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Author Topic: What is the longest a patient has survived on dialysis?  (Read 35888 times)
dwcrawford
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Getting the heck out of town.

« Reply #50 on: January 12, 2010, 10:23:37 AM »

Not all that good with math and my  excel is not on this computer, but I know of one special dude on dialysis about  25 years (and still kicking).  Oops, he just kicked me.   :beer1;

Rather bear those ills we have than go to those we know not of.... lil
« Last Edit: January 12, 2010, 11:33:04 AM by dwcrawford » Logged

Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
fc2821
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Just another hamster on the dialysis W.O.F.

« Reply #51 on: January 12, 2010, 10:45:42 AM »

Hallo, my Name is Thomas Lehn and I come from Ingelheim in the near of Frankfurt/Germany. I'm at dialysis since 1970. I was 14 years old when I come at dialysis. Now, I am Working the whole day (EDV Programmer)and since 1983 I make homedialysis with my wife in the evening or night for 5 until 7 hours three times in the week. My hobbies there are driving with my cabrio and I'm in leader by a dialysis association in Germany. Look my website (www.thomas-lehn.de)
Many greetings for you, Thomas Lehn
You can write me: Thomas.Lehn@onlinehome.de

 :welcomesign; Thomas. There a special sections for introductions you might wish to use also. Glad you found us.
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
cassandra
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When all else fails run in circles, shout loudly

« Reply #52 on: January 15, 2010, 01:26:45 PM »

The longest dialysing woman in Holland is doing it for 43 years now. St Lucashospital in Amsterdam. I think I read that she doesn't want a transplant anymore now.....
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
       still on waitinglist, still ok I think
Bub
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« Reply #53 on: February 15, 2010, 10:04:16 AM »

43 years?  I would love to blow by that record!!!!
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okarol
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« Reply #54 on: February 15, 2010, 10:17:01 AM »

Hallo, my Name is Thomas Lehn and I come from Ingelheim in the near of Frankfurt/Germany. I'm at dialysis since 1970. I was 14 years old when I come at dialysis. Now, I am Working the whole day (EDV Programmer)and since 1983 I make homedialysis with my wife in the evening or night for 5 until 7 hours three times in the week. My hobbies there are driving with my cabrio and I'm in leader by a dialysis association in Germany. Look my website (www.thomas-lehn.de)
Many greetings for you, Thomas Lehn
You can write me: Thomas.Lehn@onlinehome.de

 :welcomesign; Thomas. There a special sections for introductions you might wish to use also. Glad you found us.

I looked at Thomas's page on the babelfish translator (German to English) and you can see that here http://66.163.168.225/babelfish/translate_url_content?.intl=us&lp=de_en&trurl=http%3A%2F%2Fwww.thomas-lehn.de%2F He's celebrating 40 years!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Zach
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"Still crazy after all these years."

« Reply #55 on: February 15, 2010, 10:19:01 AM »


43 years?  I would love to blow by that record!!!!


Bub, sounds like a good record to break!
 :beer1;

8)
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In-center hemodialysis since 1982--32 YEARS on March 3, 2014 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06    ;)
Work full time.  I make films.

Just the facts: 75 kgs. (about 165 lbs.)
Treatment: Tue-Thur-Sat   5 hours, 2x/wk, 6 hours, 1x/wk
600 dialysate flow (Qd)  ~400 blood pump (Qb)
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI (+/ -):  2,625 Calories, 90 grams Protein per day.

"Living a life, not an apology."
phyl1215
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« Reply #56 on: February 15, 2010, 04:40:22 PM »

This is encouraging as I just started doing PD 3 wks. ago.  On the transplant list but high antibodies so probably no transpant either.  I'm 65 so hoping for a good 10 yrs on PD. 
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PD 3 yrs.
TX list 4 yrs.
Deceased donor PERFECT MATCH Kidney transplant July 8, 2012


Learning To Dance In The Rain
fc2821
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Just another hamster on the dialysis W.O.F.

« Reply #57 on: February 16, 2010, 11:32:20 AM »

This is encouraging as I just started doing PD 3 wks. ago.  On the transplant list but high antibodies so probably no transpant either.  I'm 65 so hoping for a good 10 yrs on PD.

