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Author Topic: Speaking Sunday  (Read 1867 times)
lola
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I can fly!!!
« on: August 27, 2008, 02:07:13 PM »
For those of you have followed my family via caringbridge many of you know about a little boy named Evan who passed away after his BMT from complications. Evan's mom Gina has made it her mission to educate the public about the need for people to join the BM registry, well she's coming from Cali on Friday and the UofM(college) has asked her to come and speak and get the kids to join since they are free, well she has asked me to come and talk about the need for organ donors and making sure they talk to there family's and mark donor on there license. I have 600 donate life pins and donor cards, the said they feel there will be several hundreds there :cheer: :bandance;
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www.caringbridge.org/visit/ottomachado
monrein
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Might as well smile
« Reply #1 on: August 27, 2008, 02:08:43 PM »
Good luck with that Lola and I hope you have a really great turnout. :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: August 27, 2008, 02:40:03 PM »

 :thumbup; That's great lola, you will do a fine job!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!
« Reply #3 on: August 27, 2008, 02:47:17 PM »
Great Lola and good luck.  Maybe you could print a few IHD flyers out and put them up. 

http://ihatedialysis.com/forum/index.php?topic=438.0

                 :yahoo;
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paris
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« Reply #4 on: August 27, 2008, 06:28:18 PM »
Lola, you are such a strong advocate for kidney disease and I admire all that you do.  I am sure you will do a wonderful job.  Let us know how is goes.  Good luck! :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
G-Ma
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« Reply #5 on: August 27, 2008, 06:57:05 PM »
Good luck lola.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
thegrammalady
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« Reply #6 on: August 28, 2008, 05:13:12 AM »
great and good luck
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #7 on: September 18, 2008, 09:05:16 PM »

Hey lola girl, how about an update?  :thumbup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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