today what a struggle he could hardly walk and was moaning the whole time,,,which is not my dad he is tough I saw him go through a transplant with no complaints So he was in serious pain...His stomach hurt on the way to dialysis and just got worst which we thought maybe the ribs from the fall. So we rushed him to the emergency room right from dialysis. His dialysis was cut short 20 minutes cause he moved his arm and he was bleeding all over...So our neighbor got the ambulance and was able to take up to Livingston the hospital he always goes too...
Well they told us that his liver is enlarged and lots of fluid and in his chest,,,due to liver failure his ammonia level is starting to climb up and on top of it he has pneumonia in his right lung.. They gave him a pain shot and when he woke up out of it he was really disorientated...I drove home in a fog like im in a bad bad dream and this is not happening to my dad or my family....I dont wanna lose him I love him so much and it is killing me inside to see him so sick. Today when they did the EKG I saw him with no shirt on and he looks anorexic hes emaciated it is so heartbreaking that this is my dad he was such a strong man and now he cant even walk and hardly talk...Guys im soooooooooooooo upset,,,my mom is devastated my brother its terrible..
I wanted to post to you guys sooner but for the last days before this I was in a state of depression so you can imagine how I am now...
I will keep you posted I will take my computer to the hospital tomorrow
Hope all of you are well,,
xooxox
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Gee Roxanne that's really tough for you. I'm so sorry. Unfortunately the build up of fluid is one thing that worried me about him missing dialysis the other day. I hope they managed to take SOME off during his session, though it sounds like there was still a lot there if they checked him when he went to ER afterwards. It does all seem to be mounting up against him I'm afraid. Let us hope the folks at the hospital can do something to at the very least alieviate his pain and suffering while he struggles.
:grouphug; :grouphug; :grouphug; :grouphug;
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PS..........Any input will be helpful regarding the fluid and the enlarged liver, if you dont remove fluids as they havent in dialysis saying there is none,,,could this back up into your liver and chest,,,and also cause pneomonia,,,if anyone has experienced this or knows please let me know..if the doctors dont feel as if it can i want proof to show them...
thanks
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Roxanne, I can't offer any insights on the symptoms. I am sorry that your dad is suffering. I hope that he will pull through. It seems that right now it is very important to make him comfortable. Were you able to ask about the hospice care? I'll be keeping your family in my thoughts and prayers today. :grouphug;
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Roxanne, I'm so sorry for ya'll, we know how hard this is. If his Ammonia levels are climbing, he will start to be confused and disoriented. That is normal. Also, they can get more fluid off if they give him some Albumin with his dialsysis. It is a liquid, infused during treatment. It will cause fluid to "shift" from spaces that it shouldn't be in, to the vascular system, so that it can be removed. Ask them about it. I wish you would ask about Hospice, it would really be a help to you all. Keep us posted.
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Roxanne, I can't offer any information, but I just wanted to let you know that I am still thinking of you and your Dad. :cuddle; :cuddle; :cuddle; :cuddle; :cuddle;
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Hello,,
I told my mom about the nurse we are definately gonna have to do something when he gets home if he is not mobile...Today was a very hard day beyond words...He was very emotional today I walked in the room from getting him ice water,,my brother my mom were in the room and all of a sudden the lights were off. I said whats the matter? My brother whispered he's crying,,so I walked over to him and put my hand on his shoulder and said Dads whats the matter?? He said Rox I dont want you guys to be sitting here worried about me its not fair, I love you all too much I dont want you to be worried about me. I said Dad we love you and you would do the same for us. My brother and mother walked out of the room sobbing,,I held him and said Dad your going to get better you will see...He said Rox I dont wanna die I said your not gonna die Dad you just have pnemonia and we caught it in time...He was sobbing and saying how he wasnt a good father,,I said what are you talking about look at me and steven we are who we are because of you and we love you so very much your the best father anyone can have!!!!!!!!!!!!! He said look at me I cant even look in the mirror do you see what I look like???? I cant even do anything for myself,,,, I cant I was just holding him the whole time crying with him...as im crying right now reliving it...This was the sadest and hardest thing today that I had to go through with father.. This is such a hard thing to go through I dont wish it on my worst enemy there are no words to see your father suffer and to be so sad....Were in the hospital and sleepin here my mom and me are laying on strechers where I wish they would wheel me away put me in a room and medicate me,,the pain is so hard that im feeling right now I wanna jump right out of my skin....
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*tight hugs for you Roxanne*
not sure what else to say at this point. It is obviously very painful for you and your dad (and your family too). Your hope will help I am sure. Hang in there you are so dedicated and loving and whatever happens your dad knows this. Remember you have and are doing all you can for him. Nobody could expect or ask for more.
:cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle;
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I'm so glad to hear that you are able to talk to each other. When going through something like this communication is so very important in a family. I pray for strength for you and your family.
