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Author Topic: Update (DONNIA!)  (Read 3422 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: September 07, 2008, 11:10:42 PM »

Update

By Rick Smith (Contact)
Monday, September 8, 2008

While her new kidney is functioning well, Donnia Robles said steroid medication has raised her glucose levels well above normal and now she's being treated for diabetes.

"All I can do to keep sane right now is laugh," she said. "I get one thing fixed and another thing breaks."

The 35-year-old former special-education aide and interpreter for the deaf is exercising and dieting to help combat the problem.

The San Angelo woman said she will not be able to return to her job working with schoolchildren because of the danger of picking up infections from the students. She is looking for another job, and, in the meantime, is organizing fundraisers to help with medical costs.

"I never knew how expensive medical bills could be," she said. "I thought I was prepared."

She and her mother-in-law are making pork tamales for the current fundraiser. They are $7 a dozen. To order, e-mail donnia1972@yahoo.com or call (325) 234-2230.

http://gosanangelo.com/news/2008/sep/08/update/
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: September 07, 2008, 11:11:14 PM »


YUM - I LOVE tamales! Can you ship them??
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Deanne
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« Reply #2 on: September 08, 2008, 10:22:16 AM »

I was on steroids to treat my FSGS several years ago. I'm not diabetic, but the steroids raised my blood sugar level to 1500 (not a typo). I still remember it all too clearly. I called my neph in frustration to ask what I was supposed to do about the latest side effect -- I couldn't see. Many hours later, he called back, told me to drop everything and get to the lab for bloodwork, then go home and stay there, but do not let myself fall asleep. Hours later again he called and told me to get to the hospital NOW! When I checked in, the medical staff was amazed that I was conscious and functioning at a relatively normal level. My neph didn't want me to fall asleep because he was afraid I'd lapse into a coma.

I hope Donnia is doing ok!
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Sluff
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« Reply #3 on: September 08, 2008, 02:42:58 PM »

Aww,,Donnia why can't things just get to normal. Hope the best for you.  :grouphug;
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donnia
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me and my donor Joyce

« Reply #4 on: September 08, 2008, 03:27:47 PM »

Awww!!!  You guys are the best!!!  I just love yall!

My blood sugars have sucked pretty bad LOL... last night before dinner it was 323.    I had to do a 12 hour fast this am and did labs at 11 then took my med at 11:30 and at noon my bs was 183... not too bad considering my other lab results. 

I will see how it looks tonight.

My town is sooo very generous!  I got over all more than 100 dozen tamales sold.  Man, it is alot of work though!  :)

I will keep yall updated :)
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
del
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del and willowtreewren meet

« Reply #5 on: September 08, 2008, 04:16:22 PM »

Boy it always sems like when you fix one thing something else breaks!!  Hope you get your bs under control.  :cuddle;
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Don't take your organs to heaven.  Heaven knows we need them here.
Chris
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« Reply #6 on: September 08, 2008, 11:40:24 PM »

I would like to order some homemade tamales, but I don't live in Cali >:( :banghead;


but the steroids raised my blood sugar level to 1500 (not a typo). I still remember it all too clearly.

The highest one I had was over 1800 and I was still awake and slightly functioning. I could barely move a muscle while standing, laying though I could move my arms. What a feeling I do not miss!
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
donnia
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me and my donor Joyce

« Reply #7 on: September 09, 2008, 04:49:33 AM »

Chris, I live in Texas.... but I don't guess that helps any :)

Yesterday before dinner my bs was 303.  For dinner I had a salad with lettuce, tomato, cucumber, avacado, cheese, ranch dressing and 2 pieces wheat toast with seasonings made into crutons.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
twirl
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« Reply #8 on: September 10, 2008, 02:30:55 PM »

Donna is 303 good for bs?
is that all you ate for dinner
hope you are better
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Chris
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« Reply #9 on: September 10, 2008, 06:00:47 PM »

Donna is 303 good for bs?
is that all you ate for dinner
hope you are better

For diabetics 303 is high. The most optimum range is 80-120 mg/dl, but there are a few people who need to be around 140 to not feel a low blood sugar episode. There are other factors to consider with a blood sugar reading also, time of day, fasting, time after meal, time medication given.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
donnia
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me and my donor Joyce

« Reply #10 on: September 16, 2008, 07:14:04 PM »

Yep, 303 is high!  With meds, diet and exercise I have gotten my BS down pretty good!  This morning my BS was 101  :bandance; and this evening it was 129.  Can't wait to see how it is tomorrow morning.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
lruffner
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« Reply #11 on: September 18, 2008, 07:26:26 AM »

I was on steroids to treat my FSGS several years ago. I'm not diabetic, but the steroids raised my blood sugar level to 1500 (not a typo).


This is one big reason that I just decided that I am not going to do the prednisone treatment for FSGS. I only had a 10-20% that it might work and that was not enough, considering all of the permanent complications one can have. I also have severe joint problems already and they would be much worse with that stuff. I figure that it is better to be in the best health that you can be when going into dialysis, rather than having a bunch of other problems too.

Donnia- so sorry to hear about the diabetes...do they have you on a pill or are you insulin dependent? If on a pill, make sure to have your liver enzymes checked. My mother's doc never checked hers and that is what led to her liver failure.


Edited: Fixed quote tag error - okarol/admin
« Last Edit: September 18, 2008, 11:36:07 AM by okarol » Logged

Diagnosed w/ primary fsgs- June 2007
Getting ready to begin transplant work-up at IU and Jewish-9/08

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