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Author Topic: Got some news from the Organ Translpant  (Read 12626 times)
Lori1851
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This is me Lori , Dustin's mom
« on: August 09, 2008, 07:20:34 PM »
Hello friends,
I received a big envelope that had a beautiful letter in it. They said the man that got Dustin's lungs is 24 not 20 and is from Maryland and is doing great. He had been on the  list since March . He is also disabled.

A 65 yr old man from New Mexico got his liver!!!!!!! He works in a lumber yard. ANd said he is doing great also!!!!!

We also got a certificate signed by the US Surgeon General.

Yea, I cried reading it but know Dustin is smiling.

Have a great day tmrw!!

Lori/Indiana
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Jill D.
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« Reply #1 on: August 09, 2008, 07:25:20 PM »
That's beautiful  :grouphug;
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
paris
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« Reply #2 on: August 09, 2008, 07:56:20 PM »
Lori, how nice to hear that Dustin was able to give a second chance to these people.  I know you will treasure those letters.  I think about you often and hope you keep posting.  How is Jasmine doing?  Sending a big hug  :cuddle; and love. 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
flip
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« Reply #3 on: August 09, 2008, 08:25:43 PM »
You may disagree, but I think it would be great if you could meet these people someday. In a way, Dustin is a part of them and his legacy lives on through them.
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That which does not kill me only makes me stronger - Neitzsche
rose1999
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« Reply #4 on: August 09, 2008, 10:55:35 PM »
That's made me sad and happy all at once.  Bless you for giving these people life and hope. Dustin lives on, he will be so proud.   :cuddle;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: August 09, 2008, 10:58:10 PM »


 :cuddle; I am so glad those people took a few minutes to send you those letters. Thanks Lori, for sharing it with us.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #6 on: August 10, 2008, 03:54:47 AM »
I was so pleased to read your post Lori.  It gave me chills of joy but then of course I remembered the tragedy that made this all possible.  So glad those people have a second lease on life, so sorry Dustin is gone. :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Lori1851
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This is me Lori , Dustin's mom
« Reply #7 on: August 10, 2008, 06:23:41 AM »
Yes, Dusitn's legacy lives on. The letter was not from the receipients but the organ procurement letting us know the age, gender and what they got.
We have an open invitatoin to the receipients that they can write, call or meet us in person. We would so love to meet them.
Lori/Indiana
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lola
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I can fly!!!
« Reply #8 on: August 10, 2008, 07:22:41 AM »
Lori- :grouphug; :grouphug; :flower;
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KT0930
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« Reply #9 on: August 10, 2008, 09:20:05 AM »
 :grouphug; Thank you letting us know, Lori. Thank you also, for continuing to keep in touch with us and letting us know how you're doing.
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
kitkatz
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« Reply #10 on: August 10, 2008, 11:17:10 AM »
 :grouphug; :flower;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
pelagia
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« Reply #11 on: August 10, 2008, 06:31:34 PM »
sending you hugs and love Lori  :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Sunny
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Sunny
« Reply #12 on: August 10, 2008, 06:47:44 PM »
You are so brave. Thank you for sharing this good news with us.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Romona
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« Reply #13 on: August 10, 2008, 07:43:11 PM »
:grouphug; I hope you hear from the recipients. It meant so much to me to hear from my donor family.
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #14 on: August 20, 2008, 10:39:50 AM »
Sorry that I missed this before.  thanks so much for sharing that with us. What a wonderful thing to do for other human beings.  Dustin lives on!! :flower; :flower; :flower;
And how are you doing?
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Lori1851
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This is me Lori , Dustin's mom
« Reply #15 on: August 20, 2008, 01:07:07 PM »
I am doing pretty good. Still miss Dustin something terrible. Gary my hubby and Dustin's dad said he was woke up by Dustin today. Dustin yelled "Dad" in his left ear as clear as could be. Gary said "Ok Dustin I know your here". Dustin is still around us. Not physically but in the afterlife.

Lori/Indiana
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #16 on: August 20, 2008, 02:15:17 PM »

That's cool, he is just checking in.  :clap;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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