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Author Topic: I'm considering traveling across half of Indiana on my scooter  (Read 3897 times)
Adam_W
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Me with Baron von Fresenius
« on: August 23, 2008, 07:00:03 PM »
I live in Indianapolis, right in the centre of the state. I have some friends down in the southern part, and I visit them once every one or two months. Since I got my new, better scooter, I've considered riding it down there instead of taking the bus or relying on someone else to drive me. I've started making my initial plans and figuring the route to take. The distance will be approximately 150 miles, and it will take me between four and six hours depending on how fast I can cruise at. Fortunately, I should be able to make it with only one fuel stop, even though I will have several stops planned in case I need extra. I've been going to a city park that has a ten mile loop of road that I can just ride laps around, and that is helping me figure fuel usage, and determine how long I can stand to be on the bike between rest stops. I'm tentatively planning to go in late Sept, early Oct. I want to be recovered from my hernia surgery, but I don't want to be back on PD yet, because I'm going to have to be able to go two days without dialysis. It's going to be a hell of a ride, but I think I'm going to enjoy it.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
G-Ma
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« Reply #1 on: August 23, 2008, 07:20:59 PM »
I think you will enjoy it as well.  Sounds like you are planning and practicing.  I hope you have a great time.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
paris
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« Reply #2 on: August 23, 2008, 07:25:50 PM »
It is always fun to plan.  Take pictures and have fun!
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Sluff
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« Reply #3 on: August 24, 2008, 06:38:26 AM »
You won't regret it but just remember to dress properly. The weather that time of the year can be very changable. Watch for gravel and have fun.  Your nickname from now on is Gravel.  :)
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G-Ma
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« Reply #4 on: August 24, 2008, 07:44:28 AM »
Hi Sluff...and did you knight him and is he now Sir Gravel the Great???   :bow;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
flip
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« Reply #5 on: August 24, 2008, 07:50:51 AM »
Which route are you taking? I go back and forth to Indy all the time.
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Joe Paul
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« Reply #6 on: August 24, 2008, 07:51:05 AM »
Good luck on your trip. As Sluff said, look out for the gravel!
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Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
twirl
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« Reply #7 on: August 24, 2008, 08:59:01 AM »
Gravel
look to Flip if you need any advice
have fun planning
and be careful
please---- no posting on the bad luck post :clap;
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Adam_W
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Me with Baron von Fresenius
« Reply #8 on: August 24, 2008, 09:52:31 AM »
Quote from: flip on August 24, 2008, 07:50:51 AM
Which route are you taking? I go back and forth to Indy all the time.
I'm going from Indy to Princeton and back. I'm taking pretty much a direct rout there over several different roads (I'd have to look at my maps 'cause I can't remember all the roads). Since I can't take the interstate, I have to stick to state highways. When we drive, we usually take the highway from Indianapolis to Terre Haute, then US 41 to Princeton. I'm really looking forward to this. Hmm......Sir Gravel the Great, eh?  :rofl;

Gravel....uh I mean Adam
Logged
-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
flip
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« Reply #9 on: August 24, 2008, 10:08:42 AM »
I would probably take 67 down to Worthington and pick up 57 down to Oakland City and then 64 over to Princeton. These are all state highways without too much traffic. I've traveled these roads many times. Make sure to take a cell phone because there's not much between the small towns. I'm less than an hour from Princeton.
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That which does not kill me only makes me stronger - Neitzsche
David13
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« Reply #10 on: August 24, 2008, 10:15:21 AM »
Good luck, Gravel!  I am sure the trip will be a great experience.
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Joe Paul
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« Reply #11 on: August 24, 2008, 10:32:07 AM »
Quote from: Joe Paul on August 24, 2008, 07:51:05 AM
Good luck on your trip. As Sluff said, look out for the gravel!
Hmm, Gravel looking out for Gravel, now thats great!!!
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
flip
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« Reply #12 on: August 24, 2008, 10:34:33 AM »
Let us know when you plan on leaving and I'll PM you my cell phone number in case you have trouble.
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G-Ma
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« Reply #13 on: August 24, 2008, 11:44:09 AM »
OK, yes Sir Gravel the Great, you now have Sir Flip of ??? come on all, Sir Flip of?? has your back so you are good to go.
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
flip
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« Reply #14 on: August 24, 2008, 01:16:55 PM »
Actually it Sir Flip of Wilsonshire
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That which does not kill me only makes me stronger - Neitzsche
G-Ma
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« Reply #15 on: August 24, 2008, 01:23:33 PM »
I dub you (sword on each shoulder) Sir Flip of Wilsonshire.   :bow;
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
flip
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« Reply #16 on: August 24, 2008, 01:46:40 PM »
I'm deeply honored.

Once a king, always a king
but once a knight is enough
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That which does not kill me only makes me stronger - Neitzsche
Ang
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« Reply #17 on: August 24, 2008, 03:26:13 PM »
get  out  there  and  enjoy  yourself  sir  gravel  the  great.


remember  though  plenty  of  stories  of  your  travels  and :pics; :pics; :pics;
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live  life  to  the  full  and you won't  die  wondering
Deanne
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« Reply #18 on: August 25, 2008, 07:32:09 AM »
That sounds like a blast!  :yahoo; Will you arrange to dialize there so you don't have to worry about making the whole trip in two days?
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #19 on: August 25, 2008, 09:58:29 AM »

I can hardly drive a car for more than 3 hours - a scooter could be a challenge. How do they handle in rain?
Sorry, it's the mom in me, always worrying!
 :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
flip
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« Reply #20 on: August 25, 2008, 12:31:54 PM »
There are currently no dialysis centers in that area. Patients have to drive to Evansville (30-40 minutes)
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twirl
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« Reply #21 on: August 25, 2008, 09:32:39 PM »
Adam just be careful
and do not pick up strangers to ride on the back of your scooter
and watch the movie - Easy Rider -  and then watch Wild Hogs
and be careful
and can you take your laptop to keep us posted
we are your "family" and we worry
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G-Ma
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« Reply #22 on: August 26, 2008, 01:06:52 PM »
don't wink at strange women...... :rofl;
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Sunny
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Sunny
« Reply #23 on: August 26, 2008, 02:19:27 PM »
If you have checked into all aspects of this trip, and it looks like everthing will go smoothly, I think you should absolutely go ahead with it.
You will have a lot of fun and adventure. We can't let this disease stop us from living the life we want to have. Just be reasonable in your
expectations of your own physical abilities and be safe and sane about it.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
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