    Hope you do more.  That sounds bad doesn't.  I hope ypu get the transplant and don't have to do more.
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
okarol
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« Reply #58 on: March 30, 2010, 01:09:37 PM »

Gus Castaneda has been on dialysis since 1978 - over 32 years [Mar. 2010]
http://ihatedialysis.com/forum/index.php?topic=18394.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #59 on: May 19, 2010, 10:32:09 PM »

This guy falls into BOTH categories! Long living dialysis patient AND transplant patient!
Beginning at age 22, Dr. Robin Eady underwent dialysis treatment for 24 years, and he has lived with a kidney transplant for 23 years. [May 2010] http://ihatedialysis.com/forum/index.php?topic=18959.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #60 on: June 01, 2010, 03:30:02 PM »

 :waving; Our own Kevno has been on dialysis 22 years [2010] after 6 years with a transplant and 5 years of dialysis before that! http://ihatedialysis.com/forum/index.php?topic=19101.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #61 on: July 21, 2010, 01:07:38 AM »

Dialysis patient's 20-year anniversary a rare event.
Debra Reynolds, now 50, hit her 20-year mark a few weeks ago.
[July 2010]
http://ihatedialysis.com/forum/index.php?topic=19579.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
carson
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« Reply #62 on: July 21, 2010, 10:49:03 AM »

wow, I'm just a newbie....will be 13 yrs in August. Seems like forever, but, I still have 40 more years to go!
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2009 infection treated with Vancomycin and had permacath replaced
2009 septic infection that wouldn't go away
2007 began Nocturnal Home Hemo with Permacath
1997 began Peritoneal Dialysis
1982 had cadaver transplant
1981 diagnosed with GN2 and began Peritoneal Dialysis
okarol
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« Reply #63 on: July 31, 2010, 07:49:59 PM »

A man who spent almost three decades on dialysis after suffering kidney failure is "ecstatic" after getting his long-awaited kidney transplant. [July 2010] http://ihatedialysis.com/forum/index.php?topic=19699.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #64 on: November 26, 2010, 12:50:53 PM »

More than half of David Davisís life has been spent on dialysis, and he's still active after 29 years of treatment.  http://ihatedialysis.com/forum/index.php?topic=21086.0 [Nov. 2010]
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #65 on: December 08, 2010, 11:39:22 PM »

Ocala native Barbara Rivers celebrates surviving with dialysis: 28 years! http://ihatedialysis.com/forum/index.php?topic=21209.0 [Dec 2010]
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
PVUgrad
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« Reply #66 on: December 09, 2010, 05:15:55 AM »

Reading this gives me hope, as hubby starts in center D today.
He has been denied a transplant due to other health factors. :(
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Some days you are the windshield...
Some days you are the bug.
kitkatz
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« Reply #67 on: December 21, 2010, 08:00:10 PM »

Your hubby can come on over and sit in my corner.  No transplant, not eligible, and on dialysis for twelve years.
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #68 on: December 27, 2010, 04:06:05 PM »

Awwww...thanks Kit!

I just hope he holds out a year on this. He is not in a "good place" mentally now that he had to give in and start.
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Some days you are the windshield...
Some days you are the bug.
Riki
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« Reply #69 on: December 28, 2010, 07:39:20 AM »

I know a guy who's been on dialysis for most of his life.  They knew before he was born that he would have kidney issues.  He was on PD for the first year or so, but it didn't work for him, so then they put him on hemo.  He was still only a baby.  Someone actually had to sit in the chair and hold him during treatment.  I think he's about 30 now.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
okarol
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« Reply #70 on: February 24, 2011, 03:33:07 PM »

Denny Burgess celebrates 25 years on dialysis [Feb 2011] http://ihatedialysis.com/forum/index.php?topic=22109.0
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Riki
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« Reply #71 on: March 11, 2011, 11:22:15 PM »

I know a guy who's been on dialysis for most of his life.  They knew before he was born that he would have kidney issues.  He was on PD for the first year or so, but it didn't work for him, so then they put him on hemo.  He was still only a baby.  Someone actually had to sit in the chair and hold him during treatment.  I think he's about 30 now.

