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Author Topic: My Walk for PKD Team  (Read 1857 times)
pelagia
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« on: August 10, 2008, 07:03:19 PM »
I am announcing it here first  :secret; - my 2008 Walk for PKD team website launched today! 

I hope you will visit and support us if you can.  Every donation will bring us a little closer to our goal.  Last year our team had over 400 supporters and we were able to raise over $20,000.  We started with a goal of $1,000, so our success is proof that miracles can happen.  Setting a goal of $20,000 is incredibly scary, but we have to try. 

I want a cure for all of you in the IHD family that have PKD and for all of our kids and grandkids who might otherwise be dealing with ESRD in the future.  The research to date has been promising and there are treatment drugs in trials.  This is a time to be optimistic.

Here's the link:

http://walk.pkdcure.org/goto/Team_Bennett

Thanks!  Linda
« Last Edit: August 11, 2008, 11:48:33 AM by pelagia » Logged
As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
pelagia
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« Reply #1 on: September 27, 2008, 01:09:06 PM »
We had our Walk for PKD today.  It was a fun time.

Here is a picture of our team:
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
willieandwinnie
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« Reply #2 on: September 27, 2008, 01:38:43 PM »
 :2thumbsup; cool picture pelagia. Love the ships in the background.  :beer1;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #3 on: September 27, 2008, 01:44:29 PM »
 :thumbup;   :clap;  :thumbup;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
lola
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I can fly!!!
« Reply #4 on: September 27, 2008, 02:07:35 PM »
 :clap; :clap;
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www.caringbridge.org/visit/ottomachado
Ang
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« Reply #5 on: September 27, 2008, 07:08:30 PM »
keep  up the  good  work
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live  life  to  the  full  and you won't  die  wondering
kitkatz
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« Reply #6 on: September 27, 2008, 07:09:50 PM »
Hurray for the kidney walk team!  :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
twirl
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« Reply #7 on: October 09, 2008, 08:00:08 AM »
and I got a T-shirt from the walk
and it was made for the Lone Star State---- Texas
and the right size
and my husband saw it and said he wanted to wear it to work on T-shirt day
he coaches and teaches health
and thanks for the cd
can I have your husband's autograph and something of his to sell on ebay?  he is going to be a star
thanks , Pelagia, that was so nice and right after my Scott was born
I love everything and thanks
wish I had this cd when I was teaching
I like to type the words to songs and have my students read of sing with the words
that helped their reading
and sometimes like in "Hey Now you're a superstar" they would write about litereal and figurative
well, if I get a kidney and go back to teaching, I'll get your husbands permission to use the words 8)
thanks again, that was cool
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pelagia
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« Reply #8 on: October 09, 2008, 09:19:37 AM »
 :cuddle; to you Twirl!
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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