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Author Topic: Hello from Amanda from Oz  (Read 4612 times)
Joe Paul
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« on: August 19, 2008, 07:32:16 AM »
Amanda told me to tell you all Hello & she is OK, and that she is just having a hard time with a few things. She hopes to feel better soon.
Please keep her in thought and prayers, I think knowing that alone would help her feel better. Probably be better to post your well wishes in this thread, rather than overload her PM box. Thanks to all!!!
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #1 on: August 19, 2008, 07:49:57 AM »
Hi there Amanda. Wondererd where you'd got to. Sorry to hear you've had some problems and hope you're soon feeling better. :grouphug;
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Ken
willieandwinnie
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« Reply #2 on: August 19, 2008, 08:03:35 AM »
:cuddle; Amanda. Hope you are feeling better soon.  :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #3 on: August 19, 2008, 08:13:36 AM »
All the best Amanda. :waving;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
twirl
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« Reply #4 on: August 19, 2008, 08:17:56 AM »
hurry back to us and post
we miss you
 :cheer: :cheer: :cheer:
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Rerun
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Going through life tied to a chair!
« Reply #5 on: August 19, 2008, 08:18:04 AM »
Amanda, I miss your posts.  Please find yourself feeling better.

God Bless.........      :cuddle;
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pelagia
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« Reply #6 on: August 19, 2008, 09:09:19 AM »
Hope you are feeling well again soon.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: August 19, 2008, 09:40:24 AM »


The best place to come when you've got troubles is IHD and I hope you visit again soon Amanda. I miss you very much too!
 :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rose1999
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« Reply #8 on: August 19, 2008, 10:36:25 AM »
Hi Amanda, hope you are reading even if not posting, that way you'll know we are all wishing you the best  :cuddle;
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G-Ma
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« Reply #9 on: August 19, 2008, 10:46:03 AM »
 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
2_DallasCowboys
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« Reply #10 on: August 19, 2008, 03:05:41 PM »
Sending you warm best wishes and good thoughts, Amanda!

I hope you will be feeling 100% very soon! :flower;

Anne
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kitkatz
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« Reply #11 on: August 19, 2008, 03:29:09 PM »
Hey Aussie Girl!  I hope things get better real quick.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
lola
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I can fly!!!
« Reply #12 on: August 19, 2008, 03:42:31 PM »
Mans I miss you soooooooooooo much in chat. PM me when your up to it :cuddle; :cuddle; :cuddle;
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del
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del and willowtreewren meet
« Reply #13 on: August 19, 2008, 04:04:23 PM »
 :cuddle;  Hope you feel bettr soon.  I miss chatting to you too Amanda!!  :cuddle;
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Don't take your organs to heaven.  Heaven knows we need them here.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #14 on: August 19, 2008, 04:09:17 PM »
Thanks for passing that on to us, Joe Paul.  Amanda, we are here for you, girl, all the way.  Whenever you are ready to post again, we are here to greet you with a big cyberhug  :grouphug;  Our caring thoughts are with you.
Just a little flower to cheer up you. :flower;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
KT0930
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« Reply #15 on: August 19, 2008, 04:19:47 PM »
I hope whatever is not going well turns around for you soon. We miss you, Amanda!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Sluff
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« Reply #16 on: August 19, 2008, 07:01:39 PM »
I miss all those pictures in chat. Get back here soon.  :waving;
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paris
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« Reply #17 on: August 19, 2008, 08:11:35 PM »
Amanda,we all miss you.  And we miss Rose.  Sending you good wishes and hope you come back and visit. Take care and post when you can :grouphug;

Thanks Joe Paul :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Zach
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"Still crazy after all these years."
« Reply #18 on: August 19, 2008, 08:29:15 PM »
I miss you!

:-*
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
vandie
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« Reply #19 on: August 19, 2008, 08:29:51 PM »
We miss our girl.  Pleae take care.
xoxo
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
RichardMEL
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« Reply #20 on: August 19, 2008, 09:10:50 PM »
Amanada do love and miss you and hoping things turn up sooner rather than later.

Another aussie on my mind and in my thoughts is tamara.

I hope both of you lovely ladies are back with us soon and doing OK...
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Chris
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« Reply #21 on: August 19, 2008, 11:33:08 PM »
Get well soon Amanda
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Deanne
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« Reply #22 on: August 20, 2008, 07:09:10 AM »
Come back soon Amanada!!!!  :flower;
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Romona
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« Reply #23 on: August 20, 2008, 08:51:36 AM »
Miss you Amanda! :grouphug;
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harley08
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« Reply #24 on: September 09, 2008, 10:34:41 AM »
I hope all is well with you and your family, it is always nice to read your posts.  God speed..... :grouphug;
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