Ann
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:'( I am crying with you - watching someone we love suffer and then feel like a burden on top of it all is so difficult. He's lucky to have a loving family.
Sending prayers and love your way Roxanne. :grouphug;
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Roxanne,
Thinking and praying for your Dad, you and your family!
Many of us here have been thru very difficult times, and your
pain and nervousness is well understood. Please know you
and yours are in my thoughts and prayers
Anne from NJ
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There are so many things to say and complain about doctors, but I digress. Sorry to hear how things are going with your father in the last week. I hope that he will improve.
Try to get some rest and relax, even though that maybe hard.
Chris
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Oh my dear mate
It is so heart wrenching and I too have tears for you, your Dad, Mum and bro
It makes me think of my Dad and how he is coping - it rips you apart
I have no words of wisdom but to say
I know exactly how you feel. Watching our Dads suffer sucks
There are many days that make me wonder WHY but then I find strength to ensure that my time with Dad is all it can be.
It is extremely hard to see our loved Dads cry especially when they have always been the ones who were strong and there for us when we had problems, fears etc.
Please cherish everyday with your Dad, share the tears, laughter, love
I have faith that your Dad will get better, just like my Dad
It's friggin hard but you and your family, and especially your Dad are strong buggers
Lots of love to you all
:flower; :flower; :flower; :flower;
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:grouphug; :grouphug; :grouphug; Roxanne
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:grouphug; :grouphug;
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:cuddle; :grouphug; :grouphug; :cuddle; :grouphug; :cuddle; :grouphug; :cuddle; :grouphug; :cuddle; :grouphug; :cuddle; :grouphug; :cuddle; :grouphug; :cuddle; :grouphug; :cuddle; :grouphug; :cuddle; :grouphug; :cuddle; :grouphug;
:'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'(
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Hi this is not Roxanne. I am her Aunt. She have me her sign on so I can read everything. I had to respond to all of you because you have been so wonderful to her. Let me tell you about Roxanne. Not only is she the most caring, loving daughter which goes beyond words, but she is the most caring person to all she loves. And as she has said to me..."When I love, I love with all my heart." What daughter would take her Dad to China with her on a business trip. She has such a wonderful memory of their time together, as well as her Dad.
Roxanne is my niece and I don't know how I would have made it without her. I lost my almost 18 year old daughter 14 years ago and she was there for me hook, line and sinker. She called me continuously, visited me, took me shopping etc. Just to get me out of the house. I love this girl with all my heart. Steve, her dad, my brother in law is the strongest man I have ever met not to mention kind and loving under that tough posterior. He is the brother my husband never had. Our whole family is affected by his progress or lack of. We are all heart sick with emotion. Arlene, Roxanne's Mom is like a sister to me and it breaks my heart to have them go through this. They are the most caring group of family and I am so blessed to have them in my life. I struggle every day but this isn't about me.
Keep Them in your prays...Arlene, Steve, Roxanne and Stephen. I don't know how they will get through this. Arlene has been a care-giver to her mom, who has died at 57 from cancer, Her father in law and Steve her husband of 44 years. (Roxanne's Dad.) Not to mention to me...to help me through my depression as well as Roxanne who I love like my daughter. You can only read her words...but I see the torment in her eyes and hear it in her voice.
Blessings to you all. I just was compelled to write.
Paula...Roxanne's Aunt
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Paula, thanks for taking the time to tell us more about Roxanne. It's so nice to hear of your family's mutual support of each other and I had already guessed at Roxanne's loving, caring nature. My thoughts and prayers are with you all as you navigate this painful, stressful time. :cuddle;
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:cuddle; :cuddle; to Roxanne and her family :cuddle;
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:grouphug; Thank you for stopping in Paula. Prayers are sent.
Roanne, we know you're a special person and a wonderful daughter, how nice of your aunt to tell us even more. Take care. :cuddle;
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Paula and Roxanne, you are blessed to have a wonderful, supportive family. I will continue to hold you all in my thoughts and prayers. :grouphug;
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Hello everyone,,,,
Thank you so much for your support,,,I know there is not much to say I wish there was....My brother, Me and my mom are on like no sleep for the last two days we will not leave him, we are sleeping here at the hospital with him, the weird thing is we have energy, its amazing how the body works...
The liver doctor feels that his time is coming to an end,,,he is too weak to fight this hepatitis C disease,,,it has emaciated him guys,,,to give an analogy its like having aids thats how sick he looks,,or terminal cancer DISGUSTING TO SEE HIM LIKE THIS. If I had my wish I would switch with him give him my life,, I have had a good life, healthy, fulfilled and great parents I would want him to live healthy and enjoy life the way he should have he was cheated out of life being sick since he was so young and to have this be the end result is sad.
