NxStage at home

[cev]

Hi Epoman - missing your journal - how is home dialysis going?
what do you think about a place for home NxStage users to kick around how we handle little (and big too) mishaps and machine and supply issues that come up daily -- just a place to pick each others brain and maybe hold a hand or two?

[Epoman]

Hi Epoman - missing your journal - how is home dialysis going?
what do you think about a place for home NxStage users to kick around how we handle little (and big too) mishaps and machine and supply issues that come up daily -- just a place to pick each others brain and maybe hold a hand or two?

Well I have had 3 home sessions since we've been home and I tell you, it's been wonderfull I love doing it at home. My blunts have been going in perfect everytime. This section is for Nxstage users too! However if enough members here wish to have a Nxstage section I may add it. There are not very many nxstage users here currently. So if you are a nxstage user and wish to see a section for nxstage users only, please reply here and let me know.

[angieskidney]

I asked my head nurse (who I hardly ever see) if NxStage is available in Canada and she said it is! She said it is already in London, ON and Toronto ON! So maybe I will have a chance to go on NxStage one day! I asked if that is the one that does not need any plumbing modifications and she said yes. That is the only kind I would be able to have in my building!

[Epoman]

I asked my head nurse (who I hardly ever see) if NxStage is available in Canada and she said it is! She said it is already in London, ON and Toronto ON! So maybe I will have a chance to go on NxStage one day! I asked if that is the one that does not need any plumbing modifications and she said yes. That is the only kind I would be able to have in my building!

According to NxStage they are currently ONLY in the USA, I think the "Head" nurse is thinking of the AKSYS machine which is available in other places than the USA. If fact I spoke with the rep just the other day and he says it's in the works to go global, but not right now. When I asked my head nurse about nxstage she too thought I meant Aksys as well, she had no idea what a nxstage was. I will call a contact of mine at nxstage to get you a definitive answer about a Canada launch.  I think it is great you want to try. I would start learning to sticking yourself ASAP, then use a buttonhole, then when it comes to Canada you will be trained MUCH sooner. 

[angieskidney]

I asked my head nurse (who I hardly ever see) if NxStage is available in Canada and she said it is! She said it is already in London, ON and Toronto ON! So maybe I will have a chance to go on NxStage one day! I asked if that is the one that does not need any plumbing modifications and she said yes. That is the only kind I would be able to have in my building!

According to NxStage they are currently ONLY in the USA, I think the "Head" nurse is thinking of the AKSYS machine which is available in other places than the USA. If fact I spoke with the rep just the other day and he says it's in the works to go global, but not right now. When I asked my head nurse about nxstage she too thought I meant Aksys as well, she had no idea what a nxstage was. I will call a contact of mine at nxstage to get you a definitive answer about a Canada launch.  I think it is great you want to try. I would start learning to sticking yourself ASAP, then use a buttonhole, then when it comes to Canada you will be trained MUCH sooner. 

Awwww Well better for me to find out here than get my hopes up and then get disappointed right? 

[sandman]

Angie, have you checked to see ( personally ) that if NxStage was in fact available in Canada?  Or are you just going by word of mouth?

[Epoman]

I asked my head nurse (who I hardly ever see) if NxStage is available in Canada and she said it is! She said it is already in London, ON and Toronto ON! So maybe I will have a chance to go on NxStage one day! I asked if that is the one that does not need any plumbing modifications and she said yes. That is the only kind I would be able to have in my building!

According to NxStage they are currently ONLY in the USA, I think the "Head" nurse is thinking of the AKSYS machine which is available in other places than the USA. If fact I spoke with the rep just the other day and he says it's in the works to go global, but not right now. When I asked my head nurse about nxstage she too thought I meant Aksys as well, she had no idea what a nxstage was. I will call a contact of mine at nxstage to get you a definitive answer about a Canada launch.  I think it is great you want to try. I would start learning to sticking yourself ASAP, then use a buttonhole, then when it comes to Canada you will be trained MUCH sooner. 

Awwww Well better for me to find out here than get my hopes up and then get disappointed right? 

Hi Angie, I called nxstage a few minutes ago (NxStage users are given a 24/7 hot-line) I asked the nxstage rep if they had any machines in use outside the USA, he said no, he also said they actually don't even offer NxStage in Alaska or Hawaii yet either. They just don't have the infrastructure in place yet to go global.

