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Author Topic: Big day tomorrow  (Read 11010 times)
Marley
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« on: September 01, 2008, 09:04:01 PM »

Hey all

The big day is tomorrow morning at 7:30 and we're thinking positive and happy thoughts while we wait.  They'll take him down to CCICU around 6 am and do the preping down there, I'll be able to be with him until they take him into surgery.  We're having company from out of state coming around midnight who are meeting me down at the hospital--we're just gonna throw a little party in the room until they take him down--ha!!  :) 

The heart doc was in this morning and after reviewing both tests he had, he said there IS a valve that will need to be bypassed, so it could end up being an 11 hour surgery!!  My ride will be here in about an hour and I'll be staying the night with my man so we can be alone before his brother gets here later tonite.  The other day I layed down in the bed with him and one of his docs came in his room with a sour look on his face, like I shouldn't be in bed with him.  We were just watching tv!!  old sour puss--I don't have time for people like that, I just got up and sat in my chair while he was in there, when he was gong I was back in bed with my Mikey.  :)  Everyone needs a cuddle once in a while and it's been a very long while since I've had one, so I say;    :sir ken;

Please keep those good thoughts coming our way.  I know the hardest part for me tomorrow will be all the worrying I know I will be doing while they're working on him.  They will be using a pig valve to replace his damaged mirtal valve, remove the vegetation and they'll take a vein/artery? from his leg and use it to bypass an artery in a different place in his heart, lots of work ahead for the teams of doctors!!
I'll update when I can.

Marley
 :guitar:
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Marley
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« Reply #1 on: September 01, 2008, 09:16:17 PM »

Our prayers are with you. :grouphug;
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That which does not kill me only makes me stronger - Neitzsche
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: September 01, 2008, 09:31:32 PM »



I love that you got in bed with him!  :clap;

Sending you lots of good wishes and hugs!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #3 on: September 01, 2008, 09:40:29 PM »

Hope everything goes as planned. You will both be in my prayers.  :grouphug;
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rose1999
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« Reply #4 on: September 01, 2008, 10:59:12 PM »

 :grouphug; hope it all goes well, I'll have you both in my thoughts.
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circleNthedrain
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« Reply #5 on: September 02, 2008, 12:00:26 AM »

Marley, you and Mike are in my prayers.  Glad you got back in bed with Mike, it is the best medicine!
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
twirl
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« Reply #6 on: September 02, 2008, 12:37:26 AM »

God Bless You
praying for you
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Joe Paul
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« Reply #7 on: September 02, 2008, 01:13:05 AM »

You are in my thoughts and prayer   :grouphug;
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"The history of discovery is completed by those who don't follow rules"
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bolta72
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my best friend

« Reply #8 on: September 02, 2008, 05:22:06 AM »

Wishing you only the best.
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gotta do what I gotta do.. 2 yrs in ctr hemo
willieandwinnie
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« Reply #9 on: September 02, 2008, 05:31:59 AM »

You'll be in my thoughts and prayers.  :cuddle;
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annabanana
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« Reply #10 on: September 02, 2008, 08:40:05 AM »

What a great thing to throw a party before they take him down!  :clap; :clap; :clap;

Sending you extra good and positive thoughts today and esp. tomorrow.  :grouphug;
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caregiver to Randy:
HepC and stage 4 ckd
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monrein
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Might as well smile

« Reply #11 on: September 02, 2008, 08:54:20 AM »

All my best and strongest good wishes are with both of you.  It's so great how much you care about and for one another.  Enjoy the party, what a terrific idea.  As for Dr. Sourpuss...you did the right thing ignoring him.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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« Reply #12 on: September 02, 2008, 10:55:00 AM »

You have my prayers, too.   You two are so special and we can all feel the love between you.  We will all surround you with prayers and loving thoughts during this time.   :grouphug;  Can you feel our arms around you?   Post when you can.  We'lll be waiting to hear wonderful news. :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kitkatz
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« Reply #13 on: September 02, 2008, 04:24:06 PM »

Prayers are winging there way to you all.
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
del
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« Reply #14 on: September 02, 2008, 04:44:10 PM »

I'd be in the bed with my hubby too  :sir ken; to the doctors.  Best of luck to your hubby tomorrow.  :cuddle;
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Don't take your organs to heaven.  Heaven knows we need them here.
Deanne
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« Reply #15 on: September 02, 2008, 07:41:53 PM »

Sending more prayers your way.  :grouphug;
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
annabanana
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« Reply #16 on: September 03, 2008, 11:55:44 AM »

Sending good thoughts and prayers your way today.

 :grouphug; :grouphug; :grouphug;
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
thegrammalady
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« Reply #17 on: September 03, 2008, 12:02:11 PM »

sending good thoughts and waiting to hear that everything went ok.
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Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

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okarol
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« Reply #18 on: September 03, 2008, 04:43:15 PM »

take care  :thumbup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lola
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I can fly!!!

« Reply #19 on: September 03, 2008, 05:44:13 PM »

Marley :grouphug; :grouphug; Hope all went well.
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Marley
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« Reply #20 on: September 03, 2008, 10:03:06 PM »

Once again, my man proved his doctors wrong and made it through the surgery yesterday and did really good!!  He's in CVICU--got that wrong the other day--for the next few days and probably be moved to another room.  He is in a lot of pain today though and I only saw him for about 20 minutes.  HIs nurse thought it best if we left him to her today, it seemed like he was more distressed when we were there.  She told me the chest tube causes a lot of the pain and when they pull it tomorrow, he will be hurting less.  It's got to be horrible sawing through the sternum though, I mean DAMN!!  That's thick bone there!!  I'm told that it isn't that bad and my friends' mother told me the same thiing when she had hers done, she was surprised how much it didn't hurt. 

I was telling my mom yesterday that I am glad he got the endocarditis, because they never would have fixed his heart otherwise.  He was diagnosed with CHF and cardiomyopathy over a year ago and I know those don't go away, but still his heart is in much better shape than it was before.  Plus he won't fill up with fluid like he was doing since they replaced that mitral valve, which was leaking bad.  We knew about that blocked artery all this time and they couldn't fix it because of his renal failure and the surgery was very "risky" for him and it was 90% blocked at that time.  So now you guys understand why I'm sort of glad he got this infection. 

They want him to cough and take deep breaths and have a rolled up sheet he cuddles to his chest to help.  He's trying to cough but it's pretty hard for him right now and I'm hoping tomorrow will be better.  He's already had pnemonia just last month, so he's REALLY got to keep his lungs clear!! 

Like I said before, he's one tough 'ol hippy and this isn't the first time he's been close to that edge.  God must have plans for him, I know He knows I still need him here with me!!  :) 

..........and YES, I can feel your arms all wrapped around me as I went through this hell again.  Thanks so much for all your support and friendship, it means a lot to me.

Marley
 :guitar:
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Marley
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« Reply #21 on: September 03, 2008, 10:40:36 PM »

Excellent news Marley!

Pain is a very individual thing, no one's experience is quite the same as anyone else's. I hope his pain diminishes quickly and he heals and comes home to you feeling better than ever.

Alene and Rolando
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
rose1999
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« Reply #22 on: September 03, 2008, 10:44:55 PM »

That's good news, we've still got our arms around both of you  :grouphug;
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willieandwinnie
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« Reply #23 on: September 04, 2008, 04:19:56 AM »

Marley  :grouphug; We're still praying and thinking of you both.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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I can fly!!!

« Reply #24 on: September 04, 2008, 08:42:37 AM »

 :cheer: :cheer: :grouphug;
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