We have to make a decision with dialysis,,should we put him through this if it doesn't matter, is what were faced with right now...They are extracting fluids they feel the fluid in his stomach is infected. So now he has pneumonia, staph, and this infection that they cant extract any fluid to test it cause its too risky with the platlets at 50. We had a hard time in dialysis today when they just took the needles out it took awhile for him to stop bleeding, and he was in pain today just laying there its becoming too much for him to lay there since he is skin and bones, he was in pain them just putting pressure on the area where he got the needles.
Were gonna see what the nephrologist says tomorrow he is gonna have a talk with us, what I would like to do is see what happens when they take the fluids out the infections go away and see if he is in any better shape. If the liver failure is doing this then of course we would rather him not die from liver failure which is a horrible death anyway you look at its a horrible death..
Keep you all posted....Again ,,,Thanks for all your kind words...
:( :( :( :( :( :( :( :( :( :( :( :( :( :( :( :( :( :( :(
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:grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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Roxanne, first off I am sending many hugs because you surely need many right now. My grandmother died of liver cancer. It was twenty years ago, but what I think I remember is that as her liver failed, her pain went down. I have always thought it was because the body essentially narcotizes itself because it cannot clear toxins. Someone who has better medical experience should weigh in on that. I know you do not want your dad to be in pain and I know that this is a very difficult time. I will keep you in my thoughts and prayers. Linda :grouphug;
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Roxanne I feel for you, my husband died from cancer and I know how very hard it is to see someone you love suffering terrible pain. Morphine tablets and patches didn't work and they eventually gave him a morphine pump which meant he was not in pain as long as he wasn't moved, but it did seem that despite the fact we are told "no-one needs to be in pain" it is very hard to overcome totally. Perhaps they could try a pump for your Dad?
I pray that your Dad will recover from this, my own Dad has been close to death several times (I can't count the times we have had to travel 90 minutes to the hospital after they sent for us to come quickly) but has come back when it seemed impossible. Never give up hope.
Your neph will advise on whether dialysis is worthwhile and I hope he says it will help - in the meantime all you can do is be there for your Dad, stay strong for your Mum, love one another and pray that he gets through this.
We are all here for you and I hope that having this forum to pour out your deepest and darkest fears will help a little.
Sending you love to help support you at this heartbreaking time. :grouphug;
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Dear Roxanne... you know we all are here for you... as much as we can be. :grouphug; :grouphug; :grouphug;
As I said to you in msn earlier while you all struggle with decisions and dealing with this don't forget to include the most important person of all in this process.. Your Dad. Ask him what HE wants and how he feels about it (I know he feels lousy...). Remember that ultimately it is his decision and while it may be heartbreaking for you whatever he does decide your support is what he needs most of all now... because you're giving all you can .. and more.
You have my number if you need me to call .. just let me know :grouphug;
To Paula, thank you for your very passionate support of Roxanne and the entire family. I think those of us who have "known" Roxanne for a relatively little time sure know how much she loves and supports her family and specially her father. She's indeed a very special and wonderful person who I've spoken with a little bit online and am pleased to get to know her.. Well not under these stressful circumstances of course but this is where we are.
I join everyone here at IHD in sending our prayers and love to Roxanne and support for her dad, mom and brother at this very difficult time. Best wishes there can be some sort of miracle and he can get through this!
:grouphug; :grouphug; :grouphug;
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Love and hugs and prayers for you all! :grouphug; :grouphug;
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The important thing to remember is to keep your Dad as comfortable as possible. It is important for your Dad to make his own decision, and what ever that decision is he needs to feel like he has all the support of his family. If you are preparing for the worst, make sure you tell him it is OK to die, and let him know you will miss him terribly, because he was the best Dad in the world. Then just being there is enough. If this is where things are at then it is important to communicate with him. When my Dad passed away it seemed like he just kept holding on despite the pain until I reassured him that I would watch over my mom. This is a hard thing to talk about, but it may be the time to be thinking along this route. Have they discussed hospice care yet? If I am thinking too fast for you please except my apology, I just know you would want to know the right thing to say and do.
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Paula thank you for the thoughts on your family. You all are blessed to have some many loving people to surround yourselves with. May you feel the peace of God knowing He is with you always.
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Sluff... I thought that was a great post you made with some important points.