I think it's sad how uninformed the "Head' nurse is at your center. Talking about things she has no idea about. It just goes to show how many nurses, techs, and even some doctors do not keep themselves educated on dialysis options or medical advances. Be sure to let her know she was wrong.

But sorry Angie for the bad news.

[sandman]

Kinda makes you wonder if it was in fact NxStage that Angie's nurse was talking about or some other brand?  At this point, it would appear that it could have been a  home hemo machine but from another manufacture?

[Epoman]

Kinda makes you wonder if it was in fact NxStage that Angie's nurse was talking about or some other brand?  At this point, it would appear that it could have been a  home hemo machine but from another manufacture?

There is nothing to wonder about, Angies nurse is full of shit plain and simple.    Because Angie ASKED "I asked if that is the one that does not need any plumbing modifications and she said yes." And the nurse replied yes that is the one. NxStage is the only home machine out right now that does not need any plumbing mods. There is this system: Renal Solutions Allient System Here is a link: http://www.renalsolutionsinc.com/home/allientsystem.html This machine is currently in clinical trials but I am pretty sure it's only in the USA as well.

If you don't believe me feel free to call nxstage yourself during their normal business hours. 

[charee]

I E mailed  Alvin Armer from nxstage about when when it might be available in oz (he posted his address on this site ) and he said not yet but there are plans to take it Global but at the moment it is only available in the US.

[Panda_9]

thankyou for that info charee!

[sandman]

Ahh, okay.  Thanks guys.  It's always good to be "properly" informed.

[angieskidney]

Ya I believe you. Since it is NOT available (home hemo) at ALL in my city YET .. probably the nurses have been informed of very VERY little. So it is very likely that she was misinformed but since she is the HEAD nurse (she runs the unit so maybe head nurse is not actually her proper title) she probably just didn't want to SOUND uninformed.

[Panda_9]

I was talking to my "water lady" this morning and asked her had she heard of the NxStage and she said ohh thats how they used to do it in the good ol days. So why the hell did they stop!!!  We are in a major drought at the moment and there is nothing on the cards to reduce water usage via dialysis. Im sure with all the people on dialysis here that we would be using a heck of alot of water. If we could get rid of the need for taps running for dialysis machines, then think of all the water we would be saving. But nooooo the government are too caught up in recycling sewerage water, opening more child care centres and what not. Why cant we salvage some of the water we have, and if necessary, recycle it. Makes me sooo mad!! I bed John Howard doesnt even know what dialysis is! 

[angieskidney]

Makes me sooo mad!! I bed John Howard doesnt even know what dialysis is! 

Who is John Howard?

[Panda_9]

PMSL Angie, its our Prime Minister.

[angieskidney]

PMSL Angie, its our Prime Minister.

What? Not of Canada!  .. OH wait, I looked it up! Okay the PM of Australia! Sandman was asking me.

okay .. uh .. what is PMSL? 

[sandman]

okay .. uh .. what is PMSL? 

Got me.    Waiting to hear the answer to that one myself.

[Panda_9]

Sorry PMSL=pis*ing myself laughing

[Bajanne]

Sorry PMSL=pis*ing myself laughing

This one needs to be added to Rerun's thread about acronyms!

[angieskidney]

Sorry PMSL=pis*ing myself laughing

This one needs to be added to Rerun's thread about acronyms!

There is a thread of acronyms?? 

[Epoman]

Sorry PMSL=pis*ing myself laughing

This one needs to be added to Rerun's thread about acronyms!

There is a thread of acronyms?? 

hmmmf, and I thought you cared about this site. 







 

[angieskidney]

There is a thread of acronyms?? 

hmmmf, and I thought you cared about this site. 







 

[sandman]

There is a thread of acronyms?? 

hmmmf, and I thought you cared about this site. 







 

As if you couldn't tell.   

[KTangel]

Well I have had 3 home sessions since we've been home and I tell you, it's been wonderfull I love doing it at home. My blunts have been going in perfect everytime. This section is for Nxstage users too! However if enough members here wish to have a Nxstage section I may add it. There are not very many nxstage users here currently. So if you are a nxstage user and wish to see a section for nxstage users only, please reply here and let me know.

Hubby was on home dialysis using Nxstage for a few months and was it rough going. He eventually went back to in-unit dialysis-his labs were horrible and he felt and looked awful. The concensus was that he was not getting good dialysis because he was too tall and too active for the machine. (Not to mention that we both work full time and commute over 45 minutes to and from work-we were finishing at 11:30pm every night!)




EDITED:  Fixed quote tag - Goofynina/Moderator