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Author Topic: Introduction  (Read 2788 times)
debip127
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« on: July 30, 2008, 11:23:31 AM »
Hi to everyone!  I am Debi, the wife of a dialysis patient.  Russ has been on dialysis since April and hates it and I hate what he has to go through.  This is all new to us so bear with me if I ask a lot of questions.  He was turned down for a kidney transplant here because he also needs a liver so we travel to Cleveland next week for testing and stuff.  I am so afraid that if gets turned down, he will stop dialysis, which has been on his mind a lot lately.
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #1 on: July 30, 2008, 11:31:51 AM »
Welcome to our community!  This is just the place for you and you husband to be.  So sorry it is such a bad experience that he is contemplating stopping it. well, you just will have to be strong for him.  There are lots of people here with spouses and loved ones on dialysis.  check out the caregiver's sections.  Lots of support there.  please take advantage of all our site has to offer.  Here is a flower to cheer your day.  :flower;



Bajanne, Moderator
« Last Edit: August 01, 2008, 04:07:04 AM by bajanne2000 » Logged
"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
willieandwinnie
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« Reply #2 on: July 30, 2008, 11:43:52 AM »
:welcomesign; Debi, I too am a caregiver. We did home dialysis for almost 5 years and then hubby got a transplant. We are a great group for information and support. I sure hope you get good news at Cleveland next week. Please keep us posted.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
peleroja
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« Reply #3 on: July 30, 2008, 12:07:11 PM »
Welcome.  There's tons of experience here.  Hope we can help resolve things for you.
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Romona
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« Reply #4 on: July 30, 2008, 02:22:29 PM »
 :welcomesign; :welcomesign;
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flip
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« Reply #5 on: July 30, 2008, 02:26:41 PM »
Welcome, Debi. Tell him to hang in there. Dialysis is like fine wine....it gets better with age.
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That which does not kill me only makes me stronger - Neitzsche
monrein
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« Reply #6 on: July 30, 2008, 02:57:21 PM »
Welcome Debip, glad you found us and I hope you'll post often with your questions and your own experiences.  It's not easy being a caregiver especially when the patient sometimes has different ideas about how to manage the illness.  I've been at this awhile and so have many of us here and we really are a very supportive group. :waving;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
cookie2008
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« Reply #7 on: July 30, 2008, 05:28:17 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
boxman55
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« Reply #8 on: July 30, 2008, 05:35:00 PM »
Welcome Debi, please feel free to ask all the questions you want

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
pelagia
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« Reply #9 on: July 30, 2008, 05:44:20 PM »
Welcome Debi. :waving;  I hope the trip to Cleveland proves fruitful.  We are here if you need us.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
G-Ma
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« Reply #10 on: July 30, 2008, 06:41:11 PM »
Welcome and please stay with this group of great people.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Ang
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« Reply #11 on: July 31, 2008, 12:52:40 AM »
 :welcomesign;  to  you  both

hang  in  there,  ask  plenty  of  questions


it  gets  easier  as  time  goes  on, once  you  get  over  the  initial  feeling  of  what  the  hell  is  happening  to  us
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live  life  to  the  full  and you won't  die  wondering
lola
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« Reply #12 on: July 31, 2008, 06:16:51 PM »
 :welcomesign; My Husband started D in May so I understand, IHD has helped so much, you'll love it here. :flower;
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napala turki
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« Reply #13 on: August 01, 2008, 04:23:13 PM »
Hi Debi,

Sympathy with what you are facing now... life must goes on. Be strong, your husband needs lot of moral support from you, I have been through this delima, thanks to my loving wife which alway with me when I need her. :shy;
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Joe Paul
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« Reply #14 on: August 31, 2008, 01:04:30 PM »
Welcome Debi, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
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Transplant Jan. 8, 2010
paris
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« Reply #15 on: August 31, 2008, 03:46:08 PM »
Welcome, Debi.   Sounds like you husband has had a rough time.  I have a friend in his early 70's that first had a liver transplant then a year later a kidney transplant.  That was 4 years ago and he is still doing very well.   Also, my brother-in-law goes to Cleveland Clinic every month to meet with a liver transplant surgeon. He will need a transplant in the future, but for now, is dealing with complications of his liver failing. They love the doctor at C.C.   I hope you have a good experience there.  Please keep us posted.  You are dealing with too many things.  We are here to lend support :grouphug;





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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kitkatz
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« Reply #16 on: August 31, 2008, 09:47:15 PM »
Welcome to the site.  Keep finding things out for your husband.  Hope is sometimes the rope we all hang on to when we go through tough times. 



kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Pierre
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Let's have a drink !
« Reply #17 on: September 01, 2008, 03:16:20 AM »
Hi Debi, and welcome. Sorry to hear about your husband's problems accepting dialysis. That's not new or exceptional, we all have problems accepting dialysis, even after many years. The point is not to let these feelings get the upper hand, stay positive. Even without the possibility of a transplant, life with dialysis is better then giving up.
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When things are at their darkest, it's a brave man that can kick back and party.
florida.flyer
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« Reply #18 on: September 01, 2008, 05:26:10 AM »
 :flower;  Hi !
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devon
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« Reply #19 on: September 02, 2008, 06:50:00 AM »
I hope the testing goes well!

Welcome to both of you!

-Devon
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