Roxanne I hope you're doing OK... our thoughts are with you! :grouphug;
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Roxanne, I hope I am not nagging, but I URGE to get some help from Hospice. the knowledge from pain management alone will be invaluable, it's the specialty of Hospice. Ask your Dad what he wants to do, talk to him, and assure him that you will be OK. Make him know that you will help take care of the rest of the family. He will need permission from you, and the family to die. Let's all hope and pray that this is not what is happening, but if it is, you need to help him to "be OK" with it, even though it will be the hardest thing you ever do. He will have a very hard time of it, if he is worried about you and the rest of the family. It will be a gift you will always be gald you could give him, and it will help him tremendously. You are a strong person, and even though you don't feel like it now, he needs this from you. If it is not time for him to die, and he recovers, then he will just see how strong and capable you are. This is hard. I wish I could be with you and help you, and I can't of course, so I am telling you what I would tell you if I were taking care of him. Talk to him until his last breath, even if he doesn't respond. He'll hear you. I'm sorry if I'm to forward, but we have to do this. :grouphug;
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First of all do exactly what your dad wants you to do. I and my sons (his stepsons) sat with my husband for 3 days in the hospital after he could no longer speak and was on morphine everytime he showed pain. The first 2 days the boys took turns holding him in their laps, cuddling him and I constantly talked to him and the third day I put my head beside his on the pillow and told him it's ok to go on and be at peace and 30 min before his last breath he opened his eyes, looked at the left corner of the room in front of him and "demanded" you take care of her, inhaled and died. I firmly believe he was talking to angels sitting with us and my son and daughter in law believe he was talking to them and it hurt like hell but we did exactly as he wanted which was to let him go and that gave us more peace than anything. Please please talk to hospice. They can also help all of you so much.
Ann
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Hello Everyone,,,
Thanks for the support right now, Today the neph told us he feels the peritonitis in his stomach is coming from a tear in his smal bowel due to the bacteria culture..Everything is breaking down...He doesnt eat...if he does its very very little a couple mouth fulls...We asked him what he wants to do tomorrow with dialysis,,he said he doesnt wanna go the neph and us told him thats ok you just rest and we will see if your up to your Monday session. I think we are both playing a game he knows an doesnt wanna verbalize it and we know and we dont either...THIS IS THE HARDEST THINGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGGG,,,I JUST WANNA SCREAM AND JUMP OUT OF MY SKIN....I CANT HANDLE HIM KNOWING HE IS DYING HE THINKS IM SURE ITS JUST THE BLOOD INFECTION THAT IS SERIOUS AND THE PNEMONIA,,HE HASNT ASKED ANYTHING REALLY...SO WHO KNOWS WHAT HE IS THINKING ONLY HE DOES...We will just take it day by day it is too much to bare to think any other way and as long as he has the will to fight we will too but we will make sure on thing that is for sure is that WE WILL NOT BE SELFISH AND MAKE HIM SUFFER...We love him too much to do that,,he has suffered and has been sick with this for too long...My cousin who is a dr is coming down from pennsylvania and he will be able to give his dr opinion plus love that he has for his Uncle Steve and help us through all these decisions..
Right now we are just here for him he doesnt wanna talk or be touched he closes his eyes and makes belive his is sleeping so we wont bother him right now just be there and let him know we are here...I know how I feel and I cant imagine how he feels and how scared he must be...Im sure he feels and knows but right now we are not verbalizing to each other
We spoke about hospice the neph suggested it and guys im not insulted please dont feel that way,, I appreciate all your help and I to wish we were all closer.....my mom had a hard time with it and said no I will take care of him and I said mom we will be right there with you and we will take care of him,,, but I think it is good idea we get a hospice nurse to help us through this horrific time..She will help manage his pain amd I heard she will offer us emotional support..So we are going to do that if he gets to come home...
Will keep you posted its a day by day thing,,we are staying here every day and every nite and will be right by his side everystep of the way....
xoxoxoxoxoxo
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:grouphug; :grouphug; :grouphug; Sorry it's so painful Roxanne, when we love someone there's just no easy way out.
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:grouphug; :grouphug; :grouphug;
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:grouphug; :grouphug; :grouphug;
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Lots of love and best wishes to all mate
:grouphug; :grouphug;
Stay strong
:flower;
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:grouphug; :grouphug;
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Roxanne, Hospice can come to the hospital as well. If he needs to stay there, they can help him there. If ya'll want him home, they can get him there, and take care of him at home. They will probably have an incenter hospice, that would be much more family freindly than the hospital. Talk to them and see what your Dad wants. He may want to go home. Your doing better than you think you are.
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:grouphug; :grouphug; :grouphug; You need to stay strong for your dad and your mom and you are doing a great job of that. I hope that somehow through all of this you will also find a few moments to breathe deeply and maybe get some sunshine if you can. That would probably be good for your mom, too. These are very difficult times for your family. :grouphug; :grouphug; :grouphug;
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:grouphug; :grouphug;
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:grouphug; To you and your family Roxanne. :grouphug;
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Hello,,
I just wanted to check in I have been sick with a virus siince Friday...Throwing up :puke;..............They gave dad a pump with pain meds of diludid...He can get them every 1/2 hour... He is trying to fight this which makes it so sad...Despite what the doctors say we are gonna keep fighting with him and maybe by a miracle we can beat it I know not forever but at least so we can have him for a little longer... :( :( :( Its his birthday on the 22nd he will be 66....
Tomorrow were gonna hope to get dialysis what were gonna try is to give him pain meds periodictly through it so he is comfortable ,,we want some fluids to go away...and scared if we stop and something happens so we will see tomorrow if he is not up to it then at that point we will have to see what were gonna do..
