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Hi -
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Topic: Hi - (Read 4211 times)
dkerr
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It is what it is . . .
Hi -
«
on:
August 11, 2008, 02:12:03 PM »
I meet with a vascular surgeon on Wednesday. I have PKDand have known for 30 years this day was coming. I'm 57. My mother had PKD and was an early transplant patient (1968) in California. She died less than a year later from cancer. I have two first cousins who both have/had cancer. One died and the other is under treatment. Many on my father's side have or had cancer. Because of this, I've decided not to even pursue transplant. I am anxious about dialysis, but feel better about it than the other option for me. Everyone's feelings are different. I'm not sure if I'm the only to come to this choice, but its the one I made.
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kellyt
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Re: Hi -
«
Reply #1 on:
August 11, 2008, 02:15:35 PM »
Welcome! So glad you found this site! You will find many others who feel the same as you or that have been in the same situation. You've found a great group of people!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
willieandwinnie
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Re: Hi -
«
Reply #2 on:
August 11, 2008, 02:53:48 PM »
dkerr. You will find lots of information and support on this site. Post often.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
dkerr
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It is what it is . . .
Re: Hi -
«
Reply #3 on:
August 11, 2008, 03:17:16 PM »
A Yorkie friend. My Yorkie's name is Benson ... and he keeps me on my toes and lots of companionship.
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peleroja
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I have 16 hats, all the same style!
Re: Hi -
«
Reply #4 on:
August 11, 2008, 03:34:14 PM »
Welcome. Hope you find all the answers you need!
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willieandwinnie
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Re: Hi -
«
Reply #5 on:
August 11, 2008, 03:39:37 PM »
dkerr. Ours are Willie and Winnie and they are spoiled rotten..... They give so much love and companionship to my husband and I. Please post a picture of Benson (good name). and again
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
Re: Hi -
«
Reply #6 on:
August 11, 2008, 04:12:17 PM »
to IHD. Post often and I look forward to getting to know more about you. We'd love to see a picture of Benson sometime.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
Razman
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Re: Hi -
«
Reply #7 on:
August 11, 2008, 04:38:08 PM »
I'm glad that you have joined "the team". Lots of people to talk to and share with and I trust that we will be of some help at this time.
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G-Ma
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Re: Hi -
«
Reply #8 on:
August 11, 2008, 04:47:03 PM »
to a wonderful group of people.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
dkerr
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It is what it is . . .
Here's Benson
«
Reply #9 on:
August 11, 2008, 05:01:36 PM »
Here's my bud ....
EDITED: Picture Resized - Bajanne, Moderator
«
Last Edit: August 12, 2008, 09:47:29 AM by bajanne2000
»
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dkerr
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It is what it is . . .
Sorry
«
Reply #10 on:
August 11, 2008, 05:04:52 PM »
Picture didn't work well, so I've changed my picture on my profile to show Benson. Sorry it took way toomuch space. Don't kow how to delete if anyone has any ideas, I'd appreciate your help.
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twirl
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Re: Hi -
«
Reply #11 on:
August 11, 2008, 05:07:44 PM »
I have PKD and have been on dialysis three years this Halloween
your dog is a doll
someone else posts pictures like me
some member will come along and help you----- they always do
we are glad to have you
please keep in touch
we are a mighty group
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twirl
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Re: Hi -
«
Reply #12 on:
August 11, 2008, 05:09:36 PM »
your dog is really beautiful
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David13
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A meow massages the heart.
Re: Hi -
«
Reply #13 on:
August 11, 2008, 05:18:17 PM »
Hi, dkerr, and welcome to IHD! I'm sorry to hear you and your family have been through so much with both PKD and cancer. I also have family members with PKD and have come to this community to exchange information, learn, and to have fun, too. You seem to have given a great deal of thought to your health care plan, and I am sure your perspective will be appreciated here. I hope to see you posting often.
Your dog is adorable!
«
Last Edit: August 12, 2008, 03:36:07 AM by David13
»
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
Romona
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Re: Hi -
«
Reply #14 on:
August 11, 2008, 06:52:40 PM »
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paris
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Re: Hi -
«
Reply #15 on:
August 11, 2008, 07:47:52 PM »
Glad you joined us. This is a great group of people and we really care about each other. Many feel like you do and we each have to do what works for us. Looking forward to hearing more from you. Benson is a cutie!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Ang
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Re: Hi -
«
Reply #16 on:
August 12, 2008, 02:23:13 AM »
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live life to the full and you won't die wondering
Joe Paul
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Re: Hi -
«
Reply #17 on:
August 12, 2008, 02:25:20 AM »
Welcome dkerr, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: Hi -
«
Reply #18 on:
August 12, 2008, 09:53:54 AM »
Welcome to our community! So glad that you found us. This is just the place for anyone facing the kind of challenge that you are. Here is loads of information, tons of support, bales of fun! And when you need a place to rant, vent or rage, a cybershoulder or a cyberhug, this is the place. In fact we are a bona fide family
Please read as much as you can and post as much as you can. Please let us know how you are doing on HD. That is the only option here where I live (British Virgin Islands)
I notice that we are contemporaries. As I have said many times on this forum, a friend told me that the 1950's marked the end of good people!!
Looking forward to hearing from you.
Bajanne, Moderator
PS I resized your pict of Benson, so you can always use another avatar if you wish.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
Deanne
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Re: Hi -
«
Reply #19 on:
August 13, 2008, 08:25:09 AM »
Welcome! One of my four-legged roommates is a yorkie mix. I think yorkie-poo, but since he's from a rescue, I don't know for sure.
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Deanne
1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
dkerr
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It is what it is . . .
Re: Hi -
«
Reply #20 on:
August 13, 2008, 06:16:42 PM »
Thanks for fixing Benson for me. We love our pups. I also have a shitzu named Gabby, and she's gotten old and grumpy ... more like Clara in the old commercials for Burger King ... "where's the beef"? She makes an unholy noise when she wants and really gives Benson a run for his money.
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monrein
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Might as well smile
Re: Hi -
«
Reply #21 on:
August 13, 2008, 07:24:11 PM »
Thanks for that photo of Benson. A real cutie.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
Pierre
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Posts: 28
Let's have a drink !
Re: Hi -
«
Reply #22 on:
August 14, 2008, 03:53:51 AM »
dkerr, I have also PKD, and I'm doing HD since december last year. You'll feel a lot better once on dialysis.
How was your appointment with the vascular surgeon? I had my AV fistula done in august last year and it's working fine.
Pierre
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When things are at their darkest, it's a brave man that can kick back and party.
Sluff
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Re: Hi -
«
Reply #23 on:
August 14, 2008, 05:10:56 AM »
Welcome to ihatedialysis.com dkerr,
You need to get another pup named hedges.
Benson & Hedges kind of cigarette. Oh OK not funny, anyway welcome to IHD, I hope you find lots of information and answers to any questions you might have by searching IHD. Your input is important to us and I look forward to your posts. Please feel free to post as often as you like, it keeps IHD at the top of the search engines and makes it easier to find for others who need us.
Sluff/Admin
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pelagia
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Re: Hi -
«
Reply #24 on:
August 14, 2008, 07:26:21 PM »
happy to meet you and your cutie dog! I married into a PKD family. My husband had a kidney transplant in May and both of his brothers are watching their kidney function steadily decline.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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