Oh well I tried

[kimcanada]

Hi everyone...

I wanted to do an update on what has been happening in my world lately...

First off, I started home dialysis in May, I was so excited, this was it I was going to get my life back YIPPY!!!

Well all that sparkles is not gold...

I had a heck of a time at first on Home dialysis, my stomach was so sore, I had such feelings of being bloated , but still I pressed on...

Then the restless leg started, it was horrible, I couldn't sleep, I disturbed everyone else in the house, we were all tired and cranky, I would tell any doctor that would listen,,, "I can't sleep""I have restless leg" to which they would answer... tisk tisk, thats to bad.

Last week I headed to Halifax once again, having not slept all night in over a month, nerves raw, eyes red and burning...  I told the doctors if all they could say was tisk tisk, I would be done with home dialysis, they tried to talk me into one day of hemo and all the rest home, I couldn't understand how this would be any better then 3 days of hemo...

So the end of the story is this... I am back on hemo, my first session was Friday, I am starting to feel better already, my creat was through the roof which caused the restless leg and my skin was so itchy I have sores...

[kellyt]

Ugh!   Sounds horrible!  What a nighmare.  I'm glad you're starting to feel better.  I get the restless legs occasionally.  I was getting it quite regularly, but now not so much.  I did have it last night, however.  I have NO IDEA if this really work or not, but Katonsdad (here on IHD) suggested putting pennies under your sheets.  I placed a handful of pennies under my mattress pad on the side of the bed where I sleep.  Again, I haven't really had the restless legs in a while so maybe that's whats helping!    I don't question it, I'm just thankful!    Last night I was lying on the couch watching TV when I was getting the RLS.  When I went to bed I didn't have any problem going to sleep.  Try it and let me know if you feel better.  NOTE:  It didn't help right away, it was probably a few nights before I even realized "Hey, I haven't had RLS in a while".  Good Luck.

[David13]

Hey, Kim!  Although I am sad to hear about what you have been going through, I am very glad to hear from you!  I am also glad that you are finally starting to feel better.   

Take care and keep us updated. . .

[Romona]

 

[del]

   Glad you are feeling better Kim.  PD does not work for everybody - it didn't for hubby. In the 2 1/2 years he was on it he never felt really well.  Kim do they have a home hemo program in your area?  Hubby has been doing nocturnal home hemo for 2 years now and it is working wonderful.

[okarol]

I hope you feel better. It must be so disappointing but you gave it a try. 

[twirl]

Kimcanada
I have missed you so much and am sorry to hear you will be back on hemo---- however, you health will be better--- do I remember that you have a ways to drive to hemo----there is no failure in trying ; failure would be in never trying---- you can swim again---- yeah----- watch out for sharks--
would they be more attracted to us b/c of our arms------ missed you so much and we need to get back to IHD post ----- those other players have had it to easy without both of us kicking IHD butts
your friend, Cheryl

[monrein]

Sorry you've been having such a rough time Kim.  Glad to see you back here however and hope you get feeling better and better. 

[pelagia]

  so sorry for your troubles.

[Ang]

good  to  see you  back KC


home  dialysis  is'nt  for  everybody  i  went  to  home  training  for  3  weeks or  so,  i  could'nt  needle  myself  and  my wife  could'nt  bring  herself  to  do  as  my  fistula  zig  zags  all  the  way  up  the  arm.


you  gave  it  a  go  and  you  cn't  ask  anymore  of  yourself.
hope  your  feeling  heaps  better  real  soon.

[MIbarra]

  Sorry you're having such a rough time of things. Hope you continue to feel better. Glad to see you back! I was wondering where you went off to.

[Sluff]

Home Hemo is not for everyone RFC. At least you gave it a try. Glad you are doing better now. 

[Joe Paul]

Sorry PD didn't work out for you Kim. I too tried PD, and it didn't work either, but, at least we both can say we tried. I hope you continue to feel better, good luck 

[twirl]

Kimmie is back
Kimmie is back
yeah yeah yeah yeah
Kimmie is back

[paris]

Kim, the only thing that matters is how you are feeling.  You gave it a good try. I am sorry it didn't work out.   Hopefully, you will do better now.  You've been missed!

[twirl]

Kimmie
have I told you I am glad you are back
you are so much braver than me
I would have never tried home dialysis
it does not matter if I stick myself or do it the other way
I am too chicken
Kimmie is back
Kimmie is back

[kidney4traci]

Sorry you had problems with your legs.  I have had similar problems, only when I lay down to sleep.  Drives you insane!!!  My dr increased my time and it has shown on my last lab that my clearance is better.  But now my phos wernt up, so that might be it too.  Have to watch all these things.  May try the pennies, couldn't hurt!!!