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Author Topic: hi, new to this and so sad/depressed  (Read 4090 times)
weezy
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« on: August 10, 2008, 01:17:43 PM »
hi, I'm weezy and about 2 months ago my dad was diagnosed with acute kidney failure which has since become chronic.  He has immune glomerulonephritis and we are scheduled to have PD catheter surgery on Tuesday.  I have gone through a nasty depression trying to deal with this disease and although this has to be the most informative of all websites I have found, it makes me so sad to read some of the posts.  But overall I am grateful to have some place to come to and relate, but more than that the experiences of all the other members has been invaluable.  As a lurker I just want to say Thanks, Weezy
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G-Ma
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« Reply #1 on: August 10, 2008, 01:40:00 PM »
 :welcomesign;
Don't be a lurker, join in...this site will help so much if you participate..ask any questions and I'm sure you can also help us.  This I'm sure is frightening for you.  I have been a child of a disease and a parent with it and watch my children, however they have grabbed on to all the knowledge they can get and that really helps me...my oldest son even has been reading all info he can find on this site and there is a lot.  I am overwhelmed by the love they show in doing this with me.  You will be fine.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
willieandwinnie
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« Reply #2 on: August 10, 2008, 02:43:22 PM »
:welcomesign; weezy. We all know how you feel in our own way. Post your questions and fears and we'll be here to help and listen.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #3 on: August 10, 2008, 02:54:25 PM »
Welcome weezy.  Please don't hesitate to come here to unload your feelings of sadness about your Dad.  I'm so sorry that you and your family are having to go through this and all of us here know the dialysis story inside and out from all the different perspectives.  No one person has had all the experiences but collectively we've had them all.  I'm sending you a big hug today and I do hope that you'll find a way NOT to let depression and sadness rob you (or your Dad) of any more of your quality of life than kidney disease already has.   :big hug:
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
weezy
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« Reply #4 on: August 10, 2008, 05:18:02 PM »
Thank you so much all of you, your kindness makes me want to cry.  I am so grateful that I have a place to come to where I can learn so much and cry at times, yet at the same time I hate that I know about any of this.  We have been fortunate that my Dad's treatment thus far at our local Davita center have thus far been OK, he is scheduled for a PD catheter this Tues and I am worried that we are making a mistake.  What if this is worse for him than hemo?  At this point I'm afraid of every single thing associated with this disease.
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Ang
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« Reply #5 on: August 10, 2008, 05:21:54 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
monrein
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« Reply #6 on: August 10, 2008, 05:31:35 PM »
Don't worry about the choice of PD over hemo.  If it doesn't work as well for him he can switch back.  I've only done hemo but several people here have done both.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #7 on: August 10, 2008, 05:52:30 PM »
Weezy, Welcome to the IHD community. There is a lot of support here for you whenever you need it.  Lurking is optional.  :cuddle; Linda
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
peleroja
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I have 16 hats, all the same style!
« Reply #8 on: August 10, 2008, 06:46:53 PM »
Welcome, Weezy  I"ve been on PD for 5 years now and I think it's the best choice for me.  I hope it works out for your dad.  Ask lots of questions, someone here is bound to have the answer!
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Katonsdad
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« Reply #9 on: August 10, 2008, 08:42:41 PM »
  :welcomesign;

you are with like people here . We all need someone to cry on everyonce in awhile .
Read the posts and check out the options.

Katonsdad
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Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
 purr purr purr ::
Sheldon and Penny on The Big Bng Theory
RichardMEL
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« Reply #10 on: August 10, 2008, 09:54:54 PM »
Hi Weezy and welcome. This is a stressful situation your dad and your entire family are going through - everything is new ans scary for everyone involved. I think if IHD shows you anything it should be that your dad can live and do OK on whatever mode of dialysis suits him the best - and as time goes on he will get to decide what works best for him - Hemo or PD etc. Also as he settles into treatment hopefully he will feel better and you will also become more used to the whole thing.