I found this fella on Facebook recently.  I told him about this site, but I don't know if he's been here or not
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
JerseyGirl1965
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« Reply #72 on: June 16, 2011, 06:54:57 AM »

Hello...

I was looking around Yahoo yesterday about the length of time people have been on dialysis.  I decided to pop my Dad's name in and it led me to here.  You see...if you go back to the very beginning of this post, where the Administrator had listed the names of people and their length on dialysis, you will see Edward Strudwick at the very top.  He is my Dad.  He is nearing 40 years now of continuous dialysis.  He celebrated his 70th birthday last Fall.  While he has other health issues now, dialysis was never something that kept him down.  He married, worked rotating shifts at a steel factory, raised two daughters, owned and maintained a house, and worked hard every day until he retired.  Even then, he went to work for my cousin driving limos.  My Mom was trained to do the dialysis at home for the first 25 years.  Once Dad retired, he "retired" her and now goes to the hospital three times a week.  I never remember a time when there wasn't dialysis in our lives.  He learned to live with it, as did we.  It never kept him, or us as a family, from doing anything we wanted to do.  He followed doctor's orders and has lived a full and happy life.  Today, he enjoys watching his favorite team play baseball, doing his crossword puzzles, going online, and spending time with his four grandchildren.  He gets around on a scooter, as due to his other health issues, he can not safely walk around anymore.  He also enjoys riding around the neighborhood visiting with the neighbors.

Well...that's about it.  Just wanted to register and give you an update on Dad...have a great day!
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PatDowns
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20+ years in center hemo

« Reply #73 on: June 16, 2011, 08:35:59 AM »

Hi JerseyGirl - thank you for taking the time to come on here and giving us the update on your Dad.  He truly is an inspiration as well as you and the family.  Renal failure does impact the entire family and yours is testament that it can be successfully integrated into day to day life.  Please mention this message board to your Dad.  I'd appreciate hearing firsthand of his experiences!  Best wishes - Pat

Hello...

I was looking around Yahoo yesterday about the length of time people have been on dialysis.  I decided to pop my Dad's name in and it led me to here.  You see...if you go back to the very beginning of this post, where the Administrator had listed the names of people and their length on dialysis, you will see Edward Strudwick at the very top.  He is my Dad.  He is nearing 40 years now of continuous dialysis.  He celebrated his 70th birthday last Fall.  While he has other health issues now, dialysis was never something that kept him down.  He married, worked rotating shifts at a steel factory, raised two daughters, owned and maintained a house, and worked hard every day until he retired.  Even then, he went to work for my cousin driving limos.  My Mom was trained to do the dialysis at home for the first 25 years.  Once Dad retired, he "retired" her and now goes to the hospital three times a week.  I never remember a time when there wasn't dialysis in our lives.  He learned to live with it, as did we.  It never kept him, or us as a family, from doing anything we wanted to do.  He followed doctor's orders and has lived a full and happy life.  Today, he enjoys watching his favorite team play baseball, doing his crossword puzzles, going online, and spending time with his four grandchildren.  He gets around on a scooter, as due to his other health issues, he can not safely walk around anymore.  He also enjoys riding around the neighborhood visiting with the neighbors.

Well...that's about it.  Just wanted to register and give you an update on Dad...have a great day!
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PatDowns
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20+ years in center hemo

« Reply #74 on: June 16, 2011, 08:48:00 AM »

I don't believe Dr. Peter Lundin was mentioned on this thread.  For those of you not familiar with Dr. Lundin, he was the first person on dialysis to graduate from medical school and become not only a physician, but a nephrologist.  He was on dialysis (by choice) from 1966 to 1996 before receiving a transplant.  Although Dr. Lundin has not been with us for a decade now, his influence on patient advocacy and quality of care issues continue to this day.

A short history of Dr. Lundin:
http://www.aakp.org/aakp-library/celebration-of-life/index.cfm

A tribute to Dr. Lundin by George Harper:
http://www.aakp.org/aakp-library/Peter-Lundin/index.cfm



 
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