I will keep everyone posted any thoughts let us know
xoxoxo
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Thanks for the update Roxanne. You Rox.
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:grouphug; :grouphug; :grouphug;
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As long as he wants to fight then you keep fighting along with him :grouphug;
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Roxanne I am concerned that now you are sick - most likely because you are running yourself into the ground caring for your father - being there 24/7 etc.. which is a wonderful thing and I do not want you to think I am having a go at you for being so loving and supportive.. but you'll be no help to your dad (or mom for that matter) if you push yourself so much that you become a patient also!!! You need to look after yourself as much as you need to be there for your dad. Remember while he's in hospital it's the staff's responsibility and task to give him the best level of care they can.
One thought also comes to mind, and this is difficult I know... but I must say while your dad wants to fight this is great and he should get every support with that but at some point he may just say enough is enough. When you consider the life he's leading right now which contains pain and struggle sitting in hospital etc. That's not fun for anyone. It may be that a point is reached where HE may decide this isn't the sort of life he wants. I know that thought may upset you but you should be prepared for this sort of thing and remember to support him with whatever HE decides he wants to do because it's his life and should be his choice.
Hang in there and let's hope for that miracle though that he can pull through this current struggle and get out of that hospital and back to something better!
:grouphug; :grouphug; :grouphug;
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:grouphug; :grouphug;
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Roxanne, PLEASE take care of yourself LISTEN to me, I got strep throat dealing with my husbands crap and then everything falls apart when we are down. Even short naps are better then no sleep at all also really try to get extra vitamin c in you that seems to help me out. :grouphug; :grouphug;
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Hello Everyone,,,
Thanks Rich,,but right now I feel better,,I also think it might of been my nerves just hit me hard. I know its the hospitals job but we wanna be here 24/7 I dont feel comfortable at home we just wanna be here..And now that I am in his room so it will be alot easier..They have a hospital bed in here for us and a lounge chair so its less stressful running back and forth to his room from the family room.. We wanna sleep here and spend as much time with him as we can..
We are faced with so many decisions that are so hard for us to make........Right now it seems that we have the pain from the perionitis in check....But he is disorientated and aggaitated we dont know if its from the creatine or ammonia levels from the liver....So tomorrow do we put him through dialysis which is going to be painful since he has a huge hematoma on his arm to alleviate the toxins and fluids to make him more comfortable and we dont even know if he will be able to finish........Then are only option after that is to take him home call hospice and thats it.................WE ARE GOING OUT OF OUR MIND WITH THIS... Are we being selfish by putting him through dialysis...
It would be a little easier if we definatly knew that the liver was failing or if this is from the kidneys...
Helpppppppppppppppppppp with some thoughts
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Also,,he is having some sort of pain in his right leg always raising it,,,,he hasnt had dialysis so its not cramping from that we are confused over just one more thing...
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OMG
this is so sad mate
What does your Dad want to do?
:grouphug; :grouphug;
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To describe the aggiated hes shaking his head back and forth doesnt want things on him,,and he never does that,,,just uncomfortable it seems i ask him if he has pain and he says no..this is so sad... its ripping our hearts our everyday to see this...If everyone can ask everyone on here maybe we can get some feedback..
thanks
xoxoxoo
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He is tooooooooooo disorientate to even answer us right now it will be up to my mother, brother and me....
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Roxanne, Hospice can come to the hospital as well. If he needs to stay there, they can help him there. If ya'll want him home, they can get him there, and take care of him at home. They will probably have an incenter hospice, that would be much more family freindly than the hospital. Talk to them and see what your Dad wants. He may want to go home. Your doing better than you think you are.
I think that I would take nurse wratched's advice
Did you ever have conversations with you Dad about this situation if it arised?
You will know within your hearts what your Dad would want - and that is what is important.
Please stay strong
Lots of love to you all
:grouphug; :grouphug; :grouphug;
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Just wondering if in your State of residence, if your dad is unable to care for himself and/or make medical decisions for himself does he have anyone who is appointed to do this for him, or does it go to his wife by default? I think a family meeting is in order here. It may be a tough decision to make but based on the extensive problems he has been having I think one must ask themselves, what quality of life will there be if recovery is possible. No one but you and your family can make this decision, I can tell you what I think, but what if I'm wrong? I know it's hard but you need to conference with the doctors on the case and come straight out and ask if they think this is the end. That is what I did for my Dad, the doctor said yes, so we increased morphine to make the transition painless. Sorry you are faced with such a difficult situation but he is trusting you and your family to make the best decision you can with the information you have. :grouphug; :grouphug;
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I don't know about the symptoms of the liver failure. It sounds like he has many obstacles to overcome and you had said he's very thin, which makes it difficult as he has no reserves to fall back on for energy. You can read about the symptoms of uremia here: http://www.aakp.org/aakp-library/symptoms-of-uremic-poisoning/ - it says:
As kidney failure progresses, patients often become drowsy or sleepy. They may sleep more, and it may become difficult to arouse them from sleep. The ability to think clearly or accomplish mental tasks may become impaired, memory may become imprecise and personality can change. Some patients develop muscle cramps or restless legs. A strange or burning sensation of the legs or feet is called “peripheral neuropathy.” As the kidney failure becomes worse, patients can become disoriented or confused, develop slurred speech, suffer from seizures and eventually fall into a coma. A common symptom is loss of appetite, leading to weight loss and malnutrition. Even if encouraged to eat more, patients with uremia often are unable to eat much, become depleted in proteins and develop muscle wasting.
