Lori1851
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Posts: 363
This is me Lori , Dustin's mom
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« on: August 27, 2008, 04:13:12 PM » |
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Wanted to let you all know Benjamin wrote us a very touching letter. He is 24 and is now able to run and get on with his life because of Dustin!!! He wants to write us and meet us!!!!!!!!!!!!!!!!!! Our prayers have been answered! We have to go through the privacy thing at first then we can do whatever we want!!!!!!!!!!!!!!!!!!!!!!!!!!!
Lori/Indiana
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monrein
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« Reply #1 on: August 27, 2008, 04:15:57 PM » |
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How very exciting and how wonderful to know that Dustin is still giving. All the best to Benjamin and his new lung.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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okarol
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« Reply #2 on: August 27, 2008, 04:23:29 PM » |
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My friend has a son named Nikko who is 10 years old. He has cystic fibrosis and I pray he lives long enough to get a lung transplant. I know Dustin's donation has made a HUGE change in Benjamin's life Lori. Thank you for sharing the story with us.
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RichardMEL
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« Reply #3 on: August 27, 2008, 06:17:16 PM » |
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Wow that is wonderful.. and so quick to hear from a recipient.. it must make you proud of Dustin's choice and his gift in helping others.
I have often thought that I, too, would like to write a letter to a donor family to express my apprieciation and how much their loved one's gift will have changed my life (obviously this is a thought for the future). When thinking about it though I know I would want to wait at least 6 months... first of all for the transplant to settle and to know it is working pretty well, and also to give the grieving family a bit of time. I am not sure how the system works down here in terms of you ever being actually able to do it, or if the powers that be will pass letters on etc (I am sure they would) but I know it is something I very much want to do if I'm able... to tell a family that the gift has meant so much and means a massive change in my life.. I am sure it would mean a lot to them - as Benjamin's letter and wish to meet means to you - I am sure seeing him breathing easy and *living* with dustin's gift will mean so much to you.
Very pleased to read this!
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 3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions  27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!  BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE! |
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Mimi
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« Reply #5 on: August 27, 2008, 08:29:20 PM » |
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I am so glad to hear that someone is already contacting you. The Lord always works it out for the good of everyone. You are a brave lady and I admire you so much.
Love to you and the family,
Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
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flip
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« Reply #6 on: August 27, 2008, 08:56:05 PM » |
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That's great, Lori. I've seen several donor families who totally resented the recipients because they felt like they had taken something from them. Your attitude is awesome.
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That which does not kill me only makes me stronger - Neitzsche
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Sluff
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« Reply #7 on: August 27, 2008, 10:16:41 PM » |
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That is outstanding news Lori. That has to make the loss of your son much more managable to see the transformation in Benjamin's life.
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rose1999
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« Reply #8 on: August 27, 2008, 10:35:53 PM » |
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 You are awesome, your attitude is fantastic and Dustin would be so proud of you.
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Bajanne
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« Reply #9 on: August 28, 2008, 11:10:09 AM » |
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This has added a good feeling to my day!! I am so happy for you! thanks for sharing it with us! What a wonderful gift your son gave!! Look forward to hearing about your meeting (with picts!)
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family! |
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