In the meantime feel free to rant here, or just ask questions. We don't bite... mostly :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Joe Paul
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« Reply #11 on: August 10, 2008, 11:29:29 PM »
Welcome Weezy, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
paris
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« Reply #12 on: August 11, 2008, 07:50:30 PM »
 :welcomesign;  Please use us a shoulder to lean on :cuddle;    This is a good place for you to learn and to vent.  We are all here for you :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
twirl
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« Reply #13 on: August 20, 2008, 01:56:13 PM »
welcome to our group :flower;
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Ohio Buckeye
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« Reply #14 on: August 20, 2008, 02:24:47 PM »
 :welcomesign; Weezy to the IHD Family!
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If I must do this to live, I must strive to live
while I am doing this.
rose1999
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« Reply #15 on: August 20, 2008, 10:51:19 PM »
:welcomesign;, I'm here for my Dad too.  Please come on in, don't just lurk! Everyone will welcome you and answer any questions, there are also things to make you smile - God knows we all need a smile sometimes.  :)
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Mimi
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For any who do not like me I use - prayer.
« Reply #16 on: August 20, 2008, 11:07:03 PM »
 :welcomesign; :welcomesign; :welcomesign;

Love, Mimi
« Last Edit: August 20, 2008, 11:14:02 PM by Mimi » Logged
Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Lori1851
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This is me Lori , Dustin's mom
« Reply #17 on: August 21, 2008, 02:59:13 AM »
 :flower; Weezy,
Wonderful support group here! Welcome!!!
Lori/Indiana
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Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #18 on: August 21, 2008, 03:09:21 AM »
 :welcomesign;
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Ken
lola
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I can fly!!!
« Reply #19 on: August 31, 2008, 05:14:22 AM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
kitkatz
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« Reply #20 on: August 31, 2008, 09:39:33 PM »
Take your time and read the information available to you about your Dad's condition. The more you know the better informed you will be in helping him make medical decisions. Welcome!


Kitkatz,moderator
« Last Edit: September 02, 2008, 03:50:29 PM by kitkatz » Logged


lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
devon
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« Reply #21 on: September 02, 2008, 12:25:09 PM »
Kitkatz said it as well as I could... more information, less worry.

I was very anxious and overwhelmed too before I came here to IHD.  The prospect of being on a machine for the rest of my life was a real terror.  I found IHD to be a great place to educate myself and get comfortable with this disease and the procedures associated with it.  I hope you find the same.

Perhaps if you look at this way, you might find some strength... Your Dad is the one with the disease.  Imagine what he must be going through?   He needs your support and encouragement as you both work your way through this.  This experience might be a bridge to your relationship with him and bring you closer together.  Share your feelings with him.  You're in this together.

-Devon
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carson
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« Reply #22 on: September 17, 2008, 08:23:54 PM »
What I've found is the patient is often more accepting of the dialysis than the family and/or caregiver(s). I know I think nothing of it any more. Now that's not to say all my days are great, but I have few down days. My husband, on the other hand, has a much harder time. He's forever worried about me. I've told him not to be but he is. I think it's because he can't fix me, and I can understand his frustrations. He's not perfectly well and I wish I could fix him...Give your Dad some time to adjust. It'll become just like brushing your teeth!!
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2009 infection treated with Vancomycin and had permacath replaced
2009 septic infection that wouldn't go away
2007 began Nocturnal Home Hemo with Permacath
1997 began Peritoneal Dialysis
1982 had cadaver transplant
1981 diagnosed with GN2 and began Peritoneal Dialysis
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #23 on: September 18, 2008, 10:08:25 AM »
A belated WELCOME to our community.  I just realized I had missed this one.  You introduced yourself at a time I was having some Internet problems.  I trust that you have now come to terms with the situation.   My dad was diagnosed with kidney failure at age 89, but they refused to put him on dialysis, so we just had to say goodbye to him.  I am glad that you are there for your dad - your signing up with us is proof of that.  I am sure that you realize already that here you have information, support, a place to vent, and even some fun.   Just keep posting (in the appropriate sections) and let us know how your dad is doing.
Looking forward to hearing from you :flower;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
thegrammalady
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« Reply #24 on: September 18, 2008, 10:45:24 AM »
:welcomesign; and glad you decided to speak up. you'll find lots of help here and lots of fun too.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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