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Author Topic: Woo Hoo, I Got to Meet okarol!  (Read 7195 times)
peleroja
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I have 16 hats, all the same style!
« on: August 24, 2008, 03:40:50 PM »
There I was, sitting at my table at the RSN seminar and a woman walks up and introduces herself as okarol.  I also met her daughter and one other woman who said she lurks on IHD.  How cool is that?!





TOPIC MOVED to appropriate section - Bajanne, Moderator
« Last Edit: August 24, 2008, 06:24:58 PM by bajanne2000 » Logged
Rerun
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Going through life tied to a chair!
« Reply #1 on: August 24, 2008, 03:57:07 PM »
Very cool!  We want pictures!  Oh, probably didn't have a camera on you hua?


                             :2thumbsup;
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G-Ma
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« Reply #2 on: August 24, 2008, 04:05:14 PM »
oh koooollll.... :bow;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #3 on: August 24, 2008, 04:18:50 PM »
 :2thumbsup; That was so much fun to meet another IHD member!

One of the patient meeting reps was so kind to take a photo of me and peleroja, Jenna and our new lurker friend - who I hope will register soon!
Maybe I will get the photo next week in my email.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
pelagia
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« Reply #4 on: August 24, 2008, 05:42:34 PM »
Peleroja, Were you wearing one of your 16 hats?  Even so, okarol gets points for being a keen observer.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
paris
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« Reply #5 on: August 24, 2008, 05:50:08 PM »
peleroja,  :yahoo; you've met one of the best people I know!  So glad you got to see each other.  And to the lurker, come join us! We will be nice (at first!).     
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
peleroja
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I have 16 hats, all the same style!
« Reply #6 on: August 24, 2008, 06:21:04 PM »
Quote from: pelagia on August 24, 2008, 05:42:34 PM
Peleroja, Were you wearing one of your 16 hats?  Even so, okarol gets points for being a keen observer.

Yup, I was wearing my periwinkle blue one, and she still recognized me!  Can't wait to see the pics.
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kellyt
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« Reply #7 on: August 24, 2008, 06:25:38 PM »
Whaaaaaaaaaaaa!     :'(    I want to meet Okarol -  and so many others!!!!   I can't wait to see the photo!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Bajanne
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« Reply #8 on: August 24, 2008, 06:28:52 PM »
Wasn't that something!!   :yahoo; :yahoo;  I just love it when our family members get to meet each other! those picts had better hurry up!!
 Can't wait for Vegas!!!!  Taking too long!!! 
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Sluff
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« Reply #9 on: August 24, 2008, 07:34:58 PM »
How kool is that.  :2thumbsup;
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Romona
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« Reply #10 on: August 24, 2008, 07:55:55 PM »
 :2thumbsup;
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kitkatz
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« Reply #11 on: August 24, 2008, 07:56:33 PM »
Too awesome for words!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #12 on: August 24, 2008, 09:51:38 PM »
Quote from: kellyt on August 24, 2008, 06:25:38 PM
Whaaaaaaaaaaaa!     :'(    I want to meet Okarol -  and so many others!!!!   I can't wait to see the photo!

If you guys organize a small get together in Texas - I would come visit!  :bandance;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kellyt
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« Reply #13 on: August 25, 2008, 01:23:32 PM »
I'd LOVE to do a meet and greet in Texas!

I know there is me (San Antonio), Twirl (Conro), Donnia (Dallas or Lubbuck area).   Who else?  Who's interested?  And when is best?  What's your schedule like, Okarol?
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #14 on: August 28, 2008, 09:59:49 AM »
Quote from: kellyt on August 25, 2008, 01:23:32 PM
I'd LOVE to do a meet and greet in Texas!

I know there is me (San Antonio), Twirl (Conro), Donnia (Dallas or Lubbuck area).   Who else?  Who's interested?  And when is best?  What's your schedule like, Okarol?

November is busy for me - but if I have enough notice I might get a reasonable airfare.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #15 on: August 28, 2008, 10:01:40 AM »
 :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
peleroja
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I have 16 hats, all the same style!
« Reply #16 on: August 28, 2008, 10:57:55 AM »
Karol, may I have copies of all the pics, please?  I'll be happy to send you my private email.

BTW, just the one "n" in my name!
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okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #17 on: August 28, 2008, 11:01:48 AM »
Quote from: peleroja on August 28, 2008, 10:57:55 AM
Karol, may I have copies of all the pics, please?  I'll be happy to send you my private email.

BTW, just the one "n" in my name!

PM me and I will send it.

The two "n's" came from the photographer at RSN. Sorry.  :)
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
annabanana
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« Reply #18 on: August 28, 2008, 11:33:34 AM »
So very cool!  :flower;
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
kellyt
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« Reply #19 on: August 28, 2008, 07:24:26 PM »
Beautiful!     :clap;    :cheer:
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #20 on: August 29, 2008, 10:51:28 AM »
 :2thumbsup; Absolutely beautiful picture!!!  You guys all look super!!!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
monrein
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Might as well smile
« Reply #21 on: August 29, 2008, 02:30:14 PM »
Terrific photo you three.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Zach
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"Still crazy after all these years."
« Reply #22 on: August 29, 2008, 06:03:07 PM »
Great photo!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
boxman55
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« Reply #23 on: August 30, 2008, 07:19:34 AM »
You guy's are HOT...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Sluff
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« Reply #24 on: August 30, 2008, 07:41:21 AM »
Great picture.  :thumbup;
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