This is a very trying time for your family. I don't know what I would do. Staying with him, holding him, hugging him and telling him he is loved is all I can think of. Please call hospice, they will send someone over right away to help you with these difficult decisions.
:cuddle;
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:'( :'( :'( :'(
We are that is why we are staying here night and day 24/7 cause we dont know what this road is going to bring us...My poor mom you dont even know,,,she has her feelings I have mine, my brother has his its all so difficult...We are waiting right now for the kidney doctor to come in thank god i just saw him on the floor its his doctor too...I think this is our answer to dialysis, he cant make his mind up on his own so tomorrow my family will have to decide weither to go through with it...
Thanks OKarol,,I just showed my mom that and he def has the symptoms soon as the dr comes in im going to mention it to him...I have my computer here so I will be back...
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Roxanne, did you cousin, the doctor, make it there? :grouphug;
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To describe the aggiated hes shaking his head back and forth doesnt want things on him,,and he never does that,,,just uncomfortable it seems i ask him if he has pain and he says no..this is so sad... its ripping our hearts our everyday to see this...If everyone can ask everyone on here maybe we can get some feedback..
thanks
xoxoxoo
Roxanne, these symptoms are called "terminal restlestness". It can be helped by some Ativan. It is normal for what he is going through, you'll see fidgeting, restlestness, and maybe "picking" at the air, or the sheets. Please get some Hospice. Get some rest, you can't take care of him, if you are not taking care of yourself. :grouphug;
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:grouphug; from us to your family.
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Rox, all of the symptoms you said, we had it with Nanay. We thought it's the end, even the doctors, but with prayers we did overcome. I am not trying to give you false hope. Please whatever will be, keep faith and trust that GOD will show you the way. No remorse, you'eve given yourself, all of you the unselfish love, that's what is important.
love,
cris
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I am so thinking of your dad
and you and your mum and bro
:grouphug; :grouphug; :grouphug; :grouphug;
lots of love and prayers girl friend
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:grouphug; :grouphug; :grouphug;
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Wish I could say something funny to make you laugh just for a little bit, but don't feel this would a good time. I wish you had better doctors for your father so they could get him on the right pathwithout having to suffer so many setbacks.
Like...... bad memory moment who said this earlier here, you need (and your mother and brother) to get some rest (even though I'm not the best one to give advise on rest- insomnia).Switch around who stays with your father and have them use the phone if something arises. Stay at a hotel nearby if you can. A hospital is no place for rest for anyone. Plus not to mention the ability to catch something. You can't be with your father if your sick and that would not benefit him either with pneumonia he has (if I remember correctly reading that here).
Hope he get's better nd that you et some rest.
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Very good idea Chris. I totally agree. Quite apart from getting a break from the hospital environment and hopefully better sleep it's important (I think, anyway) to have a timeout for your emotional well being to recharge the mental batteries I know it seems like the last thing you'd want to do when all you are doing is worrying about dad and mom etc but I think it's important to have that time out.. relax if possible.. do something for yourself... like get a massage or even go to a movie or meal with a friend. i know that seems so trivial and how can you go out and "enjoy" yourself while your dad is suffering but trust me a few hours away will do the world for your emotional as well as physucal well being (plus getting some good food might really help. Take turns so your mom can get a timeout also. This is not abandoning your dad or that you don't care - far from it - it's looking after yourselves as much as him. I am sure your father would want that too...
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He passed away early this morning at 4:43 am...it is too painful to talk right now im in shock and beyond hurt...
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Oh Roxanne i am SO Sorry to read this. :grouphug; :cuddle;
Yet another angle has moved to heaven.
P&K
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:grouphug; :grouphug; :grouphug;
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Rox, you took good care of him, you did all you could do. Sending you deepest sympathy. :grouphug;
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:grouphug; Roxanne, I am so sorry. You and your family are in my thoughts and prayers. :grouphug;
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My deepest sympathies to you and your family, Roxanne.
Sending love.
:grouphug;
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Dear Roxanne,
I am very sorry. Sincere condolences to you and your family.
