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Author Topic: Out of work  (Read 11897 times)
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« on: September 15, 2008, 03:55:44 PM »
After trying to return to work without much success, I am out of work again. I cannot work full time and get enough sleep. I tried for several months but found that I was falling asleep at the wheel on the way home. I tried to get some work from home days or part time work, but my employer says it's full time or nothing.

Now how to survive on disability? That is the question.

I have stopped crying and my mood is a little better. I am just glad that I have my Ruth for kitteh therapy.



EDITED:  Moved to appropriate section - Bajanne, Moderator
« Last Edit: September 16, 2008, 07:54:34 AM by bajanne2000 » Logged
06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
monrein
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Might as well smile
« Reply #1 on: September 15, 2008, 04:21:56 PM »
Mikey I'm so sorry to hear this.  I really hope you can eventually find something part-time or some other solution. :cuddle;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
dkerr
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It is what it is . . .
« Reply #2 on: September 15, 2008, 04:45:20 PM »
Do a search for "homeshoring". There are several opportunities to work at home.  Also check odesk.com
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Orange County Ca
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« Reply #3 on: September 15, 2008, 04:50:49 PM »
Spend your time looking into retraining programs.  Talk to the local colleges, welfare offices, adult education centers.  Check with the American Association of Kidney Patients.  Ask at the other patients and social worker what others are doing.

Mike you will be amazed at how little it takes to live once you decide you don't need all the toys and stuff.

Dial up?  Forget it.  No computer at all.  Go to the library and use theirs.  Turn the heat way down and turn off the cool air.  No junk food.  Sell all but one car.  Use a bike whenever you can.  Forget the Hawaii vacation.

All that stuff can come back after your find your way back into the work force.

My income went down by 2/3.  Read that again.  By looking at every penny before it went out of the house I made it work.

This is in fact an opportunity.  You will now get paid for being a dialysis patient.  You'll be "working" say 15 hours a week at being a patient and you can study when "working".  Go back to school and get that degree or certificate.

Go for it my man.
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CAPD 1.25 years
Transplant 4.5 years
Hemodialysis 8 years
Transplant 3 and counting
Sluff
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« Reply #4 on: September 15, 2008, 05:14:06 PM »
I'm sure you will find something soon Mike.  :grouphug;
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Rerun
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Going through life tied to a chair!
« Reply #5 on: September 15, 2008, 07:40:07 PM »
Go get on disability first.  You cannot get on if you are working AT ALL....   So go do that and then they allow you to work and make up to 940??  dollars per month.  It still sucks, but it helps.

Best of luck.  I wish you the best.
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devon
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« Reply #6 on: September 16, 2008, 06:26:19 AM »
I am so sorry you have to suffer through all this.  It is so unfair.  I hope this resolves itself soon.

-Devon
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devon
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« Reply #7 on: September 16, 2008, 06:31:04 AM »
Hey!  For what it's worth... this was on MSN.com today.  Perhaps it will give you some ideas...

http://msn.careerbuilder.com/custom/msn/careeradvice/viewarticle.aspx?articleid=1630&SiteId=cbmsnhp41630&sc_extcmp=JS_1630_home1&GT1=23000&cbRecursionCnt=1&cbsid=3776c6566dcf4baab075c949a1da66c9-274872548-TX-4


-Devon
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donnia
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me and my donor Joyce
« Reply #8 on: September 16, 2008, 07:05:15 AM »
I know exactly how you feel Mikey!  I had my transplant in June and was cleared to go back to work in August.  I have been applying for jobs and nothing yet.  I am being a little picky because I don't want just anything... I want a career, but I thought it would be easy for me to get a job because of my excellent work history (I'm 36 and I was at my last job for 15 years!)..... huh, that's what I get for thinking!  If I don't get a 'career' soon I will have to take what I can get.

Orange County Ca has some great advice.... I live in Texas, and because of my kidney failure, DARS (Dept. of Assistive and Rehabilitative Svc.) would pay for me to go back to college.  I don't really want to do that.... but it is an option. 


