I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: 7piglets on November 21, 2008, 06:24:36 PM
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For those who asked about me thanks i am sorry i didnt answer you all personally but so much has been going on..As some may recall my 39 yr old brother died suddenly and i have been having hard time..i had to have surgery for cancer and had tumor removed late july ..i FINAlly found a dr who would take out my pd catheter which has not worked from day one..When he removed he had to have major surgery because his words 'it was put in totally wrong' but he put new one in and seems to be working..i should be able to do from home in few wks..The dialysis center i go to one of the nurse was screaming at me becuase i brought to office mgr that she (although i never named names) would work on patient to patient without changing her gloves ..Well she was so nasty i asked her to walk away (i was on the machine) she stayed there and made such a fool of herself ..i reported her and they said she was spoken too and if happens again they will put in her file omg..i would think that one occurance should be means for dismissal.then she never apologized and was just asked not to come near me..i still see her doing things (no mask or not changing gloves) but reporting is obviously useless.. Then since day one on dialyssi i would throw up about 15-20 mins after being on..i finally got them to understand i am allergic to heparin..Well now pd is stating and the nurse practioner told me heparin does not get absorbed in stomach so it is fine.. Well each flush about 1 -2hrs after i get flu like symtoms and begin getting chills and sick..i can not go on like this ..i am allergic they wouldnt give a peanut to someone with peanut allergy why do they go on like this. i spoke to dr today and he told me in 20yr he never had this so he doesnt know what to do..i will clot the catheter and it will be useless without heparin (totally making me feel like it is my fault) WEll that is where i am thanks for the vent ;)
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hey 7 piglets
sorry to hear you've been having a rough time of it lately
keep on :boxing; till you get satisfactory out comes
not sure if its any use , when i started dialysis i was given, heparin, no effects,
when i went to a unit closer to home, they use CLEXANE instead of heparin
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Well you have been missed hopefully life will settle down some for you, I hope. Sorry about your Brother, that's hard to handle. :grouphug;
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You have been missed. I am so very sorry about your brother. You have had a lot to deal with. I hope things start getting better. :cuddle;
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That is total b**l S**t, being allergic to heparin can happen. I for example am I do not get heparin I have to take coumidin for my blood to not clot the machine and I run with what they call citrasate bath. so your Dr. and clinic need to know this and get you off of it...Boxman
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7 piglets, good to hear from you and sooooo sorry about your brother!!! :cuddle;
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Hi 7piglets,
Sorry to hear about the rough time you are enduring and the loss of your brother. I wish you could change to a better clinic and doctor.
Take Care
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Oh you poor soul, I can't help but here's a hug :grouphug;
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:grouphug;
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glad to hear from you
sorry such sad news
please keep reporting that tech
do not let her touch you or come near you
take care
twirl
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So glad you checked back in with us. sorry to hear about what you have to go through. If there is one thing that IHD teaches is that we have to get involved in our own treatment and not allow the 'professional' to get away with sub-standard treatment. We have to stand up for ourselves.
Please keep on posting and let us know how you are doing. :cuddle;
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:grouphug; 7piglets :grouphug;
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Piglet,
I am sorry to hear about the loss of your brother and your surgery. As for the dialysis center go over their heads and call someone else. That person is/or can contaminate others. You are your advocate! Hang in their and stay strong!!!
:grouphug;
Lori/Indiana
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:grouphug;
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Tough times 7piglets. Thinking of you and hoping for better times to come. :grouphug;
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I am so sorry you are having such a bad time. :grouphug;
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Thanks everyone for kind words..
Well I just got off the phone with the COO of the clinic (Chief Operations Officer) because the tech today was once again unprofessional..everyday out of 12-15windows they open the blinds that make the sun hit me directly in face ..(for past few weeks I asked nicely for them not to do it) but today I didnt feel good I go in at 5am just finally fell asleep around 6ish and they did it...I asked her to close it again and she laughs like a little school girl and goes and giggles with the other tech..Then she keeps making comments Oh look washing my hands,,yep got my gloves on..just very uncomfortable experience and I officially had it with her ..
the COO seemed very concerned and said truthfully that is means for dismissal of job but she will look into it tomorrow and call me back by tomorrow evening..I said I would hate for someone to lose their job esp around holiday but I can take the antagonizing anymore.. I didnt even go last Fri because I just didnt want to deal with it ..(thankfully in 5 days I only gained .6 :)
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what the hell is wrong with that bitch
next treatment wear sun glasses and bring sun tan lotion
what a bitch
you do not take that treatment
you feel bad enough at treatment without being bullied
do not let her touch you
is she jealous b/c you are young and pretty
screw her
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you need a tape recorder in your pocket.
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So sorry to hear about your brother, your operation, and the unkind nurse. Will keep
you in my prayers.
Love, Mimi
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Keep your head up and things will get better. You are in our thoughts. Good days are yet to come.
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Be sure to have your center check their stock of Heparin http://www.fda.gov/cder/drug/infopage/heparin/default.htm
Serious injuries and deaths have been associated with the use of heparin, a blood-thinning drug that contained active pharmaceutical ingredient (API) from China. The adverse events have included allergic or hypersensitivity-type reactions, with symptoms such as low blood pressure, angioedema, shortness of breath, nausea, vomiting, diarrhea, and abdominal pain.
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Keep reporting that nurse!!! What she is doing is bullying and harassment and you should not have to put up with it!!! :grouphug; to you. Hope things start getting better. So sorry about your brother. :cuddle;
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Do you want me to come with my big stick? :Kit n Stik; :Kit n Stik; :Kit n Stik;
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That is awful, 7piglets especially when she laughed like a little school girl, that tells me she knew EXACTLY what the hell she was doing! Please let us know how things work out, OK? Oh, would it be possible for you to go to another clinic if they decide to keep her anyways?
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Thanks everyone..
So they did their 'internal' investigation and stated she has been put on warning and is not to even so much as look my direction..She has been moved out of my pod area also (there are 3 different areas) I did see her today and she immediately turned around and walked the other way..I so wanted to follow her and now start harrassing her but I will let things be :)
As for the heparin..The dr is still making me feel like sh%$..he says if I can't use heparin I am going to loose the pd catheter ....what a nightmare this has been..After my last catheter being put in wrong. .now this was working and now not I am going to scream..Everything was fine up to Wed I went in for normal flush and she was draining..it was coming out slowly so she just left it and went on to other things..I said it was pulling and hurting but they said we needed to get more out. Well that days I was in so much pain I actually called husband home from work and had to take pain meds..next day I felt ok went in and it filled and no drain at all..The nurse prac said I must be dehydrated and I need to up my dry weight so they filled me and had me go home. .later in day had me come back for a drain and again nothing..Today went in same story nothing I am so so so sick of this