Lots of love and prayers for all
You are a wonderful daughter and did all you could
:grouphug; :grouphug; :grouphug;
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Roxanne I am so very sorry, you all did everything you could, your Dad is free from pain now, may he rest in peace. Sending caring thoughts to you, your Mum and brother at this awful time. :grouphug;
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Dear Roxanne,
My dad passed away five weeks ago from kidney failure. I know what you are going through. I take comfort in the fact that he is free from needles and pain. We have to believe they are in a better place.
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Roxanne..
Dad is at peace now, pain free and watching over you the rest of your days.
Take comfort in the fact that you were there for him.
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Rox, I agree, you did all you could and more. So sorry for your loss. He is out ofpain now. Praying for you and your family.
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Hi Roxanne
Sorry I haven't been around while you have been going through all this the last week. I am so sorry to hear about your Dad. I have read every post very carefully and you and your family did everything you could possibly do for him. Our family also had to make decisions about our Dad and it is such a hard thing to do especially when they keep trying to fight. Even though you maybe a little exhausted right now, you will always be grateful that you had the opportunity to be with him 24/7 right up until he passed. When my Mum passed away my sister and I both stayed with her for four weeks and we did not move from the hospital in all that time. We now look back on that time as the most valuable we spent with her. You did everything you possibly could and while you might not realise that now, it will be a comfort to you down the track that you did your very best for him. I guarantee he knew just how much you loved him and he knew just by the time you were spending at the hospital with him that you were showing him how much you loved him. Right now I know you feel like your heart has been ripped out and I use to get annoyed with people when my parents passed away because I didn't think they could possibly know how bad I was actually feeling. I didn't think anyone could possibly love their parents as much as I loved mine but I can quite honestly say to you I know exactly how your feel. My Dad died just over 12 months ago and my Mum nearly seven years ago. A much as you won't believe this now, a time does come when you smile at all the fond memories and the sadness does ease. I send all my love and best wishes to you and your family. Lots of love, Cindy. xx
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Roxanne, your love for your Dad was so evident. You took such good care for him and made the last days better. Thank you for sharing this sad journey with us. I'll say extra prayers for your family. :grouphug;
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Roxanne, all my best thoughts are with you and your family right now. Your Dad knew how much you loved him and that itself is a wonderful gift. You really did all you could to fight for him getting the best possible care and unfortunately that's all any of us can do. Today is probably one of the most difficult days you've lived through and I know the pain and grief will be there for some time to come. I'm so very sorry for this huge loss in your life. :grouphug; :cuddle; :grouphug;
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You did your best for your Dad. May he rest in piece. I know he knew you loved him. Be sure to take care of you during this time of grieving. :grouphug; :grouphug;
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Roxanne,
I am very sorry for your loss. Your love and concern for your father are a testament to the kind of father he was and the loving devotion of a daughter. May he rest in peace. Please give my condolences to your family.
I am sending you many :grouphug;.
Linda
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Roxanne, we are so sorry
:grouphug;
Rolando and Alene
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Everyone has already expressed what I would say. Roxanne we share your grief and loss and send you all our support and love at this very difficult time. You did everything you could for him and at least he's no longer suffering and fighting.. and he knew all you did for him and all the love you showed. There was nothing more you could do or be expected to do. It is painful I know and will be for some time but realise you did far more than most would and have gone through much suffering in this process. My thoughts are with you...
:cuddle; :cuddle; :cuddle; :cuddle;
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Roxanne, I'm so sorry. You did a great job. Take care of yourself a bit. :cuddle;
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Sorry to hear Roxanne,
He is now pain free and at ease. Please get some rest in this difficult time. You need to take care of yourself to be with your mother to help support her.
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My deepest sympathy to you and your family. :grouphug;
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Rox, :banghead; :banghead; :banghead; You did everything you can, moving heaven and earth. don't know what to say.........hugs for Mom, we are still here loving you.
love,
cris
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I hope you got some rest, physically.
Roxanne, please let your Mom know that we are here for her too.
Mary, Mother of Consolation, please be with Roxanne in her time of need.
Please Bless her Family at this difficult time. May you provide her family
with comforting thoughts in that they did everything within their powers
to aleve the pain and suffering of a truly beloved Father. Thank you
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My condolences to you and your family :grouphug;
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Roxanne your Father is in the best place he could be now, he is surrounded by Angels and family that has passed on before him. He can now more than ever, see how much you love him. He can't feel sorrow, sadness or pain anymore. Please heal and live your life as your Dad would want you to. :grouphug;
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Roxanne, I'm so sorry that he has passed on. Just please know that you guys did everything tha you could do. You did more than most people. I'm sure he was in peace just knowing you were there with him. :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle;
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Dear Roxanne,
I am so very sorry. Please know
your Dad, you and all your family
are and will be in my thoughts and
prayers.
Again, my deepest sympathy,
Anne
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My deepest sympathy to you and prayers for you and your family.
