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Author Topic: Radio Story  (Read 3614 times)
KR Cincy
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Home hemodialysis since May 07
« on: August 13, 2008, 08:53:39 AM »
91.7 WVXU in Cincinnati will air a story on home hemodialysis featuring my family this Sunday morning between 7:00-8:00 a.m. on a show called "Cincinnati Edition." It will stream live that morning on wvxu.org, or you can listen to it archived on Monday at wvxu.org click Programs then Cincinnati Edition. The reporter was on hand when I was getting hooked up and then went to my center to see in-center patients and talk to home training nurses.

Just a small attempt to do something good with all this....
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Not giving up...thanks to Susan.
Hawkeye
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« Reply #1 on: August 13, 2008, 12:12:49 PM »
Very cool. :2thumbsup;
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It's not easy being green.
twirl
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« Reply #2 on: August 13, 2008, 12:18:38 PM »
how great if that :cheer:
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monrein
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Might as well smile
« Reply #3 on: August 13, 2008, 05:15:12 PM »
How excellent.   :thumbup;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #4 on: August 13, 2008, 05:25:10 PM »
great!
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
G-Ma
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« Reply #5 on: August 13, 2008, 05:45:23 PM »
 :yahoo;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #6 on: August 13, 2008, 06:46:48 PM »

Thanks for letting us know - I hope to listen! http://www.wvxu.org/
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Meinuk
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« Reply #7 on: August 18, 2008, 08:58:24 AM »
Kevin, I missed the original broadcast but will be listening tonight during my run.

Best,

Anna
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
peleroja
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I have 16 hats, all the same style!
« Reply #8 on: August 18, 2008, 09:19:21 AM »
Wow, celebrities in our midst; how cool is that!
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okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #9 on: August 18, 2008, 09:50:23 AM »

Well done KR! I too, am glad you're still here!  :clap;

An essay on Home Dialysis. Aug. 17, 2008

Here's the direct link to hear the broadcast. http://198.234.121.108/cincinnatiedition/081708_DialysisEssay.mp3

I hope that works.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Russ
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« Reply #10 on: August 18, 2008, 02:38:22 PM »
Well said!   :clap;
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monrein
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Might as well smile
« Reply #11 on: August 18, 2008, 04:41:08 PM »
Great broadcast KRC.  Nice voice too.  ;D
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
KR Cincy
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Home hemodialysis since May 07
« Reply #12 on: August 19, 2008, 08:01:43 AM »
Thanks all...I think the reporter did a nice job. When I took her to my training center, the woman she spoke with was in her first day of training...and everything was going wrong! But she said no matter what, she was going to make this work She was awesome.

Thanks again for checking it out.
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Not giving up...thanks to Susan.
pelagia
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« Reply #13 on: August 25, 2008, 09:47:34 AM »
Just finally had a chance to listen during my lunch break.  great job.  not a single missed beat.  Wish I could speak that well!  :bow;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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