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Author Topic: The bad luck continues  (Read 5225 times)
Adam_W
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Me with Baron von Fresenius
« on: August 18, 2008, 05:53:00 PM »
I don't know when this will end! I was out riding my scooter today, and an ambulance with lights and siren going came up behind me. We were on a narrow two lane road with no shoulder. I was moving over to let the ambulance by, and I hit a patch of loose gravel doing about 35 to 40 mph and went over the handlebars. I hit the pavement face first and on both hands and slid another 10 or 15 feet according to the paramedics behind me. They immediately turned around, called dispatch to send another unit for their original call, and picked me up. Fortunately I was wearing a full face helmet, but I still had some pain in my neck. That turned out to be nothing fortunately, but I do have a broken wrist. Among other things, I'm unable to dialyze myself, so I have to go into the centre until this heals. I'm having a very hard time typing right now, so I'll give more details later.

Adam   
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: August 18, 2008, 05:54:32 PM »

Oh Adam, that's awful! I am so sorry! Please take care and let us know how you're doing.  :cuddle;  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
G-Ma
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« Reply #2 on: August 18, 2008, 05:59:11 PM »
Oh noooooo Adam.  Please take care.    :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
KT0930
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« Reply #3 on: August 18, 2008, 06:03:58 PM »
I sure hope things improve for you soon, Adam!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Adam_W
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Me with Baron von Fresenius
« Reply #4 on: August 18, 2008, 06:08:55 PM »
I did forget to mention the one bit of good news. My brand new scooter didn't even have a scratch!
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
mcjane
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« Reply #5 on: August 18, 2008, 06:11:29 PM »
 I'm also sorry to hear this Adam.  I hope this run of bad luck stops, enough is enough.
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MIbarra
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Stopping to smell the bluebonnets
« Reply #6 on: August 18, 2008, 06:55:50 PM »
 :cuddle; I'm so sorry!
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Cadaver transplant April 29, 2007
Sluff
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« Reply #7 on: August 18, 2008, 06:59:04 PM »
It could have been worse Adam, thank goodness you are still with us. I forgot to tell you to becareful on gravel. ;)
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twirl
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« Reply #8 on: August 18, 2008, 07:02:15 PM »
ALWAYS WEAR YOUR HELMET
I am saying a prayer for you right this very moment
be careful
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Romona
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« Reply #9 on: August 18, 2008, 07:04:34 PM »
 :grouphug; Sending good vibes your way!
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jbeany
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Cattitude
« Reply #10 on: August 18, 2008, 07:12:00 PM »
Geez, it's time for some good karma for you!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
paris
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« Reply #11 on: August 18, 2008, 07:13:55 PM »
Ahh Adam, I am so sorry.  It does seem like things just keep going wrong right now.  Are you in much pain?  Hope they gave you some good meds.   Take care and rest.   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sunny
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Sunny
« Reply #12 on: August 18, 2008, 07:55:20 PM »
Adam, get well soon. Glad you are O.K.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
karen547
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« Reply #13 on: August 18, 2008, 08:01:38 PM »
That must have been scary for you! I am glad you are okay though.  :grouphug;
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glitter
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« Reply #14 on: August 18, 2008, 09:42:33 PM »
 I am sorry you got hurt, but I am glad your okay. Can you still ride it with your broken wrist?
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
rose1999
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« Reply #15 on: August 18, 2008, 10:47:03 PM »
Quote from: Adam_W on August 18, 2008, 06:08:55 PM
I did forget to mention the one bit of good news. My brand new scooter didn't even have a scratch!

I'm glad you can still keep a sense of humour in all of this but what a run you've had.  Enough is enough, I hope this is the end of the bad luck now and hope the wrist will heal soon  :grouphug;  :bunny:
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Chris
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« Reply #16 on: August 18, 2008, 10:54:07 PM »
Sorry to hear about your misfortune, glad your bike  isnot hurt. However, your typing is great!
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
frankenarm
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« Reply #17 on: August 18, 2008, 11:55:23 PM »
Oh no! That was awesome of the paramedics though! Im glad your injuries are not more serious, and I hope you feel better soon!
* hugs *
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"Laughter is higher than all pain..."

Chronic renal failure since birth (1986)
Grade 5 reflux for 17 years
Hemodialysis for 9 months in 2001-2002
Living-related kidney transplant 2002
Rejection of said transplant Sept. 2007
Restart Hemodialysis Feb. 2008
Current: In-Center Hemodialysis with upper left arm fistula, on some crappy machine that alarms to loud.
Joe Paul
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« Reply #18 on: August 19, 2008, 01:45:55 AM »
Hope your wrist heals fast  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Deanne
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« Reply #19 on: August 19, 2008, 07:51:55 AM »
Adam, I'm so sorry about the accident! I hope this is the end of your bad luck for a long, long time! My friend calls this kind of run of bad luck a sh*t storm. It seems like an appropriate term.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
willieandwinnie
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« Reply #20 on: August 19, 2008, 08:06:00 AM »
Oh Adam, I am so sorry. Please try to take it easy and I'll pray that you heal real quick.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #21 on: August 19, 2008, 08:09:25 AM »
 :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!
« Reply #22 on: August 19, 2008, 08:21:57 AM »
Damn the bad luck!  Better times are just around the corner. :cuddle;



"I see a light at the end of the tunnel, but with my luck it is a train"!!!!!        :waving;
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kitkatz
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« Reply #23 on: August 19, 2008, 09:09:19 PM »
My sister took a header on her kick bike and found this pic.  I thought of you!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Adam_W
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Me with Baron von Fresenius
« Reply #24 on: August 20, 2008, 01:17:21 PM »
Photos of the damage. The bike faired pretty well-just some scratches on the mirror. Over all I think I came out of it pretty well considering what could have happened. On the helmet pic, along with the scratches, the face shield is also broken.
Logged
-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
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