Ann
:grouphug;
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Yesterday we buried my dad and it doesnt feel real,,,its so weird I cant even explain it,,,its actually scary because I dont know what I am going to do when it does hit me.....But I just wanna thank everyone for all the help and support you have shown my family and myself...I am going to miss all of you soooooooooooooooooo very much I enjoyed so much posting everyday and waiting to hear back from all of you...i actually feel lost not having to go crazy finding answers to help him...We have been pretty occupied with family and friends around us all this week and I am sure it is all going to start setting in...
If you google Stephen Corba you can read his obituarie...
I wanted to share what was on his holy card at the funeral parlor....
God saw you were getting tired and a cure was not to be, so he put his arms around you and whispered , "Come to Me" with tearful eyes we watched you and saw you pass away, Although we loved you dearly we could not make you stay. A golden heart stopped beating, hard working hands at rest. God broke our hearts to prove to us, he only takes the best!!!
That couldnt of been more perfect to have on his card....
My email is Anjelcare@yahoo.com.............I am on messenger Yahoo, and MSN Anjelcare@yahoo.com
Hope to talk to you all soon
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Come back and post whenever you want, you're part of our family now Roxanne.
The holy card is a beautiful sentiment.
Take care Roxanne. All the best to you and your Mom and brother. :grouphug;
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Hugs to you and your family Roxanne and as Okarol said already, you're always welcome to come here and post. Let us know how you're doing because we really do care. :flower;
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:grouphug;
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:grouphug; You need them right now. :grouphug; :grouphug;
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Please come back from time to time and let us know how you are. The words on the prayer card were beautiful. Thank you for sharing them with us. Take care of yourself :cuddle;
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:grouphug; :grouphug; :grouphug;
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I've been thinking of you Roxanne. Thanks for coming back and sharing the prayer card. Please do come back anytime. The IHD family will be here. :grouphug;
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I have been thinking of you, your bro and Mum
Lots of love and wishes mate
:grouphug;
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As I sit beside my own Dad's hospital bed I think of you, I am so sad that you lost your Dad at such a young age. My own son's lost their Dad (my husband of 25 years) when he was 52 so we understand how it feels. Your prayer card was so apt. Sending love to all of your family. Rose :grouphug;
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Hi Darling.....you come back here anytime you want. We are all still here for you. You are part of the family now. I know from losing my Dad you will have your ups and downs and always know there is someone here if you want to come and talk or rant. I'd be very sad if you didn't keep in contact and I am sure everyone else would as well. Take care. Lots of love xx :grouphug;
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i have been out of town and only popping in and out so i just saw this today. i'm so sorry for your loss. you will be in my prayers. know that you are always welcome here. in fact we'll miss you terribly if you don't pop in every so often.
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Stay in touch Roxanne. Everyone is thinking about you and your family..
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Yes Roxanne your not getting away that easy. Please stick around and let us know you and your family are doing.
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Thanks for sharing with us Roxanne. :grouphug; Please listen to what everyone is saying. You are part of our family now, and want to still see you post here. Feel free to continue to share with us as you go through the process. My caring thoughts and prayers are with you and you family. :cuddle;
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I just want to post here what I have said to Roxanne privately....
This is such a difficult time specially with dad's recent birthday being such a difficult time without him there. I didn't know him at all but I have a fair idea what he would want now for Roxanne and everyone else in his family is to live the best life that they can. Specially for all the struggles he went through being so sick for a majority of his years he would want his family to live the wonderful lives they can. I am NOT saying forget about him and move on. Of course not. that's impossible to do and nobody would want that.. but at the same time it's important to not let grief bog you down. Dad wouldn't be happy with that.
Hang in there Roxanne you are in our thoughts!! :grouphug;
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:grouphug;
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Roxanne,
I am so sorry to hear about your father, and all of the circumstances over the last month in the hospital. I haven't been on in a while and just saw this. Please come back from time to time and visit and post...as you know, it's a big family here and we all pull for each other.
I know exactly what you're going through now, as I lost my mother on September 26th after getting an infection in the hospital and it was three weeks of hell as they couldn't get it under control. But please keep in touch here, and let us know how you are, and also, you can still offer advice and wisdom to others that may be going through similar situations. It took me a while to want to come back and post and I still get in my funks where I don't visit the site, but it is a win-win to post and respond to people here....it helps them (hopefully) and it is therapeutic, in a way, to offer advice to others or share a story that may comfort them.
So stay in touch and come back. Every day is difficult and nothing anyone can say will make it better, but knowing she is in a better place and out of pain is the one thing that is comforting. So try and remember that, especially during bad days or moments. I read your father's obituary, and I think it's wonderful that he and your mom were married that long. I'm sure you and your family will help your mom and each other get through this...spending as much time with my dad as possible has helped him and myself, so that's one last bit of advice I would share....as hard as it is on us kids, it has to be harder on the person they were married to for so long.
God bless and try to remain as positive as you can