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Author Topic: Official Missing Twirl Post  (Read 11877 times)
kitkatz
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« Reply #25 on: September 16, 2008, 04:45:55 PM »
Twirly, Girlie, Whirlie, I miss you lots. I hope everything is okay!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
flip
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« Reply #26 on: September 16, 2008, 05:12:18 PM »
I heard that they were out of gas in Conroe, too. I just hope she can make it to and from dialysis.
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That which does not kill me only makes me stronger - Neitzsche
Sluff
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« Reply #27 on: September 16, 2008, 05:16:24 PM »
Come on Twirl find a library and let us know if you are OK. Send a smoke signal or something.  :grouphug;  :grouphug;  :grouphug;
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Ohio Buckeye
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« Reply #28 on: September 16, 2008, 06:30:59 PM »
Missing you Twirl and thinking about you.
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If I must do this to live, I must strive to live
while I am doing this.
G-Ma
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« Reply #29 on: September 16, 2008, 06:59:42 PM »
Paging Twirl....come in twirley...we miss you.   :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
petey
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« Reply #30 on: September 16, 2008, 07:20:57 PM »
Quote from: Sluff on September 16, 2008, 05:16:24 PM
Come on Twirl find a library and let us know if you are OK. Send a smoke signal or something. :grouphug; :grouphug; :grouphug;

Are there any carrier pigeons flying that way?

Miss you, twirl.
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kimcanada
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« Reply #31 on: September 17, 2008, 01:38:01 PM »
 :bump;
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del
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del and willowtreewren meet
« Reply #32 on: September 17, 2008, 04:16:13 PM »
Missing you twirl. Hope your ok. here's a flower from my garden for you  :flower;
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Don't take your organs to heaven.  Heaven knows we need them here.
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« Reply #33 on: September 17, 2008, 04:23:23 PM »

twirl, come back - I found a Shark Week 20th Anniversary DVD Set!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #34 on: September 17, 2008, 06:03:47 PM »


and a new shirt too!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
G-Ma
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« Reply #35 on: September 17, 2008, 06:07:04 PM »
I wish she would contact someone so we can all take a deep breath and sigh of relief.  Hugs twirl....   :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
MIbarra
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Stopping to smell the bluebonnets
« Reply #36 on: September 17, 2008, 08:34:24 PM »
Hey Twirl! I hope you're okay and you've found food, water and necessities!   :2thumbsup;
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Cadaver transplant April 29, 2007
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #37 on: September 17, 2008, 09:25:49 PM »
Thanks MIbarra - I looked through my messages and found that twirl had given me her hubby's cell phone - so I called. And he answered! (It's 9:20 here, she was asleep.)
He said she had a tough time because when she arrived at 4 am on Monday morning at her dialysis clinic she found they were closed. So they moved her down the street but were doubling up the shifts and she only got 3 hours in.
Today her center was back open so she got a full 4 hours and was doing better. He said they still have no electricity, but that food and necessities were more available today, and some people were also able to get gas too.
I told him we are all thinking of her and to give her our best wishes. He said as soon as they power comes back on he is sure she will post a message.

 :yahoo;  :clap;  :bandance;  :yahoo;  :clap;  :bandance;

 :cheer: Yay twirl!  :cheer:
« Last Edit: September 17, 2008, 09:28:43 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #38 on: September 17, 2008, 10:18:28 PM »
Ruth and Mikey miss Twirl.  :grouphug;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
monrein
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Might as well smile
« Reply #39 on: September 18, 2008, 01:12:52 AM »
 Good to hear.   :cheer: :flower; :cheer:
« Last Edit: September 18, 2008, 06:24:26 PM by monrein » Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kimcanada
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« Reply #40 on: September 18, 2008, 03:58:34 AM »
Thanks Okarol, I can't imagine going through this on dialysis
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David13
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« Reply #41 on: September 18, 2008, 04:00:48 AM »
 :flower; Our girl, Twirl, is okay!  :flower;
                   :cheer:  :cheer:
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Sluff
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« Reply #42 on: September 18, 2008, 04:34:30 AM »
Glad my Stalker is doing good.  :rofl;
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willieandwinnie
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« Reply #43 on: September 18, 2008, 06:10:16 AM »
 :thx; okarol. I am relieved. Thank you so much.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
MIbarra
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Stopping to smell the bluebonnets
« Reply #44 on: September 18, 2008, 06:29:00 AM »
Thanks Okarol!

Now I hope she gets electricity soon. Looks like the temperature is going up, up again after our cool break. No A/C is no fun!
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Cadaver transplant April 29, 2007
paris
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« Reply #45 on: September 18, 2008, 09:45:54 AM »
This proves how important it is to make sure we have contact numbers for our members.   If you haven't shared that info with Okarol, now is a good time to do it. 

Twirl, you have a lot of reading to catch up on.  You've been missed..   :cuddle;   We've all been very worried about your dialysis.   We love you!  :grouphug;
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kimcanada
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« Reply #46 on: September 18, 2008, 10:17:06 AM »
Quote from: paris on September 18, 2008, 09:45:54 AM
This proves how important it is to make sure we have contact numbers for our members.   If you haven't shared that info with Okarol, now is a good time to do it. 

Twirl, you have a lot of reading to catch up on.  You've been missed..   :cuddle;   We've all been very worried about your dialysis.   We love you!  :grouphug;

Where is the post for giving contact numbers?
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willieandwinnie
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« Reply #47 on: September 18, 2008, 10:46:44 AM »
EMERGENCY CONTACT

http://ihatedialysis.com/forum/index.php?topic=356.0
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Deanne
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« Reply #48 on: September 18, 2008, 12:40:17 PM »
Twirl, aren't you back yet!? This place just isn't the same without you. I'm glad to hear you're ok, but it sure doesn't sound like you're off having a good time. Bad Ike. Bad! Bad!  :Kit n Stik;
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
petey
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« Reply #49 on: September 18, 2008, 03:49:25 PM »
*petey lets out a big sigh of relief*

Thank you, okarol.

Come "home" soon, twirl!
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