Best of luck to you! 
Logged
Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Vlynn
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« Reply #9 on: September 16, 2008, 07:52:19 AM »
You will get through this!!!! there will be another door opening keep positve!!! :bandance;
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #10 on: September 16, 2008, 07:56:37 AM »
I know the feeling only too well.  I was out of work since June, when all my tutoring ended for the summer and my job at the tourist board was finished.  Thankfully, my daughter is looking after the household.  But it is not a pleasant feeling.
But, this too shall pass.  things do work out somehow. :cuddle;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
twirl
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« Reply #11 on: October 03, 2008, 04:18:00 PM »
I sent you a pm and now I know why you said you were moving
where are you moving
back to family
I am worried about you
you can not sleep when you are driving home
you have to think of that
take care of yourself and our darling Queen
as soon as our check comes in for winning IHD I will send you your 1/3 million dollars
I have to let David13 in, he asks so nice
we are not telling Kimcanada
twirl
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pelagia
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« Reply #12 on: October 03, 2008, 05:33:14 PM »
 :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #13 on: October 03, 2008, 06:20:30 PM »
Thanks for the support everyone. It really helps.

I am looking to move closer to my sister. Apartments are less expensive there as it is about 45 minutes further away from NYC. (The rule in NJ/PA is: the closer you are to NYC, the more you pay for housing.) I hope to find a small apartment very close to my sister as I don't have to worry about commuting now. Then I can spend more time with family. I will update everyone here once I find a new place.
Logged
06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
monrein
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Might as well smile
« Reply #14 on: October 03, 2008, 06:41:33 PM »
I've been thinking about you a lot lately Mikey.  Here's hoping you find what you need without too much hassle.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #15 on: October 03, 2008, 09:40:47 PM »
Good Luck.  It helps if we have family to be with.
Ann
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
twirl
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« Reply #16 on: October 28, 2008, 05:00:12 AM »
Mikey and Queen Ruth
you must be moving as you have not posted in days and you would never let anyone bet us at the IHD posts
I hope you are doing just fine
pm or post
I worried so much about everything
your friend,cheryl
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kimcanada
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« Reply #17 on: October 28, 2008, 07:02:59 AM »
Quote from: twirl on October 03, 2008, 04:18:00 PM
I sent you a pm and now I know why you said you were moving
where are you moving
back to family
I am worried about you
you can not sleep when you are driving home
you have to think of that
take care of yourself and our darling Queen
as soon as our check comes in for winning IHD I will send you your 1/3 million dollars
I have to let David13 in, he asks so nice
we are not telling Kimcanada
twirl

BOO!!!!  :boxing;
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twirl
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« Reply #18 on: October 28, 2008, 09:55:15 AM »
who told you
 :secret; no secrets around here
boo
boo
boo
okay, we will include Kimmie , so we all get 1/4
Buster has to share in her part
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David13
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A meow massages the heart.
« Reply #19 on: October 28, 2008, 03:44:30 PM »
I just read this.  So sorry to hear about the job loss.  I think there is some good advice from other members regarding living with less income and on applying for disability pay.  I hope you find a solution that works for you and Ruth.   :grouphug;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
kimcanada
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« Reply #20 on: October 29, 2008, 05:59:43 PM »
Mikey and Queen Ruth
you are missed
I hope all is ok with you bud

Kim
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monrein
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Might as well smile
« Reply #21 on: October 29, 2008, 06:37:28 PM »
I really miss both Mikey and the Queen herself.  Hurry back you two.  :cuddle;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
mikey07840
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Posts: 1225


Her royal highness Queen Ruth on her throne, RIP
« Reply #22 on: October 30, 2008, 05:27:25 PM »
Sorry I've been out of touch. I was in the hospital for 8 days. I got depressed and was looking at the pills in the cabinet... instead of taking them, I put myself into the hospital. I had previously discontinued my CCPD and medications. It took a week to get me on antidepressants and back onto peritoneal dialysis.

I am feeling better and am reunited with her royal highness, Queen Ruth.
Logged
06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
monrein
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Gender: Female
Posts: 8323


Might as well smile
« Reply #23 on: October 30, 2008, 05:55:35 PM »
Man, Mikey I've missed seeing you on here and I'm so very sorry to hear what a tough time you've been having.  I'm so glad that you decided to get to the hospital.  I'm giving you the biggest hug right here, right now.
 :grouphug;


Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
xtrememoosetrax
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« Reply #24 on: October 30, 2008, 05:56:34 PM »
mikey: :cuddle; :grouphug;
Glad you're back. Sorry to hear of your troubles, but happy to hear that you're doing better now. Hang in there, okay?  We all care about you very much, and you and Ruth have been missed!
Logged
Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
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